I have spent the better part of today reading over old entries from as far back as July, 2005. I can't believe I was ever that crazy. And yet, the threat of that craziness is never very far away. For the past two years, LTD and I have kept tight controls of my medications and therapy. I am still on enough medicine to drop a buffalo. I still see my psychiatrist once, sometimes twice, a month. I am still under so much stress at work it is almost enough to level me. But I am not sick. That has accounted, I think, for the lukewarm entries of late. Updates. Anecdotes. Run-of-the-mill posts. My life has been like that...just flowing along on a wave of normal with neither peaks nor dives; doing the laundry, washing the dishes, fixing dinner, going to work, planning a wedding. It is second nature now for me to take the pills, keep track of the side effects and show up on time to my doctor's appointments. Everything is just smooth sailing...
Spencer is awesome. He is attending cosmetology school and he loves it. We still have philosophical conversations about life, about art and music, about personal goals and such. He is no longer living as a transitioning female. He identifies now as a gay male. This happened quite suddenly last year and for a while we all thought it was just a phase. It may be. But he is happier than I've ever seen him. (One day a few months ago I did some research on the odds of a gay parent having a gay child, but I couldn't find anything.) It is perhaps that rare. At any rate, he no longer sees his therapist, has made tons of friends at school and is preparing to take his driver's test. I think this is about as normal as it's going to get around here.
I have found a partner with whom I am perfectly suited. She is even-keeled and laid back. She takes everything in stride and handles my (now infrequent) mood swings with the greatest of ease.
Riding normal.
But the threat of my illness is never far away. We know summer approaches. We know the meds could stop working. We know depression or mania could just show up one day despite our best efforts and blacken the field. But we take it day by day. So far, no surprises.
Is it wrong for me to miss it? After re-reading about the total devastation that was my life a few years ago, why would I miss it? I think above all else, I miss the ability to write. This keyboard was my anchor during those hellacious moments and what came from that was often lucidity that I could never hope to achieve now. There is something about introspection for the sake of survival that took me to places I cannot even imagine at this time in my life. What is there to say now? I'm fine. LTD is fine. Spencer is fine. Work sucks. The dog needs a bath. Everything is fine.
Bipolar people love their highs. I loved mine. But I need to remember the crash afterwards. I need to remember that I nearly lost everything. I need to remember that I am well because the medication is making me well. And I so need to see the beast, still lurking there in a dark corner, ready to advance as soon as my defenses drop. I do not want to get sick again.
hmm i like that ending note. i have bi polar and being on my medication is the hardest thing for me but not is even harder... i always miss it though lol.
I had a hearing for my state disability a few weeks ago. I was represented by a lawyer and was prepped for the procedure. It took five minutes of giving my testimony before the judge stopped me and said, "I'm going to grant the claim." Three years and five minutes. The transcriptionist said, "Wait! I don't even have a page typed!" The judge said, "I think we set a record!" They all laughed. My lawyer never said a word and later told me that what transpired almost never happens. I didn't see what was so funny.
I was lucky. I had long-term disability covering me through work while I was out of work for two years. I had a steady monthly income from that. When it ran out, my doctor simply released me back to work and I got a new job. The state disability is going to cover what the long-term work disability paid out. That's what the lawyer was for...to get back the money they paid me. It was all so simple.
But I was turned down three times before a hearing was set. The same set of circumstances that led to my disability was the same issues that got me the approval in the hearing. Nothing changed. But they put me through the ringer for nearly three years waiting for it.
I see patients all the time that have been turned down. Crazy people that couldn't hold a job at a gas station, handicapped people who have trouble getting out of their houses, some people so far gone they need someone to represent them in court because they can't focus on what's happening long enough to give a straight answer. And they get turned down, again and again.
What's wrong in the system that denies these claims when they're truly warranted? When it's their money paid to Social Security in the first place? When what it's intended for goes unheeded and these people lose their homes, when they've lost their jobs and can't work? Most of the patients on my unit fighting for disability don't have insurance. We discharge them with a stack of prescriptions that we know they can't have filled. We discharge them to the street or to a homeless shelter because they've lost literally everything.
Six simple words: "I'm going to grant the claim." That's all it took. But I'm not quitting my job to go on disability. I'm able minded, so far, and I'm doing the best job I know how. I can still work and I will until it becomes necessary to stop. I'm hoping that doesn't happen.
And in the meantime, I'm praying that these poor lost souls that flock through our doors eventually hear those six simple words and get what they deserve, that they get what's theirs. It shouldn't have to be so hard.
Hi - I'm new to the support group thing online thing and the tweeting and all of that kind of stuff. I've kept myself hidden away from just about everything and people for a very long time. Now I'm on lithium and lamotrigine and am rethinking the hiding away thing I used to do. I'm disabled due to my mental illness. I haven't worked in about 7 years and have an enormous gap in my work history...but that's not exactly what I want to ask you. There's a difference between being disabled and not being disabled. Those differences are subjective to a certain extent. I'm "abled" in some ways more so than normal people but very much not so in others. I've done a lot of research but I haven't found much info on how to be disabled. How does one have confidence in their disabilities? It seems counter intuitive. I have society's biases no doubt but without a guide (not a physical one) how does one determine the boundaries of what constitues things such as what's "giving up?" Or in contrast, what's the show of strength in one's ability to ask for help? I need to get a job-they tell me to be confident in myself but nearly everything "they" need in an employee I can't give them. Have you found any info in groups, books, talking with a coffee some place about this sort of thing?
I really admire your tenacity and your idea of self. I'm not looking at you as my therapist or for you to fix anything. Just some info. Thanks for your time.
Derek, I'm typing this without my glasses on, so bear with me. You raise some interesting questions about what being "disabled" is all about. We have disabilities that people can't see, but they are very real. I never wanted to be disabled, but I was. My illness made it impossible for me to work and so I stayed home and nearly rotted to death. I did force myself to get out among people, namely, I took some classes at the local community college here. But returning to work at that time was just not possible. I'm still struggling now and I've been back to work for four months. I don't know of any groups, online or otherwise, that discuss this sort of thing. The only thing I can tell you is what some very astute people told me....get out, find something, do anything, but stop hiding. You will get lost if there's nobody out there to find you.
I systematically, one by one, and very carefully took one pill at a time, separated the capsule and emptied the contents into the garbage can. Then I carefully put the capsule back together and replaced it in my pill box. I did this for five days. And then I waited. I wanted to prove to myself that I didn't need the medication, but more than that, I wanted to write again. After a few days, I didn't feel much like writing. I was too busy wondering where LTD was going when she was supposed to be at work. I was too concerned with not eating, because my food was poisoned--not directly poisoned, as if someone were adding arsenic to my meals, but poisoned by proxy, by an interaction of meds I had taken up to that point that were still in my system. If I could only cleanse myself of all these chemicals, all would be well. Except, I couldn't get out of bed. I slept and slept and slept. They clocked me at 17 hours one day. I thought about running away. It didn't matter where. I thought about leaving LTD and Spencer behind and just leaving, but I had nowhere to go, and besides, what would I do when I got there? I got scared and started taking the meds again. I'm relatively better now.
One of the inherent components of being sick is denying that you're sick. A crazy person will never tell you that she's crazy. They believe in their delusions and that paranoia and insanity is very real to them, no matter how outlandish, and they will go down fighting to protect those beliefs. So if I can say, "Okay, I need the meds. I'm crazy off the meds,"...doesn't that mean I'm sane?
You may be "crazy off the meds"...but lets call what you are currently as, "lucid".
And you may want to mention your "capluses of air" to the doc next time around. As a health professional, you know how whonky things can get if a routine gets jacked up.
*sigh* I can so empathize.
True confession:
I "tapered down" on my meds earlier this year...thought maybe I could be relatively med-free, at least for the summer. Why did I think this? Oh, I dunno...it just seemed like I was feeling fine and things were going smoothly and why should I be taking medicine if I didn't really need it?
Now, granted, my dx is depression and my meds are mostly prophylactic, to prevent a recurrence of a major depression...at least that's what I told myself.
Fast-forward about 6 weeks. I've gained 15 lbs., having sleep problems, not getting things done, having decision-making issues...all the little harbingers of being "not well" sooooo.... I "tapered back up".
I feel fine. Things are going well...
Lesson learned (at least until the next time I "forget").
Tracy,
Do you realize you've made it through the worst part of the spring/summer and this is the "baddest" thing that happened? Maybe you are becoming a better "beast-handler"? You are still writing, too.
I understand completely. I go off my meds alot. Even though I realize I need them. I just have to go off them if even for a few days just so I feel like I give a damn about something. I feel like a zombie. And I wonder if "normal" people feel that way. They are always in the same routine, get up, go to work.. sleep normal hours etc.
I can't get myself into a routine to save my life. I slept 20 hours on friday, just to go back to bed 4 hours later and sleep another 12. Because I went off my meds. Then I was so manicky that I actually drew something, but only one thing, before the voices in my head got so loud that I started cutting myself. So of course back on the meds again.
I'm tired of being tired. I don't want to die, but I don't want to live. It's like I just dont want to exist. I do nothing but sleep or lie on the couch all day listining to music.. that's the only thing that gets me through anymore, the only thing that makes me feel any emotions at all anymore.
I think about running away too, Actually I think about just living on the street, not taking meds, being one of the homeless people who cant get the help they need, walking around talking to themselves, and I think maybe if I wasn't diabetic and had to take insulin or die in a day or 2 i might actually try it.
If you ever need to talk you can email me... i'm up alot usually... and I wouldn't mind one bit chatting with you.
The first thing to go is my sleep. For two days now, I have been up at 2:30am, writing, listening to music. It seems I can't get enough music. LTD called Dr. K and they tweaked my meds a bit. The Geodon nearly floored me. My arms and legs were so weak I could barely stand up. I stumbled around in the kitchen until I could stand it no more and went to bed. But not for long. It's coming for me. How obvious it is now. The signs are so apparent. My brain feels like hay, swirling around inside a storm in Africa. But my God, I try so hard to be still for LTD. Why is this happening now when her father and mother are so sick? How selfish am I? What control can I exert over myself to make everything normal and right, to stop the derangement of this path that leads to nothing but destruction? Early morning hours are so dangerous. It is too quiet to go chasing demons. It is too dark to seek refuge. I am too alone to talk to anyone. The world is asleep. I search for music. I torture myself over written words.
If it were possible to just decide to not be sick we would all do that. You are not selfish. Illness never comes when it convenient and this is not your fault
Yeah Raine said it. You can't pick if you are sick or not. It sucks, and it's hard on you and your loved ones, but eventually you make it through. You just have to take it one day at a time.
I'm somewhere between being okay and dangling over the pit. I hide my symptoms well enough that I can make it through the day without LTD getting that worried look on her face, or without Tasha asking if I'm okay, but that door is open and things are slipping through. I'm afraid to go to bed at night...the closer it gets to that time, the worse the anxiety gets. What is it about lying awake in the dark with thoughts of death and taxes? That's where I am. In school I'm doing well enough that people don't look at me funny, that my research papers don't alert my professors to looming psychosis and I can disappear within the masses like any of the other older women walking among 20-somethings with golden futures. I hide. Summer looms and I'm starting to think my medication isn't working, that my brain isn't lubricated enough for slick thoughts, that my arthritis starts to tighten up my joints and it all leaves me cranky, stiff, crumbling towards insanity. Am I encouraged enough to think I can make it three summers in a row without the ECT helmet? It is too shocking to think about. I tiptoe along, careful where I place my hand, and all I can think is what makes me so damn lucky? Is it LTD? Does she keep me sane? Is it her strength that keeps me strong? I don't want to hurt her. And I dread seeing that expression she gets on her face when I'm sick. It is absolutely heart-wrenching.
People with bipolar get sicker and sicker as they get older. The meds stop working. The therapy stops being effective. There are more and more hospitalizations, more shock treatments. They start to lose things....their families and friends, their homes, their health. They are the people you see wrapped up in newspaper on the corner. Is that my fate? Where will I end up? I am lucky to have a doctor that sees me on a reduced rate, who prostitutes for his drug reps for double samples so he can give me meds for free. Being sick in America without insurance is not a good place to find yourself. And that's where I am.
Just keep swinging girl. You have too many people who truly love you to allow you to fall into that pit and stay there. I know of several who have climbed into that pit after you and drug you out kicking and screaming the whole way - only to have you come out on top. You can do it.
"Yeah, I might be swinging over the alligator pit, but I'm pushing off to get more sway, I'm leaning back and twirling over those chomping jaws. For me, there is more fear in climbing up higher on the rope and avoiding the danger than in leaning down, just enough, to feel the pressure of the thrill"
Keep swinging!
Grab ahold you wonderful, crazy coconut! Swing over the pit if you like, but you damn well better not let go! I'd have to jump in after you, and I'm afraid of heights. ;)
You know, there are always exceptions. If there's one thing I know about mental illness, it's that it's never the same dance twice. Who's to say? You may very well have fried that beast into submission with the last round of ECT. I certainly understand approaching this time of year with trepedation, but cautious optimism is showing, too.
I'm still here, though I don't know if I'm blogging anymore. I'm where you are in this post I suppose, but I haven't yet mustered the energy nor the courage to open myself up yet again.
Nothing lasts forever, neither ups nor downs.
So do as your mum did when she said you won having the highest score of cardio vascular risk ;), look at the full side of the glass..You'll be ok again in no time!!
Liv...I am totally obsessed with your site and I can't read a word of it! I don't speak French, but can make out enough of what you're saying in each post to catch the drift. Still, I can't understand any of it. It's a beautiful site.
Hey Marie....I think you may find that you can't live without blogging, not totally. If it is for you what it is for me, just the exchange in the comment box is therapy.
My mind seems to have slowed to a crawl. It takes a while to answer a question. It takes a few beats to state a sentence. My movements as well, shuffled and staggered. The medicine is helping me. I know this. I haven't needed to go into the hospital, though I've been close. I'm seeing my shrink every few weeks. He is watching me very closely. But my writing is all stupid and boring. I can't read. Nothing creative flows from me, which now poses a problem, since I start a creative writing class Tuesday. I'm hoping it will jolt me awake, that it will force the process back into my neurons.
The other day I was sitting on our swing out back just enjoying the trees and birds, not worried about anything. Two seconds later it hit me like a brick. I'm sick. I'm sick. I may never be able to work again. I might get to a point where I can't drive a car. The medicine is keeping me out of the hospital but if I stopped taking it for one day, what would happen? I'm enslaved to it. It keeps me out of the hospital, but it also keeps me slowed, numbed, dumb, stupid.
I'm just now accepting this. It is a big pill to swallow.
I am glad the medicine is helping. I hope the fog lifts and you feel more comfortable reading and writing. Try not to think so far ahead (not be able to work or drive)....let it play out. It may work out better than you think. I certainly hope so.
I know it's hard to count your blessings but it's worth trying. You have many. I'm glad to know you, sick or not. You're still you, ya know?
You have this in common with the rest of humanity: you are your own harshest critic. Lighten up, my dear. You know this illness of yours goes in cycles. Better days are ahead.
Dara...LTD's father says he's never felt better. He starts chemo next week. Her mother is in a nursing home, learning to walk again. We're just breathing in and out. Thanks for asking.
we are bi-polar.fact. we are sick. fact. however, we are not dead. fact. Live goes on and we go on and tho you may not see the future at this time it doesnt mean you dont have one hun. Maybe you wont go back to work. Maybe you will. Maybe you will find new work. Maybe you will find something else that fulfills you and that you enjoy . You dont know what the future holds.
I like the sentence "The other day I was sitting on our swing out back just enjoying the trees and the birds." Go back to that. Can you sit outside and enjoy the birds in the hospital? Or for that matter, when you're manic out of your head? Any moment that you can sit outside and just enjoy your surroundings is a perfect moment. Steal them every chance you get.
I hope your illness releases it's grip on you soon.
I have been 'stable' for long enough now that I have started thinking about stopping my meds, that's how I know that sneaky beast is still with me, when I want to stop the meds is when I need them most. Best wishes.
i am so scared right now too. i have been diagnosed bipolar for 2 years now and this past year i have been living with my finace and another couple. although out lease doesnt end for another month, they have moved out, because we've had roommmate problems. however, yeterday the girl emailed me the most nastiest email claiming that they moved out becuase i am bipolar! here's an excerpt from that email: "Throughout the whole time we've lived there, you've burdened us with your psychological problems and your extreme mood swings. I'm letting you know this because I think it's only right that in the future, you should inform potential roommates about your mental disorder so that they can make the informed decision to live with you or not. I feel that most people would not willingly choose to be subjected to your behavior."
i could not believe the contents of this email!!!!
is there anyone who could help me fight this sort of rentl discrimination?? isn't there anyone who can help me???????
And btw... you do realize,don't you, that you have made it through the entire month of July without an admittance? I think that calls for some kind of celebration.
ok-I'm gonna drop dirt down in that hole, one shovel full at a time. You stamp each one down and step on it as they come. Eventually that hole will be filled in and you can climb back out
LTD and I were at dinner tonight with Tasha and her boyfriend laughing and talking about everything and nothing. The subject of our trip to Florida came up of an incident Tasha had with a jalapeno pepper. Apparently she had just popped one in her mouth at dinner one night, thinking nothing about it since she had tasted the flavor of this hot pepper before. What was comical was that the heat surprised her so much that she started cramming food into her mouth to quench the fire. The waitress took forever bringing her another drink, so she drank mine, she drank LTD's, all while shoving crackers and bread into her mouth. The other really comical thing about this is that I have no memory of it whatsoever. Nothing.
What is really pitiful is that I don't remember what I'm not remembering. I don't know how many blank stares LTD gets when mentioning something about this or that. "Oh you remember...it was when your mother was here last year." I have no memory of my mother being here last year. "You remember when we were stopped at that traffic light and that old guy limped by..." I have no memory of this. Significant or not, it slips through the crevices of my brain and becomes blank, black, devoid of shape and color and sound.
What has ECT done to my brain? What lasting effects do I suffer from receiving those zaps nearly a year ago, side effects which should have worn off by now? My memory has never been that great, but things are happening to me and around me which float away, things that should stay and become permanent, all flickering down to a dimness that I can barely see. And it is the loss that seems permanent, that has me wondering all the time, "Will this stay? Will I keep this memory?"
I seem to be perfecting the smiling-and-nod knee-jerk reaction that people with memory problems adapt. I add nothing to the topic, but I can appear to be remembering, a silent acquiessense that says more than words could. But behind the smiling is pure torture. Was I there? Did this happen when I was away from the table? Was I in another room? Do they only think I was there? Will it come back? Is it coming back now, slowly and in pieces, to reform itself before my vision? Or is it all lost forever only to worsen as time goes on?
I am lucky that I have an understanding partner who doesn't demand that I remember. She is supportive and patient. But I want to know. I want it all to flood my brain with the sights and sounds of the event. Will it ever come back? Will I eventually get used to it? The best I could hope for is that the tide will rush violently over this dry beach. The worst that can occur is that I will never get any of it back, that the holes in my brain will keep flushing away the train trip, the wedding, the funny thing that happened at dinner one night, the anniversary...
This blog is the only thing that documents it all. This blog is the proof that I was there. The only thing I can do is keep writing.
I've never had the shock. I have developed memory problems, due to many of the meds I've had to take over the years...you describe the feeling perfectly.
I've been told it's permanent.
So, I learn to deal. I relax and don't chase the memories. They're like kids who are playing hide-and-seek. They want to be found...so if you stop looking, eventually they show their faces and you casually reach around and snag 'em!
Memory loss has been one of the things that haunts me. I never had ECT, but have been on meds for years now. I never had a great memory (which I laughingly write off to years of substance abuse) but the truth is between that and the meds my memory is very poor. Memories that should be very distinct, things my girls did, I do the same "cover up" routine you talk about. Books I've read that should be memorable to me I can not even remember the plot line. Movies? Forget about that. I am roughly your age and it terrifies me to think of what is going to happen as I age.
So that is me at my worst. At my best, I enjoy the beautiful sunrise I just saw and treat these memories as banjk suggests--I just quit trying to grab them. See the movie again, reread the book, let my wife regale me with the stories of what our girls did and be glad I'm still here.
When I had ECT I lost about a year and half- two years worth of memory. I never got it back. I just hear stories of what happened before and after. I do have one or two little flashes , thats it. I can relate
Let's just say I have what I call "the Wellbutrin years". For three years or so I was on the various incarnations of Wellbutrin, which has had an effect on my memory similar to yours. There are whole chunks of time I have no recollection of. I'll tell my Husband "I really wanted to see that movie!" and he'll look at me and say "We did. In the theater with our friends." I'll stare at him, racking my brain for even a glimmer of recollection only to turn up empty handed.
"Sorry - I don't remember."
But he just smiles and holds my hand. "I figured - the Wellbutrin years. Want to see it again? You liked it the first time."
Apparently there's a lot of things I've enjoyed twice for the first time.
The writing helps because only I blog or write in my journal and there it is - my words, my story. I imagine this is how an Alzheimer's patient must feel. But at least I know it happened - hell, I documented it!
It never occured to me that my meds would be responsible for memory loss....I am prone to that blank stare occasionally when someone is recalling a story as well. Not nearly to the degree I am sure you are suffering from ECT.
I was just diagnosed with bipolar disorder yesterday...although I have long suspected it. Your blog has been an inspiration for me to get help.
Thank You!
My partner has bipolar disorder. About five years ago, she went through seven rounds of ECT in hopes of breaking through the depression. Unfortunately, there was no benefit as a result of the ECT, but she did experience a significant amount of memory loss. Not only were about several months on either side of the ECT lost, she lost events from years earlier. During the time of the ECT, she would ask the same question every two minutes, because she was unable to remember the answer.
Fast forward to five years later. . . the bipolar is in remission and has been for years. However, the memory issues have persisted. Over time, she's begun to regain memories of the ECT and the time surrounding her treatment, though she still has significant gaps. I believe it's unfortunate that she remembers any of the ECT. But, she continues to have memory problems about small things.
We have addressed it with her psychiatrist over the years. First, he did say that it was unusual for ECT to cause as many problems as she's had. These days, he says that it is probably her medications that are continuing the contribute to her poor memory. Personally, I put down the major memory loss five years ago to a combination of the ECT, meds, and her illness. I didn't have either the meds or the ECT and my memory has gaps during that time period. I view it as the self-protection mechanism.
Where I am going with this is the idea that the ECT is probably responsible for part of the loss, but it may also be a combination of factors. The good part is that it may not be permanent. Over time, your memories may return as my partner's did. But it did take years to reach that point.
Battling a beast usually conjures up in one's mind, in this case, a woman, decked out in armor, shielded against the beast's fire and holding a sword or some other metal device in which to slay the onslaught. Sometimes it feels that way, but usually it is something as small as dodging an ever persistant house fly that happened its way in when you let the dog out. When your defenses are low, things get in very easily. Things like the boom-boom-boom of your neighbor's stereo while he's outside looking at his car's engine. Things like raging war on the house thermostat because it is never consistently cool inside. Things like your dog following you from room to room, no matter from the kitchen or into the bathroom, just to follow you and be near you. I've said it before. I'll say it now. It is the absolute minutia.
I felt it sitting on me all day yesterday, pushing me down, weighing heavily on the X that marked the top of my head. I moved around. I did some housework. I stayed busy with a list T made for me before she went to work. Accomplishing all the tasks did nothing to lift the weight and so I tried a little experiment. I sat down on the couch, relaxed my muscles, cleared my mind, took some deep breaths and let it have me.
The whispers in my head began immediately: You are nothing. You have nothing. You will never be anything. You suck. You should kill yourself. You belong nowhere. nothing is going to save you. Go ahead and cry. No one will hear you. No one will care. You were never meant to live this long. You've done nothing with your life. You have no friends. you belong to no one. Tasha would be better without you. T doesn't need you. She'll get over you. Disappear.
Crying my ass off was the only thing that washed the crevices clear. It left me absolutely numb. Crying last night helped fight off more of the same. Today, we are here again, battling, not letting go, not sitting still, not letting it in, not letting it destroy me, not being able to sit on the fucking couch and just relaxing.
T refuted all those bullshit statements last night in bed. She told me that I belonged to her, to Tasha, that Matt was depending on me, so he was yet another person who needed me. I cried so hard. And I am now constantly on the verge of tears, of breaking down, of being blown away.
What evil descends when I am left alone in this house with nothing to do. What absolute horror plays out in my brain when I'm trapped inside these walls with nothing but myself to talk to. I remain, as ever, my own hostage.
I TOTALLY relate. Ever since me and marc broke up I have nothing, noone. I haveno idea what to do with my time. This is when the bipolar kicks in and i cant sit still, i start to crawlin my skin, the whole 9.
At my worst times I have felt and said the same things to myself. I think the only thing that gets me through it is knowing that this mood shall change.
Speaking of Marc. Remember i told you I went off my meds and started acting pretty bad to him because I was going thru withdrawel? he is suing me for harrassment and getting a restraining order. I go to court tomorrow.
Hang in there Tracy. And don't let the demons get to you. When they show up, throw a chain around them and make them do the house work. Power of positive imagination.
I've been up and down over the past few days, going up towards mania and then crashing down into depression. The meds are holding, as I don't lose control completely...just enough to know things are a little off balance. Believe it or not, it's helped me to know that LTD needs me. It grounds me. (By the way, I'm going to tell you LTD's real name, even though we'll still call her LTD, for obvious reasons, as you will see. Her name is *drumroll*....Tracy.)
I'm still waiting to hear the determination regarding disability. I only have until September before everything runs out. My insurance is about to be cancelled. Things could literally be gearing up to blow up in my face, again. I'm lucky I have T running interference, though she does make me do my share of the work...making phone calls, mailing off forms. She won't let me fall. Each time I start to slip just a little, there is a firm hand holding me over the alligator pit. I know she won't let me fall. If I do go down, it'll be because I let go. And I'm holding on.
T's mom is doing a little better. Her eyes are open but she's not really seeing anything. She sort of looks right through you. The doctors say this is the process of coming out of all that sedation. It has broken my heart to see T going through this and there is still a long way to go. We take it day by day, never knowing what to expect. Some people say to "hope for the best, expect the worst." It's hard to do. She's fighting. She's a tough old broad. She's fighting her ass off. And all LTD can do right now is stand by her bed, hold her hand and encourage her as much as possible to keep fighting. It is heart-wrenching to watch.
This is why I can't get sick. T is depending on me. Matt is depending on me. Tasha is depending on me. There is so much to stay well for. There is so much to hold on for. This year I'm not going to say "I'm not going to get sick." This year I'm going to say "I'm going to stay well." And I'm going to let these people need me. And I'm not going to let them down.
And all the while I have T's firm grip holding me safely over the alligator pit. I won't let go.
I am so glad to hear that LTDs mom appears to be coming out of it and getting better. That is great news. And you are right, there is so much to stay well for. Don't look ahead and worry about September. Do what you need to do now, fill out the forms, go through all the crap that is necessary. But stay in today. September will come and be what it is. Deal with that then. Things will work out and if they don't you will figure something else out. You will be OK. Let people need you. Be thankful for LTDs love.
you're an amazing person, tracy. that's why i've read your blog for so many years. as someone else with bipolar, i can relate to what you say and i find inspiration in your daily triumphs. thank you for including us in your life.
I'm so glad that you have a strong hand to hold. As someone with bipolar I understand the importance of having someone to hold on to. My husband has been holding on to me over the pit through a great many things, including my own trip in the hospital. It's been hard for him sometimes but he still keeps his grip of steal on me, and for that I am so greatful.
I love your blog. I am actually crying while I read it, because I haven't taken my meds. I been diagnosed as BIPOLAR a year ago and been on 5 medications ever since. I lost my job and then found a new one WITHOUT insurance. They wanted 940 bucks for all 5 meds.I have been off my medication for 2 months now and I am a basket case. I lost my boyfriend, because, he really couldn't deal with me being unmedicated, and I can't deal with it either. It's so hard to find help for bipolar, atleast in philly, maybe I havent been looking hard enough. oh well. sorry for rambling. I liked how you said tracy would never let you fall. I wish my ex boyfriend felt that way. instead, me, the mentally ill one is holding on for dear life with noone spotting me.
Danielle...you have to be the one holding yourself over the pit. This is possible for a short time, but you will either drop in or you will get better. Bipolar disorder is cyclical and certainly when you're feeling high as a kite with the ability to fly, you will drop down into the pits of despair. Luckily, the same is true conversely. But get your meds. Go online to the websites and get coupons or free vouchers. Ask the mental health facility near you how you can get treatment. Perhaps those two things will help you as you swing over the pit. Trust me, the beast awaits. Do whatever you can to fight.
Danielle, PLEASE get help for yourself... here's what to do in Philly....
If you are an adult who is having a Mental Health or Substance Abuse emergency, you may go to any of Philadelphia's five Crisis Response Centers, 24 hours a day, 7 days a week.
These five CRCs are located in different parts of the city, so there is one fairly close to where you are in Philadelphia.
Pennsylvania Hospital
(Hall Mercer)
Eighth and Locust St.
(215) 829-5249 Center City
South Philadelphia
Mercy Hospital
501 S. 54th Street
(54th & Cedar Ave.)
(215) 748-9525 Southwest Philadelphia
West Philadelphia
Einstein at Germantown Community Center
1 Penn Blvd.
(215) 951-8300 Northwest Philadelphia
Germantown
Roxborough
Assesses Children Citywide
Temple/Episcopal Hospital
100 E. Lehigh Ave.
(215) 707-2577 North Philadelphia
Larkspur
(Friends Hospital)
4641 Roosevelt Blvd.
(215) 831-4616 Northeast Philadelphia
Call THE SUICIDE AND CRISIS INTERVENTION LINE AT 215-686-4420 any time of the day or night, if you have been suffering from any of the following difficulties: depression, feelings of wanting to hurt yourself or others, feelings of hopelessness, worthlessness or that no one cares about you, being under considerable stress, feeling very angry or suffering from some other emotional, mental or substance abuse crisis. A professional person is available 24 hours a day, 7 days a week to talk with you and to help you with your problems including obtaining necessary services promptly.
If you are not sure where to go, call THE OFFICE OF BEHAVIORAL HEALTH EMERGENCY/INFORMATION LINE AT 215-685-6440 any time of the day or night, if you are seeking help for a family member, a relative, or a friend who has a mental/emotional or substance abuse problem, to discuss the matter with a trained professional. Staff can help to assess the problem and to provide helpful information and direct interventions 24 hours a day, 7 days a week. The staff that work on this line have direct assess to 24 hour crisis response centers, home visiting assessment teams, crisis specialists, and critical information regarding how to utilize the services of the behavioral health system including help in getting treatment for unwilling persons who are dangerous to themselves or others.
If necessary, the Emergency Line will send the Mobile Emergency Team (MET) to your location.
You can also call 888-545-2600, and Community Behavioral Health (CBH) Member Services will connect you to the emergency hotline.
Color is everywhere. The trees all look so beautiful. The weather is warm. LTD and I are planning a vacation to Florida in June. I'm still not going out of the house and my symptoms are sprouting up here and there like mad, but life continues to go on. Yesterday my doctor put me on yet another new medication. When I ask him to discontinue some, he adds more. Maybe I should tell him I need more medication and get the results I need. Everything is reverse psychology with them.
My food is poisoned. No matter what I eat, it makes me sick. The medication is toxic, I'm convinced. I wish I had the time and money to go to one of those spa get-aways where they totally cleanse your system of everything. I don't think I'm going to feel good until I'm clean. And putting these chemicals into my body every day and night is not helping. I can avoid food...I do it easily by just eating when LTD is around. I'm not purging, though I've thought of it. I'm losing weight.
And every once is a while, I feel myself being taken over. LTD has been a life-sustaining force. She keeps me grounded. She keeps me safe. I wish I could let her totally inside my brain--she would so slay this beast. It doesn't seem like I can do it from the outside, but I have my own ammunition. I'm looking forward to going to Florida, so I can't be sick. I can't go into the hospital. My family is depending on me to stick this through. And I will, as long as the toxins don't overwhelm the system. Poison. How insidious it is!
Keep fighting! The meds suck, but consider the alternative. My mom used to tell me to make a pro/con list for just about everything. I've done it a few times on whether or not to take my medications or drop them to "detox" my body. It usually turned out that my pro list to get off meds (i.e. side effects, dulling, time, money, etc) was much longer, but the cons to going off the meds held much more weight (i.e. lose job, lose life, lose friends, lose mind, etc). Slay the beast!
I agree with sophger. I found that over time the effects of the medication subsided, I no longer felt dull, slow, in a cloud. I did find that quitting drinking and smoking were a major cleanser for me both physically and mentally. And while I hardly eat what could be considered an organic balanced diet, I do try to not sit down and eat a package of Oreos like I used to.
Absolutely, Scott. Exercise has also been an amazing cleanser for me - sweating the nastiness out. And the "side effects" of adrenaline and increased ability to sleep are nice side effects :)
My medicine is making me sick. I think I may be toxic and I don't want to take it anymore. I'm sure the food I ate yesterday was poisonous and now I'm afraid to eat. I think this way of looking at these things is totally...I can't think of the word...logical? It seems paranoid, I know. But if someone's paranoid about being followed and they really are being followed, does that make them so? I know a build-up of chemicals in the body can cause toxicity and that's what is happening to me. Every night LTD brings me my medicine, I want to smash something. I'm going to be very careful about what I eat. And I'm asking my doctor tomorrow about taking me off all my medicine before my kidneys and liver shuts down. These things can happen over a period of time and I've been taking these toxic medicines for a very long time. Something is changing in my body chemistry and the only way to stop it is to change the thing that's causing it. I can't sit around and wait for my liver to shut down. I want to try a holistic method of control. Vitamins, supplements. Healthy alternatives. I don't think this is so far-fetched.
The thing is this....symptoms are appearing magically because I'm looking so closely for symptoms. What is not there appears out of nowhere because I'm looking through a microscope at the possibilities. I am swirling through tunnels of symptoms and collecting these abberations because my keen watch has alerted me to the possibility of those symptoms being present, even when they're not. It is a microscopic phenomenom. One little half sign becomes a full fledged symptom, because I'm looking so closely. I'm not sick. I'm not going to be sick. I'm on full alert for the beast to come knocking on the door so every little sound outside is that beast, even though it could be nothing more than rustling of leaves, the wind blowing against the window. I'm afriad to open the door.
If you don't see an entry for a while after this, you'll know the beast got in. I'm not going in this time. I'm going to run like hell.
Tracy and LTD, I understand how your body can feel toxic and the wrong meds can make you feel toxic. That is real. Maybe some people can take alternative meds but it sounds to me like you need the right meds. My partner worked with holistic supplements and she said they are not the best for folks with definite symptoms such as with bipolar. Tracy it sounds like your system is sensitive and that may make it hard to find the right meds. I encourage you to keep trying to find the right meds from pdoc. Your fear of being hospitalized is probably making you extra suspicious, you don't sound paranoid to me. I may have said more than you both wanted but I was a therapist for many years and had bipolar many more years. LTD I hope you trust your gut and know I support both of you. Feel free to contact me for support. Annie
You can do these things because you know they will help.
You can stay on your medications. Especially now.
If you want to add some supplements, fine. Given your general health, a multivitamin with iron would be a good thing, as well as a fish oil supplement (Spectrum makes one that is free of heavy metals and mercury contamination), since Omega-3s have been implicated in mood stabilization. American Ginsing is another good addition: it helps with physical stamina and resistance to infection.
Tracy - you better stay on your meds unless that pdoc tells you otherwise. This itchy, uncomfortable panic is part of the disease fighting from being controlled. I know it's hard - GOD, I know it's hard! - but try and slow your thoughts down. Breathe deeply. Dara is totally right - get some sun during a nice long walk, take some supplements, drink plenty of water and good fruits/veggies. You can do this - think of your kid, of LTD.
LTD - hang in there with our girl. You're good people to support her like this. Please know people like Tracy and I are so grateful that loving, determined and supportive partners are there to help carry us through.
Holistic meds are for people who arent really sick. Thats what I think. They work great for someone who has the "I dont feel like to going to work on Monday blues" They are useless for bi-polar depression. Its like throwing an acorn at a polar bear. Every once In a while I get the idea that I cant afford the topamax and the seroquel is making me fat and I would be better off not taking them and I start tapering myself off. Within a few days I am prostate with depression. While those meds are not putting back to work they are helping somewhat and somewhat is better than nothing.
Trace... Hang in there. With every breath you take. By your fingertips if you must. Yes, every thing I've said it's pretty much a cliche, but it's what you must do. Agree with Dara's suggestions. One moment at a time.
LTD, adding to what Mercurial Scribe said... don't give up, don't let up. And if either of you need anything... I'm just an email away.
Last night was a bad night. My medicine made me high as hell and when I went to bed, the bed started spinning and my lips were vibrating. I had to get up and do the dishes, clean the kitchen and do a load of laundry. My thoughts were racing and I had an internal sense of total restlessness. I couldn't vacuum because it was 1:00 in the morning so I just laid down on the couch with my eyes open and stared at a picture on the wall.
Some might think that this was an episode of hypo-mania but wouldn't any normal person do those things if she couldn't sleep? Don't people sometimes get up and clean the house when they're wide awake during the wee hours of the morning?
We are in a precarious situation here. I know every year I say I'm not going back into the hospital but this time I mean it so much, they'll have to get a court-order to get me into the place. I'm just so against going back in. The thing is this: I was so depressed that anything seems like hypomania now. Having energy and getting things done around the house looks manic compared to my sleeping 18 hours a day. We have to look at symptoms closely and there's such a fucking fine line there. I'm waking up now at 9:00 a.m. on my own and staying busy all day. I'm still sleeping about 8 hours a night, my speech isn't pressured and I'm able to finish projects...so things are okay.
This new medication is one I took last year and it made me manic as hell. We started on the lowest dose possible and it seems to be working. We just have to be verrrrry careful.
Tracy, It is understandable you are afraid. Is the fear of the of the hospital or other stuff? it sounds like you are doing ok with 8hrs sleep and being productive during the day. I am always mistrustful of the manic because it so sneaky! I sounds like you can see it coming, maybe you need to trust yourself more? Then the rest of of the fear is anxiety that goes with the manic. At least I have plain anxiety with my manic. Take care
Annie
Just wanted to say 'Hi Tracy'. I found your blog from a link titled Best Ten Bipolar Blogs (wow, does that create it's own funny pressure?).
I agree with you - there is such a fine line between what others might do, and what is a symptom. I guess it's a case of context and degree (I'm a ex psych nurse so it's great to meet another person who has lived both sides so to speak).
I've been having the problem lately where either I sleep 12 hours a day or I barely can sleep at all. My husband thinks I'm just being lazy, but I swear it's side effects of the medicine.
Anyways you didn't do anything I wouldn't do if I couldn't sleep. It truly is a fine line. It's hard to tell if it's an "episode" or just something normal related to the medicine.
Hang in there. Things have a way of working themselves out.
Ok I know this is going to sound stupid but I can't help myself: if you are having a episode of mania could you please just take it out of yourself and send it to me? I am coming off of Chant1x which seems to have made the lamictal totally useless...I am so aggravated/angery or down right depressed most of the time I am sick of me and going off the Chant1x a week early. (Btw it did work, I quit smoking for the first time in 19 years *minus the nausea parts of pregnancy when I stopped smoking*) The only thing that has made me remotely human the past 8 weeks is liberal dosing of Ativan when I feel like I am going to kill someone or beat the shit out of the walls (not that I didn't lose some minor hardly used cooking dishes...I HAD to break something!!!)
So I am not making fun or anything, nor am I really wishing Mania on you, I am just wishing I could feel something new, and at this point Mania looks good.
Sounds hopeful to me. Yes, I do think you handled the side effect (yes, I think it was) like a "normal" person would have handled it. You didn't waste time lying in bed worrying about sleeping/not sleeping; instead, you got up and did what you could to calm yourself. I hate side effects...especially the ones one gets from starting/ramping up or tapering off a medication. I don't think being scared is odd at all. Be brave and see what happens, though. You know our body chemistry changes constantly: what made you manic as hell last year might just work better this time with careful management.
"Don't people sometimes get up and clean the house when they're wide awake during the wee hours of the morning?"
I do. All the time. Especially when I'm upset or aggitated beyond belief (as in, whenever I have any contact of any kind with my family). I always thought it was normal. And then there are time times where I've got shit on my shoulders and I can't sleep at all. That's when I reorganise the apartment.
Lately I do a bit of a baking a few nights a week and that seems to keep me settled down and ready for sleep throughout the week.
why are you afraid? you said it yourself- this same med sent you manic last year. That seems like a pretty rational reason to be scared to me. ((((((Tracy))))) Im guessing antidepressants and I have quit taking those myself as they pretty much always send me into "ugly mania" or nearly kill me with side effects. I hope this works for you this time and that your fears turn out to be for nothing.
No, I don't get up and clean the house during the wee hours of the morning when I can't sleep. But then, I don't do it in the middle of the day either! And I'm not normal either. :P Before anyone worries that my house is nasty I will mention that my partner is an excellent house-keeper!
I've been so depressed lately that it's hard to write about. My birthday was wonderful and temporarily lifted me out of the doldrums, but the muck is so thick, I have to paddle hard and fast against the tide just to keep my nose above water. I've had no energy, no motivation to do anything and have been isolating myself in the house to the exclusion of everything in the world. Nothing gets me out of the house. Nothing keeps me awake. I've been sleeping my whole fucking life away. I can't describe what pain it is to sit on the couch and do nothing but stare at the wall. I get up and pace from room to room, stopping here and there to touch something, pick up a book, straighten a cushion. Mostly I've slept...18 hours a day, waiting for Spencer to get home, waiting for LTD to come home from work...waiting for something to happen. Still, when the phone rings, I don't answer it. If someone comes to the door, I don't answer it. It's all I can do to let the dog and cat in and out. They are my main companions every day and they tire me so easily. I've just squandered away all the hours in all the days and have been hanging by a thread, waiting--hoping--it would snap, if only to get my attention and make me look at this monster of sadness. It has been like a wall of pain that I can't climb over. I've become so exhausted throwing myself at it that I don't even try anymore. Each day I wake up, I look at those long and looming hours like enemies, like torture from which I can't escape, and not even tears move me into a forward motion. I've been statued and stagnant, unable to even lift my arms to fight, not even caring whether this thing kills me or not, and realizing that I'm alive only because I have no choice, that I have to live for Spencer and LTD, that there are no other options. I've been half crazed and dazed inside the minutes that seem to strangle me with their absolute tenacity.
Today Dr. K put me back on an antidepressant. It's been over a year since I've taken one because they seem to induce mania in me. We'll just be watching closely. There was just no choice but to do it. Something has to give. I can't go on like this anymore. The rope swings overhead so closely that I can hear the threads cutting through the air. What makes people reach out for it? What makes someone make that final decision to put the noose around their neck? I don't feel the choice is mine. I couldn't do it to Spencer. I couldn't do it to LTD. I couldn't do it to my mother or to Susie or to Daniel. What a totally selfish act suicide must be. But what pain there must be in that, to do it inspite of everything, inspite of everyone. I've made the conscious choice not to kill myself, inspite of myself. I have to get busy living, or die trying.
Tonight LTD and I are going to make a daily chart of activities that I can follow to keep me directed. If you have any suggestions I'd love to hear them. We need all the help we can get at this point.
During the times when I have been as depressed as what you just described, a whole day of activities was just to much to even contemplate much less attempt to accomplish. What I did was force myself to at least do one thing a day. Somedays that thing might be take a shower. Other days something bigger like doing the laundry. But no matter what since I have had ECT , every day I have to accomplish at least one thing. Better days of course I accomplish more.
Tracy, I was blessed to find your blog a few weeks ago when I was in the midst of something similar to what you are experiencing now. It was if you were writing what I was thinking except elucidated much more clearly. Today's posting solidifed that - as much as it may be difficult to write about, you write very succinctly, honestly, poignantly, and frankly. When I get that low I can barely move or talk - I am amazed at your strength. I've read it at about four different points this morning and each time wanted to comment, but didn't feel that my words could match what I really want to say to you in my heart. I'm still not totally sure and this totally doesn't do it justice. I am really glad that you have such strong support and reasons to live.
I have found that when I'm feeling that way, I often throw myself deeper down the never-ending pit by berating myself that I'm not able to do more. To that end, I would recommend taking it easy on yourself. You work hard and I'm sure you deserve a break. Also making small goals, like taking a shower and then when you've accomplished it, give yourself a pat on the back and make the next goal. This may sound silly, but recently I have found puzzles like easy crossward puzzles or word finds to be an excellent distraction for those really long hours. I have insomnia and they also help me to fall asleep. They are distracting, but easy enough that they don't take too much brain power which is understandable short when you're feeling the way you are now.
I also just want to say that you are an inspiration. I, for one, really appreciate and look forward to this blog. I've been struggling with bipolar for 10 years, attempted suicide a few times, been hospitalized numerous times, had ECT, and been on every medication in the book. I've also read just about everything I can get my hands on relating to bipolar disorder. Your blog and the way that you write is the first time I have really found someone that writes the way I feel (but don't write probably due to lack of courage and talent). I am tempted to recommend your blog to nonbipolar friends of mine as an example of the way it REALLY is. (I haven't because I'm not out yet and I don't want anybody to figure it out). You are an inspiration and greatly appreciated.
So, thank you. I'd say, "hang in there", but I really hate when people say that to me because I can't help but think of a noose. I'd say, "good luck", but I don't think you need luck. What I am going to say is, "you are loved", it is hard to see when you are stuck in the scary, scary cave, but I know that you are.
Tracy, It is hard to read about your pain but it is a statement of how much you are facing up to the depression. It seems this is like a lifeline for you and I encourage you to keep going. What I also find helpful is to get some clay and work with it, shape a peice on what the depression is about. My last serious depression I made me melting into a recliner. About the issue with taking your life. It is a double edged sword when your choice is taken away it leaves you even more vulnerable to the depression but then you do stay alive. I am glad your are staying alive but understand the pain of living. I agree that it might help to ease up on yourself during the day. It sounds like you are doing a lot to just get up and around. I guess it might be helpful to do things to nurture yourself, what ever those things are for you.
I hope things get better! Annie
I too will refrain from advisisng you to "hang in there", Tracy. My depression led me to alcohol (surprise, surprise) and a suicide attempt last November. Detox, rehab, and ongoing psych care (including antidepressants) have been helpful. Stick with it. John
The most succinct comment I have is: ditto. To practically everything you wrote. It feels never-ending. In a recent Dilbert comic strip, one of his responses to his mother's question of 'how are you' was "I look forward to the comfort of the grave." I'm not suicidal (like you, I feel responsible to people and my animals). It means exactly what it said. I look forward to the comfort of the grave, and honestly wish that once we die, it's all over. I'm just so tired from this life and the thought of going through more after this is overwhelming. Unfortunately, I don't think it ends when we die. Big sigh.
I hope you feel better, even just a little bit, very soon. Take care-
Mary
I agree with Raine. A whole day of stuff is too much and would scare me into doing nothing. Pick one thing--one thing, and do that. And the next day, pick one thing--another thing, different from the day before, keep variety in it. You will feel better.
During some of my worst periods of my illness, I bought seeds and planted them in little pots on my window sill in my kitchen. I found that I looked forward to seeing them poke out of the soil and grow a bit each day, and having them in the kitchen rather than the bedroom forced me to get out of bed to go look.
I hope you get relief soon.
((((Tracy))))) You are still fighting the good fight. On your list of things needs to be something physical--even if it's just touching your toes and doing some simple stretches (I know you went to yoga for a while once). Another thing on the list: sit in the sun for 20 minutes.
Do you have a timer? One problem I had when I was extremely depressed was estimating/comprehending the passage of time. A timer, set to an interval, helps with completing a goal. You can do anything for 5 minutes (or 10 or, when you're feeling a bit better, 15). In the beginning, even just working 5 minutes towards a goal (and then setting the timer for a rest period) is an accomplishment.
What is it, do you suppose, about planting seeds and sunshine that makes a depression lift a tiny fraction, even for a few hours? Perhaps planting seeds is like planting some hope...?
I have no answers for you. Wish I did. Chin up, kid. You can do this. You're stronger than the depression. You know it, and so do your readers.
There seems to be no explanation or rule as to how I spend my days now, no hard and fast system that gets me easily through the hours. At times I am so frozen by inertia that I am choked, grabbing at my throat and sucking in nothing to feed my lungs. Other times I am busy with the industry of simple housekeeping, but I am always aware that my life, by no ordinary measure, ticks away with the second hand to an unsatisfactory demise. What will become of me? Will I always spend these days with time so unforgivingly stretched out before me? Will there always be such tortuous indecision crowding the hours that I spend those sweet minutes just walking from room to room?
There is no routine to my life. Sometimes I sleep, other times I don't. Sometimes I'm tired and want to do nothing. Other times I am filled with an energy that will not abate no matter how much I do, or undo. Bridging these two extremes is that nagging awareness that the tick, tick, tick goes on without regard for my suffering.
And I do suffer. Sometimes I think I always will, that I'm cut out that way, and that nothing will ever happen to me to ease off the intensity of that pain. I foresee it only worsening, deepening, purpled like a bruise against a white nothingness bereft of words, challenged by the ordinary, but too scared and unsure to strike out forward to conquer it. I can never consume it...I can only fight long and hard enough to stop it from consuming me.
But you see, there is that fight. There has always been that fight. I've been up against the ropes for so long that I fear if I ever dropped my arms, I would just fall down and die.
I've been waiting to hear how the neuropsyche test went. Did you find out?
I find the long inactive days boring as hell too. With an active mind, it makes my days just loooong. My therapist told me to find things that I am interested in and pursue them. Can you visit the library? Or research things on the internet? Don't allow yourself to be bored. Demand more of yourself.
HUGS
Tracy
I am a long time reader... and have never left a comment... but this article left me so upset, and I thought of you and Spencer. Hate crimes are so awful,it hurts my heart . You don't know me , but I do pray for you and your son.This was not sent to upset you, but only to remind you both to be careful of the evil that is out there.
God bless you both.
Marcy
Tracy,
You have always been plagued by this demon of your life ticking away and you having nothing to show for it (in your mind). I remember so clearly that you always looked forward to your days off, but then, except on rare occasions, you piddled your days away despite your best intentions. My best advice to you is to try to make a list everyday and stick to it. I've been reading at night for 2 hours at least sometimes never turning on the television. What works for me will not work for you necessarily, but I do know you so well and you do so much better if you can get into a routine and stick to it. Try not to give up too easily. Easier said than done to find an interest and stick to it. However, you always seemed the happiest (in my eyes) when you were scrap-booking. If I can help, you know where to find me.
I went in for neuropsych testing yesterday. They don't seem to know what to do with me. Is the problem medical? Is it mental? Who can tell? They did the testing anyway and I'll have to go back in a few weeks to get "feedback," which is just the name for the interview that tells you how badly you're fucked up...or not. It could all be in my head. I believe with everything that's holy that my brain has been damaged. Even though they say ECT doesn't cause it, I think it did. I think I have brain damage. The neuropsych testing could prove or disprove that, in either case, I will still believe that something is very wrong with my brain.
We were going along swimmingly, after taking the MMPI (567 questions) and doing some design copying with red and white blocks, we got to this portion of the testing where I had to tell the examiner how two seemingly different things were alike. It went like this:
E: Cat and dog.
T: They're both animals.
E: Good. Pen and pencil.
T: They're both writing instruments.
E: Yes. Love and hate.
T: They're both emotions.
E: Yes. War and peace.
T:
E: War and peace.
I totally blanked out. I never got the answer from the examiner and I still cannot figure out how they're alike. The biggest problem, however, throughout the entire testing (which lasted about four hours) was memory and recall. I couldn't remember items from a list she had named just seconds before. I couldn't repeat two stories she read to any degree of detail. I couldn't remember how to draw a picture that I had just copied minutes earlier. I did well on the computer portion when doing something was the task at hand (finding the H in a jumble of letters, counting how many times a little light blinked). There was another test on the computer that I can't remember at all. Based on all of this, I can't discern how the testing went at all except to say it was hard and tedious...not at all the fun I thought it was going to be.
I'll post the results once I get them. It should be interesting either way to see if the damage is real...or if it's all a part of my hypochondrism (I just made up that word). Stay tuned.
I didnt know the answer for war and peace either. Also since I had ECT my memory is for shit. First I lost about 18 months worth of memory around the time of ECT and I did NOT get it back and that was like 6 years ago, maybe seven, cant remember. Whenever 9-11 was. I got a veiw extremely tiny bits of memory but thats it. I forgot people I had known, including a man I dated and I never ever remembered them. I still have memory issues today. I can remeber things really well that happened before ECT but not during and afterwards I cant put things into time frames and there are just a whole lot of memory problems. I had 9 rounds of bilateral ECT.
Had an appointment with Dr. K today that was so boring, I almost felt like lying to spice things up. I must be the dullest patient he has. "How are you sleeping?" My sleep is off. Sometimes too much, sometimes not enough. "How are you eating?" I've lost ten pounds in two weeks from drinking water. "How is your mood?" Blah. It's just blah. That was basically the entire session. Next time I go in I'm going to tell him I'm having an affair with a priest (again). I'm going to say it's not affecting LTD at all since she's so worried about my stealing and drinking. I may even tell him I've taken up smoking crack to help boost my moods a bit.
LTD's goal this weekend is to get me out of the house. HA! We'll see. She may need machinery to do it. I don't want to go anywhere. I don't want to do anything. Kelly told me the weather is getting to everyone. She said she heard on the news that Tuesday was the highest suicide rate in this country in years. While I'm not thinking about offing myself just yet, I can certainly understand those poor bastards wanting to put an end to it all. Give me mania any day, folks.
Coffee with Daniel on Saturday, I think. That should do it. And LTD is the sweetest, most amazing person I've known in my life (second only to Spen...uh, Tasha). I just need to get my ass in gear. I'm writing about my bipolar disorder, formulating all these experiences into a book. Dara helped me write the query letter for it and though I've gotten back about eight rejections, they've been good rejections. You'd have to be a writer to understand that, I guess. If someone actually asks for the material I won't have anything to give, aside from what I've written on this blog. I still can't write. I still can't process what I'm thinking into words...at least words that will entice an editor to want to see more.
I cleaned the kitchen floor today. I can say that much.
My medicine sometimes makes me high as a kite. I don't know why or what medication is the actual culprit, but after taking morning meds, I occasionally blast off through the roof. Like today. It begins with a buzzing in the lips, accompanied by dizziness, rapid thoughts and speech, and an incredible feeling of spinning. It's probably why I don't mind taking morning meds, but unfortunately, it doesn't happen that often.
I watch for symptoms of mania so closely that depression sneaks up on me when I least expect it. The other day I sat on the couch for so long, I couldn't walk when I finally decided to get up. I was sitting with one leg tucked under me and ignored the prickly feeling you get when an extremity is falling asleep. For five hours it felt like a charley horse in my calf. Of course, I immediately suspected a blood clot. I did a Google search for DVT (deep vein thrombosis) and was relieved to find that I didn't have any of the symptoms (except pain). Much like the brain tumor I didn't have and the pulmonary embolism that didn't exist, it was simply a pain in my body that went away completely the very next day. (My God, you should've seen me when I was pregnant--I had every ailment my Maternity textbook listed.)
Right now, I'm just spinning. And enjoying it. Too bad I'm not getting an overflow of creative energy. This is all you're gonna get.
Whenever they talk about Britney Spears being bi-polar I always think about you and wonder what your opinion is. Based on your experience, do you think she is bi-polar? Just curious.
When I sit with my legs tucked under my ass like that, I jam up my SI joint and then I really feel pain! Pain that is blinding, even. It's the most surreal pain ever. I was trying to work this pain out in pilates, and guess what? It made it WORSE. That's how retarded I am! *LOL* As a consequence, I now hate everything pilates related.
I'd take Britney more for a Borderline because of the attention she seems to thrive on....even negative attention and press, she eats up! That's more borderline than bipolar.
It gets to be a major outing just to go to the store for milk. It is something to do, something that needs to be accomplished. Being out of work does that to you. While my doctor continues to maintain that I'm not ready to go back, every day I think about getting a job. Would I be able to pull it off? Would they notice the hesitation in my voice? Would they feel the fear? Would I be able to walk in there with all my wits about me and fake readiness?
The meds are keeping my mood stable. I can feel this palpably. It feels somewhat like a big hand holding my head down. Aside from a few episodes of short-lasting mania, I've been okay. I've been okay except that I have all this time on my hands with nothing to fill the hours. Writing only takes me so far before I believe that what I'm doing is total bullshit.
I've been sick for seven months. I've been sick since June. And though I've had periods of total recall, absolute wellness, what follows quickly on the heels of that is hiding in the house, not answering the phone, standing next to the machine and listening to my friends begging me to pick up the phone and talk, pacing from room to room with no motivation to do laundry or make the bed or cook dinner.
I've been sick for seven months. I think I will be sick for the rest of my life.
Of course you will. But, then again, you've been sick all your life up until now, right? And, truth be told, we're all sick, aren't we? I mean, with something. You just manage. And it sounds like sometimes you manage well and sometimes you don't.
And let's face it: the healthiest people are the ones who know they're sick. You've seen that in every psych ward you've ever been in. It's the folks who know they're bipolar or depressed or addicted who do better than the frequent fliers who insist they shouldn't be there. Anytime I hear someone tell me, "I don't need to be here," I mentally note that I will be seeing them again within six weeks.
Boy do I know those feelings. My illness is neurological, but it's compromised my mental health in a big way too. The meds made it worse, my mental health that is, for a long while. I do the shut-down, no phones, no leaving the house thing when I get depressed or negative; I can totally relate. I'm still fighting for disability payments from a system I paid into for twelve years. The chronicles of your struggles to cover bills and deal with your own issues while addressing the doctors, family, the systems that be have really helped me to move forward with my own struggles. We both have it good and bad all at once. Now, two years after diagnosis, I'm finally beginning to trust that I can interact with people again, that my outward aspect isn't as compromised as my inner one is.
Tracy, I've been reading your blog for a long time. I worry about you, I cheer for LTD, I admire Spencer's grit and spirit. If you don't show up for a while, I worry and wonder. I know you've been concerned about your writing skill decaying, but I'm not seeing evidence of that. Lots of us out here need to hear from you... not that you're well! sparkley! perfected! but that you're sticking it out. Thank you, so much, for sharing with us.
And hang in there.
Yep me too. I'm sick and I'm always gonna be sick. So what? I put alot of my identity into my career and it took some time to realize I had an identity outisde of that career but you know what? I do. I have value even if I dont bring in a paycheck. I have value even if I do spend days with a long face and cant bounce and be "perky" and other days I cant shut up or go to sleep. I still have value. My children of course still value me and I have learned much in life that I can share with them. My grandchildren adore me and I am my grandsons favorite person. He doesnt care if I am different. By the way animals dont either. Small children and animals dont judge, they accept love and affection for exactly what it is. If your eyes are bugging out of your head they just find it funny. Sooooooo I spend alot of time on the small children and animals. I have also spent alot of time with other mentally ill people providing an ear when they needed it and been useful that way. My therapist actually wants me to volunteer at this place to lead discussion groups in the future after I have recovered abit from this latest crisis. He feels I have found ways to cope very successfully with a horrid illness and might be able to help others. Basically what I am saying is, ok, you are sick. Life is not over and you do still have value. You still have abilities and skills and much to offer. You will find ways to share that. Sometimes little things mean alot.
I'm psychiatric social worker and have bipolar, I was severely ill for most of graduate school. I fought so hard to get through it and at many points it seemed pointless because I thought I was going to be sick forever. I was sick for a year actually. I collected more bottles of meds in that year than I ever had in my life. I had reached that point where my doctors reached for the Haldol.
Eventually I got better, the days went by more smoothly. My mind got less foggy. Things returned to normal and stayed that way. It's been a few years and I am thankful everyday that I am not that ill anymore. Sure I've had a few scares and minor relapses, but overall I'm ok.
I'm working, and got my current job after 4 months of unemployment. I was worried I wasn't going to be able to do it, that I would relapse. I came to the realization that at some point it's going to happen. The best thing I can do is use everyday where it hasn't. Sure, the shit is rough, life is unfair, and this illness sucks. Though if I live in fear I'm not learning from it, and the illnes would indeed be winning the war.
Maybe you need to stabilize a bit more, or let some side effects die down. Maybe you need to start out slow, maybe start with a few volunteer or freelance hours. Just don't let fear be a reason. Fear ain't worth your time.
Did I forget to mention that I'm seeing a therapist? Let's call her Dr. G. She has a fruity sounding name and actually, her entire name sounds like something a porn star would use as a pseudonym. She is not the Lioness, but she is close to it. We talk for an hour and then she repeats, almost verbatim, exactly what I told her. And she gives assignments, which I love. I don't know how I get so lucky ending up with the right doctor, but it happens. And the way I found her was total kismet...
LTD and I were renting a car to pick Spencer up from the airport when he came back from Boston at Thanksgiving. My tags were surrendered and LTD has a truck that only holds two comfortably, so the rent-a-car was necessary. While we were inside the office, a woman was waiting for a car and the staff kept referring to her as "Dr. Somebody." We didn't think anything about it until we got outside to the parking lot and found ourselves parked next to a car with the license plate that read "Psych PHD" (not that exactly but close to it). LTD suggested I go back in and ask the woman if the car belonged to her and if she was seeing patients. We were desperate at the time to find a therapist and coming up empty with all attempts. I went inside. Yes, she was a psychologist but she was no longer seeing patients because she was teaching at the university....but, she did know of someone named Dr. G who was seeing patients and I might try that. I did. She accepted my insurance and she could see me in two weeks. Having not met her personally, I just went on blind faith.
And she turned out to be the one. I like her style. She'll use a cuss word every once in a while and I like that too. She calls me on my bullshit in a way that makes me acknowledge it...and then challenges me to find a way to straighten it out.
I've seen her twice so far and came away today with a list of things to do (which she copied and put in my chart). I like that. She doesn't think I'm stupid. Though she does think I've got some definite mind slowing going on, she doesn't think it's permanent and is interested in finding out the results of my neuropsych testing (scheduled for January 15th).
So, I'm back in therapy and on the road to getting myself back. I'm excited about the possibility that I could come back...that I'm not totally lost. I'm gonna go ahead and shoot for the stars.
remember God is the Great Shepherd and you are never lost from him! I am happy that you are feeling better in being so proactive in getting "you" back. You are an awesome writer and I pray for you often!
I've been reading your blog for a while now, but this is my first comment. I hope you don't mind that I blogrolled you.
I, too, began seeing a therapist 7 months ago even though I swore that they were crap. I've since changed my mind.
My therapist gives me stuff to do, too. She's different than other therapists who wanted to know my whole life's story instead of delving into the here and now. I feel pretty lucky to have found her.
"Shoot for the stars"? That's a bit cheesy. Can't you say, "Kick ass" or "tear it up" or "fucking dominate" or something like that? I don't know, I guess that's a little over the top on masculine bravado, but "shoot for the stars"? What is this, "American Idol"?
July 15, 2005
FROZEN IN CELLULAR HELL
PERSONAL INSANITY
One neuron sloths through the syrupy muck within a sappy synaptic underworld, fighting through tentacles caked by a goop that sucks it back by some sadistic reversal of the process, pulling it away from its natural forward course...the search for the idea, the thought, the ah-ha resting place. It just stops, suspended in a quicksand of hollowed out impotence, suspended somewhere between the brightening of an idea and the expression of a simple word. It sits there and frowns, wrinkles the skin that encases the frontal lobe, and it stops all movement while the word, whatever the word....umbrella or chasm or tea bag wreaks an absolute tortuous havoc on the psyche that causes more pain than is necessary. That's where I live. That's where my words live now.
TODAY:
It has happened before. I do remember being sick and being filled with words that were at times overflowing. I felt such inner turmoil, but I was able to express it everywhere...here on this blog, in notebooks, on scraps of paper. The words and the passion for those words was alive and vibrant. And now they're just dead. I hate to harp so much on this, but this is the very reason why I'm going to ask Dr. K to order neuropsych testing for me tomorrow. I wonder if the readers of this blog can see a difference? What do my friends and family think when they read me now? Am I the only fucking person seeing this shit go down?
So your writing style is different. That doesn't make it worse. But whatever anyone else thinks, it's your passion. I believe it's there and I think I can see it, but if you don't, well, there's not much else I can do. I hope you do rediscover it soon.
it happens to me sometimes. i'm also bipolar and have ptsd. there will be times, like today, when i just want to write and write and write and i'm able to express myself in my usual style of writing. other times (and it can go on for months) i will feel like everything i write is trite pointless and unintelligent. i HATE when i feel like that. i feel like nothing i have to say is worthwhile and the things that i want to say, simply cannot come out. grrr. frustrating!! be patient--it will come back. safe hugs.
Tracy, I'm wondering if you expect yourself to write with passion, perfection and creative expression on command.
I realize that some people are very disciplined and sit for a set number of hours each day at a specific time of day, and they write. But, there are others who "wait for the muse."
I think of fields that lie fallow for a season in order to rest and prepare for the new crop. I don't think any writer can produce all the time, every time, with a sustained level of passion and creativity.
I am glad that you continue to write, even though you feel like the words and the passion are gone. Deb
Tracy, I'm a fellow psych nurse and a writer (actually, I make my living writing now, but I'm a hack; YOU are a writer), and I've been reading your blog voraciously for about a year. Yours is some of the best writing I've come across in my entire life. Please re-read your last post. Look at what you do with imagery and alliteration. The gift is still 100% there, even if the passion is not. That part will come back. But you are absolutely amazing--still.
I am a writer who's also bipolar. For the first several months of this year, my muse was on fire, and it seemed as if every time I sat down to write, the words tumbled out. I've actually been published this year, the first time in more than ten years.
Then, it all dried up.
I completely empathize with how you're feeling. I'm not sure how to engage the muse, either, and it bothers me. But even when I'm uninspired, I'll blog about this or write an email about that, and I'll re-read what I've written and understand I've still got it, it just feels forced sometimes.
As someone who's been reading your blog for awhile, I will tell you that you've still got it, too. But if you think you're "off" for other reasons, you should feel free to get it checked out, and I hope you do.
True, there IS most definately a change in the way you write. But the message you portray is not the slightest bit different. So a person pronounces either as 'eether', it doesnt make the word of any different meaning. You still have just as much artistic potential as you ever did, because that torture doesn't die. You just don't have the same translation of what aching you had before.
Neuropsych testing is a good place to start as it will tell you where your problems are (most of them anyhow). It will also tell you the problems are other than BP, depression, or anyother mental illness. At least than you can stop being blamed for these problems (the doctors won't take responsibilty, but they might stop blaming you and your disorder). That helps a lot. Also there are brain injury programs that can help you adjust to your new self. I understand totally about how hard is it to write as now there is a reduced vocabulary and it is very difficult to maintain a train of thought.
The flow of thought process is lost and just trying to find the word you want to use and once you have finally found the word you can't remember what it was you were going to write. So very frustrating. Or you go to write something and it is completly different than you intended to right.
It didn't say what you wanted at all. Also using the wrong words and spelling are huge problems (as you can see I used right instead of write!)Trust me I know the frustration and irratation of all this.
My friend Kelly wants me to take lithium. I actually considered it for a moment until I remembered what it did to me. It was the first medication I was on when I was diagnosed with bipolar disorder. I remember that my moods almost immediately stabilized. But it made my eyes feel big. I didn't blink as much as someone should. I was always thirsty. And I gained nearly 100 pounds before I could stand it no longer and took myself off it. This is the way with bipolar drugs...each positive response will be matched with a equally negative side effect. But Kelly has a point. Lithium is the only approved drug for bipolar disorder alone. It is not used to treat seizures (like all the other mood stabilizers on the market). It is not used to treat migraine headaches. It is for bipolar disorder only...and it works. It does its job very well. But the side effects make most bipolar patients non-compliant with treatment. Like I was. Like I would be again if the weight started piling back on. I am very careful as to which drugs I will take, and because of this, Dr. K's treatment regime for me is stunted. What he wants me to take and what I will take meet always at some negotiation in the middle. Lithium is the drug of choice for bipolar disorder. I know this. And what all my doctors in the past have known is that it would be useless to prescribe a medication that I will not take. Dr. K doesn't even mention lithium anymore. So what's the problem? If there are medications out there (Tegretol, Trileptal, Depakote, Topamax) that my disorder can be treated with and not cause weight gain, why worry about lithium at all? Well, tegretol gave me facial tics. Depakote made my hair fall out. Topamax made me stupid. Trileptal, a less toxic but also less effective derivative of tegretol, seems to be doing the trick for now. My moods are less jagged...there seems to be a steady stream of mood that flows like...flows like something that I can't articulate right now. Because all these treatments, all these meds, all these switches from one drug to another, upping and downing of doses, swallowing 8 pills before bedtime has made me quite brain damaged.
Kelly said to me last night, "I don't know what's happened to you. You used to be interested in things. You're making your family miserable. Take the lithium! Look at you..." I tuned most of the rest of that out. I could only consider that I am making my family miserable by trying and stopping all these medications that are not treating my bipolar as well as lithium would. And she was right that something has changed in me...something happened to me. I've been very aware that I am changed, that I can't write, that I'm not interested in things that used to challenge and inspire me. I realize now that it's not the medication doing that. It's the disease. But the biggest cannon I could point at the beast is the one drug that will also turn me into a big, fat blob. "Wouldn't you rather be happy and fat?" she asked. There's the rub. I'm not happy when I'm fat, even with lithium easing off the hard parts of my illness.
But would it give me my writing back? Or as Dara so eloquently stated in comments one day, my passion. Would I get back the passion for words? If I took the lithium, would this stupidity I feel go away? Or is it too late? Has this illness won? If I took the lithium would it even matter by now? Has my brain been hollowed out and scraped clean to such an extent that lithium would only make me too stable to care about being lost, being stupid, being fat, being wordless? I still have tears. I can still cry. I'm crying now as I write this. My old friends from Ohio, from Florida...my family...none would know me now. People I worked with here would note the change. Kelly did.
LTD has not. "Am I sick? Do you think I'm sick now?" I asked her tonight. She hugged me hard. "You're not sick." I asked Daniel today over coffee. He didn't think I was sick either. But the thing is, I don't trust in myself enough now to determine for myself if I'm sick. And I guess I will never have that ability again because even normal feels sick to me. As well as I feel now, I still know that I'm not the same person I used to be, that things are missing, that my thoughts are lopsided and derailed.
If I tried with all my might, could I conjure up the poetry of my madness and express it here? With nothing really going on upstairs, nothing expresses itself with wild abandon, with truth and grit, with fingers-flying across the keyboard urgency. And the worst part of all of that is knowing it, feeling it deeply and being able only to skim the gist off the top. It is phantom pain. It is still feeling my arm after an amputation. It is seeing only the tip of the iceberg and being unable to imagine the enormity of the mountain beneathe. It is just beyond the reach of my fingertips.
Is lithium the answer? Should I agree to take it? Should I tell Dr. K on my next appointment that I'm ready to get well, to get myself back and that I don't care about the weight gain...just give me back my passion? What do I have to lose now...except for the ability to recognize my gross, bloated face in a mirror? Can I be fat and happy?
would it be possible to take the lithium until you are safely stable for a while and then transition back to a less-effective drug once you have had some stability? Or is that just stupid? Would relieving the symptoms for even a little while give you some relief? I hope you find relief soon, wish I could help.
First of all, I don't think you're different. I feel like I've got the old Tracy back after months of the bipolar mushrooming like a giant sunflare that completely subsumed you. So, you're different in that you're better -- you're different in that you're nearly back to the Tracy I love.
Secondly, I think this stuff about you losing your "writing" is a myth. Do you read your blogs after you write them? The passion and talent and gifts of your writing are all in there. I see it in these blogs, and I see it in our conversations together. You say it's harder, that it takes longer. That's because you're out of practice. The medication hasn't sucked out your writing; the disease has. Your writing is there; you just have to get back into the habit.
When I stop playing guitar, the callouses on the tips of my finger soften and vanish. Then I pick up a guitar and it hurts just trying to get through the second verse of "Wildwood Flower." You just need to play enough to get the callouses toughened up again.
Pick a small project: write your spiritual autobiography. Don't let anyone read it for a while in case it sucks. But I'll bet, by the time you get fifteen pages, it won't suck.
Tracy, Tracy, Tracy! One of the ways I know you are still Tracy is that you are still impatiently insisting that recovery comes on YOUR schedule. It has been ---what-- a month (?not even!) since the last change in your meds and you're still on a schedule to (possibly) change the dosage every week.
I will say it again: give it time. REALLY put the trileptal through its paces before deciding whether it does or does not work for you. You know it's too soon to tell. Put your nurse hat on for a minute, look your patient self in the eye and tell her that she has to hold on and give the medicine a chance to do its job. If, after six weeks at the therapeutic dose, it seems not to be working, THEN and only then (IMNSHO) should you consider giving the lithium a go.
BTW, you are writing as well as ever, even though the lack of mood swings deprives you of as much juicy material *weg*
I would question taking the lithium but having input from a nutritionist and trainer.
I in no way suffer the fate of bipolar, but I do have IBD with its own miserable symptoms.meds.side effects. On my own recently, I dropped sugar from my diet (mostly) and most things white are heavily moderated. I thought it was going to be hard, but I immediatley saw a huge decrease in symptoms. That sort of makes it easier. Not sure if my comparison makes any sense, but my brain is still in park today.
I have to agree that your writing is still compelling, and if we were still publishing Emerald Pillows, I would still be begging pieces for publication.
Kelly: respect Tracy's concerns about lithium. It's a fine drug, but if the side effects are unpleasant, she'll be looking for excuses not to take it. The name of the game is compliance.
here's some random new age advice from a complete stranger who has read you blog for years.
get some lithium quartz. it's a clear stone with a natural lithium inclusion in it. the lithium part is pinkish. i can send you a photo (or even a stone) if you'd like. my understanding is it can help energetically balance bi-polar but since you're not ingesting the lithium salt (or man-made synthesis thereof) it's not toxic to your system and won't cause the stresses and side effects that the little pill might.
i know people who have had good luck taming their bi-polarity with this stone, wearing it around their neck, carrying it in a pocket, tucking it in a bra, sleeping with it in their pillowcase.
i keep mine in my waterbottle, though i've never been diagnosed with bi-polar, i find it helps me manage mood swings and my depression.
good luck tracy, whatever you choose. you're an amazing writer and i've enjoyed your blog for a long time and hope to continue doing so indefinitely.
I don't know you, I've been reading over a year. For what its worth I belive that since only you are inside your brain, only you know what is different in there. The people in your physical world (not Internet) can see best how you function. But, I'll tell you this Tracy, that when I got to the next to the last paragraph, I had tears in my eyes, and when I finished reading this post they were spilling over down my cheeks. I'm not an overly emotional person - possibly the one area I'm kind of normal. So, how did you make me feel the loss of your passion, of the missing words. You touched me, that's how. You have a gift and I hope that will help sustain you while you find your voice.
Forgive me if you've already covered this, as I read your blog intermittently, but have you tried Lamictal? Approved for bipolar *depressions*, and it seems to be without the weight gain side effects. Just a thought. It's not "approved" for mania, but it seems to do a decent job of that as well.
But definitely stick things out their due course to give things a chance. However, considering your loathing to try Lithium, I don't compliance would work. WHO wants to gain a million pounds...that would be even MORE depressing.
I fell asleep last night at about 12:30. Not too bad, eh? I woke up at 7:45 to get Spencer off to school and then went back to bed. I slept until 1:00. The day before I slept until 4:00. My sleep is fucked, as are my awake hours. It is already 6:00 p.m. and I have accomplished nothing. The pacing from room to room continues. I have done my best to fluff this off to medication changes. My dose was doubled. Surely that has something to do with it. I am still on house arrest. My 30-day tag surrender was up yesterday but I won't be able to get my new tags until Wednesday, when LTD is off work, and when I have disability money to pay for it. I'm about to start hating this imprisonment and am ready to venture out on my own. I don't know if it's readiness per se, or if it's just being so sick and tired of being in the house all the time. Where will I go? There is Christmas shopping to do, but will I be able to accomplish that on my own? Will I end up having a huge anxiety attack right smack dab in the middle of the mall? Will there be security involved? Will I be asked to leave peacefully? God, just thinking about it...
How come every other commercial that comes on TV is a Macy's ad? I haven't seen Sears, JCPenney, Kohl's....nothing but Macy. I'd dare not venture to Macy's on a bet. Walmart is looking pretty damn good.
I never know when to keep my mouth shut. For two nights in a row I have been unable to fall asleep, even though the medicine is supposed to make me drowsy. I find myself wide-eyed looking at the those illuminated numbers on the alarm clock at 12:30, 1:00, 2:00, 2:30. It seems like it will never end. And while I know I'm not sleeping, that hypomanic symptoms are starting to rear their ugly heads, I become more and more anxious, requiring the use of Klonopin, which I have been trying not to take...or rather, I'm trying not to medicate every little ailment with this tranquilizer. Going outside? Take a Klonopin. Going to Walmart? Take a Klonopin. Can't sleep? Take two. I'm taking that Trileptal in the morning now. The dose doubled today, and yet, I feel nothing different...except that I can't sleep. Going to bed at night is a nightmare. Tonight, if it happens again, I will get up and blog. I will get up and jog. I will do anything else besides lie there and watch those numbers change minute by minute. Surely war troops use this as a form of torture...make one sit before a big digital clock and watch the numbers change each minute. I can't take another night of it. I won't.
It's part of this controlling-your-bipolar book I bought that says you should stay in bed. Your chances of falling asleep while lying down in your own bed are much greater than if you're up cleaning or watching TV. It makes sense, but it doesn't make it less tortuous.
hmmmmmmmmm well thats stating the obvious LOLOL. I really dont see myself falling asleep with a sponge in my hand like ever. However for myself laying there watching colors merge and blend behind my eyelids that appear hostile ( i dont know what that is) or listening to negative thoughts ......... sometimes its better for me to read and put my mind in a different place until I can fall asleep. Or until the seroquel puts me in a place where I can fall asleep. Until seroquel there were times were I didnt sleep for days. But if this really works for you please let me know, I would of course be interested. If it doesnt let me know and we can hunt down the author of the book and kick him/her :P
As a fellow bipolar sufferer...I spend many nights awake...and alone.
My pdoc suggested getting up actually. He said that lying in bed trying to sleep will only serve to make me more anxious...and that I will sleep once things settle down.
I hate those times...unfortunately they come as part of this lovely gift.
Just about everything I've read on "sleep hygiene" (don't you just Loooove that term?) says that if you are not asleep in 20 minutes you should get out of bed and do some quiet activity until you feel like you might be able to sleep again. Music helps some people. The goal is to associate bed with sleep, not the inability to fall asleep.
Another adjustment of the medication and I am holding on. I have been sleeping all day and staying awake all night long, pacing, watching TV, watching LTD sleep, writing, moving slowly in circles in the kitchen...nighttime is a dangerous time for a manic on the move. I notice that all my clocks are set on different times. The hall closet door won't shut. There is a dip in the wood in the hallway, a slant noticeable even by the naked eye, but part of the charm so many of these houses in this old neighborhood share. I am down to 73 books on my bookshelf, having sold most of them to a used bookseller for gas money months ago. There is really nothing else I can do but count things, straighten things out, move furniture, talk to the dog, watch the cat sleeping soundly on the bed, where I should be. She has more room now. The dog follows me here and there, but even she is tired, and will sigh when she has to get off the couch to make yet another round.
I'm giving the medication a chance to work, but I know it isn't working and probably won't work. I can feel the mania coming back in pieces. I am conscious that the thought processes are started to get a bit slippery. The therapeutic dose range of this medication is 2400mg. I'm taking 300mg right now and will build up by 300mg each week. What to do in the meantime? I wonder if doctors sit at home during dinner and think, "Man, I hope my patient stays stabile while we go up in her dose...I hope she holds on." Because I do. I pray I make it. I hang my hopes so high, grit my teeth and shake my fists at the sky, and I hope so hard that I won't get lost, that I won't take people down with me when I fall, that I can avoid the ECT helmet long enough to get myself back to me...this medicine has got to be the thing to save me from destruction. God, please.
hang in there a little longer! And I can tell you for sure (after living with and being friends with so many shrinks) many do sit at dinner and hope you hang on long enough to get better, they just will never tell you that;)
Maybe its time to take up needlepoint or painting? Something creative that doesn't involve words or the computer? Something that has a definite beginning and end, as well as visible progress.
When I finished ECT and it "failed" and I was disabled on my doctors advice, I decided to just allow myself to be ill. I quit fighting it so to speak. If I was manic I just allowed myself to be manic, as long as I wasnt destructive. If I was depressed, I allowed myself to be depressed, as long as I wasnt destructive. I did make myself accomplish just one thing everyday. Somedays this was just bathing or making my bed or something very simple like that. Other days it was something bigger. Somehow in the process of accepting who/what I was , accepting this illness I had ..... it eased just a little and I became able to live with it just a little better. This may sound ass backwards and may not make any sense to you but I thought I would share it in case it did stike a chord. If it sounds like insanity to you then disregard or delete it
I started that new medicine last night, the Trileptal. It seems the decrease in Topamax made me a bit hypomanic and something had to be done. But oh. my. god. This Trileptal is kicking my ass. I took the lowest dose possible and slept for 13 hours. Now I'm walking around like I have bricks in my legs. My arms feel like concrete. The funny thing is, my head feels clear. What is this shit about medicine anyway? You can either be clear-headed and not be able to move, or you can feel fine physically and not be able to think of the word for chair or snowman. Is there no fucking medicine that can make you clear-headed and be able to walk?
Well, that's just the first day. Adjusting to any new medication takes a body time, but you know that.
I'm a firm believer in treatment cocktails. There's a cocktail of psychotropics for every person. It just takes some doing and tweaking to find the right mix. You'll get there.
I think you should get one of those souped up motor chair things. Then you wouldn't have to walk and you could get to the fridge fast enough to eat pie. :-)
You're welcome.
"Well, that's just the first day. Adjusting to any new medication takes a body time, but you know that." -Dara
I entirely agree with Dara. The first few weeks of any new med are usually a living surrealist nightmare. Give yourself time to adjust before getting upset and evaluating "clear-headed" versus "bricks in my legs".
When LTD and I went to see Dr. K last Friday, I asked him to order an MRI for me. I told him I was certain that ECT was causing brain damage. He maintained that my symptoms were due to medication side-effects and that ECT didn't cause brain damage. I still don't believe that ECT doesn't do damage to the brain, but look at this little ditty I found in a book I purchased on my last trip to Borders...
From the book Take Charge of Bipolar Disorder by Julie Fast and John Preston: Your bipolar brain often creates problems instead of helping you cope with them. Often it simply isn't possible to think clearly, problem-solve, and maintain an appropriate measure of emotional control, because certain brain structures that regulate emotions lose their ability to function appropriately. This appears to be due to abnornal chemical regulation of these brain mechanisms. It can also be caused by actual brain damage, which can begin to gradually occur when people with bipolar disorder do not get treatment or have poorly controlled, recurrent episodes.
It would appear, dear readers, that by hopping off again and on again on my medication, I am causing my very own brain damage.
Tracy,
I did a bit of research and found that the Stroop Test is often used to evaluate people with bipolar. It is quite interesting. I am including a link if you are interested. And I say, as long as you maintain your loving and caring nature, you are still golden despite the loss or damage of any brain cells.
http://www.snre.umich.edu/eplab/demos/st0/stroopdesc.html
Tracy,
You can do a search for it, there are several sites that have the same test. It was hard for me, too. Did you know you changed your font on here? It's showing up as italics on my end.
I'm not seeing it as italics...just the "comment by" part. Maybe last summer's vision problems are coming back. Whatever happened to those damn contacts???
Tracy, we have a mutual friend in Pax Nortana. I'd also like to introduce you to my (virtual) pal Kev, who keeps the Bipolar Blog. Kev, meet Tracy. Tracy, meet Kev
I did not know that the Stroop task was used in bipolar diagnosis, but I was aware it had some use in testing executive function and ADHD. (A person may have executive function deficits without ADHD, but almost all persons with ADHD have executive function deficits.)
One version of the Stroop Task has (for example) asks the testee to name the colors of objects printed in the following colors: Red, Blue, Green, Yellow, Red, Orange. The trick is, the objects are the words orange, red, yellow, green, blue, red. The response is timed.
Most humans are so proficient at reading printed words that they cannot easily ignore them. In fact it takes considerable attentional effort to ignore them. This tendency to quickly read a word is used in the Stroop Task.
The Stroop Task is a psychological test of our mental (attentional) vitality and flexibility. The task takes advantage of our ability to read words more quickly and automatically than we can name colors. If a word is printed or displayed in a color different from the color it actually names; for example, if the word "green" is written in blue ink (as shown in the figure to the left) we will say the word "green" more readily than we can name the color in which it is displayed, which in this case is "blue."
The cognitive mechanism involved in this task is called directed attention, you have to manage your attention, inhibit or stop one response in order to say or do something else.
Like she said, a loving heart trumps brain cells.
Plus, how's your sleep doing? Not enough good sleep = temporary drop in IQ.
Dear Tracy, I am finding that the longer I keep on the medications, the less I feel handicapped. I started teaching myself Latin recently and am making genuine progress. I've been told that if you keep taking the meds, the damage heals itself.
Insist your pdoc to order neuropsych testing. These dicks know full well ECT causes brain damage and whats more, they know the damage is worse in BP's. This is the classic "everythingelse" is causing your problems. Bullshit! Insist on the tests and rehabilitation.
Well, thank you Jane! It was nice to hear someone say it...and I hate the way he just fluffed me off with, "ECT doesn't cause brain damage...don't worry about that." Well, it's my brain, I do worry.
Every day that LTD works and Spencer's in school, I have 7 hours alone. These hours are often filled up with pacing from room to room, anxiety-ridden moments of boredom or despair, when I find myself questioning my sanity and filling my lungs to capacity with deep sighs. I don't know how to manage my own time. LTD leaves lists with small, easy tasks that I either accomplish by early morning and face the rest of the day with nothing else to do or that are left undone because I find myself frozen, statued by (...unable to find the word here). I can't find the word.
This house-arrest lingers on. I'm sure I wouldn't leave the house even if I could but just knowing that I can't makes leaving the one thing I want to do. Where would I go? There is no place for me to go.
Tonight LTD and I were sitting at the kitchen table at medication time. It hit me suddenly that I didn't need to take that Geodon. "It's an anti-psychotic. I'm not psychotic." Her contention? "You're not psychotic because you're taking the medication." Why is it that when I start feeling a little bit better, I start to question my need for medicine? I actually thought about cheeking the pills. It's been bothering me since a dream I had about the Geodon about a week ago. In the dream I had opened the Geodon capsules and emptied them out, putting the capsules back together and then replacing them in the bottle. I challenged the need for the medicine in the first place. "You believed the power company, the phone company, Kelly and Dr. K were all in on a conspiracy against you. You thought people were coming into your apartment at night and causing injury to you. You told Dr. K the halocaust never happened. You made a racist statement. You said you were going to be a Broadway producer...you wrote all of this in a letter and gave it to Dr. K, which is why he admitted you into the hospital." Of course, I don't remember any of this. But my point is this: I may have needed it then, but why still? If I stopped taking the Geodon, would I just automatically become psychotic again? I mean, psychotic episodes during mania are just that...episodic. Why am I still taking the freaking Geodon?
It is at the core of mental illness to deny mental illness. I know this. But I'm getting better. I'm starting to feel well again. Why am I still taking enough medication to drop a fucking moose? Jesus, will I always be doing this? Even I'm fucking sick of it. Why can't I just accept it and move on? Why can't I just open my mouth and swallow the fucking pills?
I fought like a bear "in the beginning" when I was diagnosed. Am I bipolar? Who says? You say. I say no. I say your medication MADE me bipolar (taking Zoloft for anxiety and depression made the bipolar worse) so why the hell should I trust you and take more meds? I went through it for months and months.
Right now, I'm resigned to the fact that I'm okay with taking meds for the rest of my life, if I have to take them to be this way. Sometimes thinking I don't have to take them is a delusion in itself. I DO. When I look at my kids, and I think about how messed up I was, and how messed up I would be if I weren't taking medication, I nod and smile and swallow the pills. That's what it comes down to.
The illness IS. And I hate it. But I'm fighting IT by taking the meds. The meds are the sword. The illness is the beast. Screw the beast. Take the pills.
Tracy,
This is a trend with you and I've seen it over and over again. Of course when you are feeling better, you question the reasons to continue taking the medications. We've had many discussions about this. You must take the medication and you will most likely take it for the rest of your life. Accept it and move on.
Tracy, Tracy, Tracy! You are coming out of the woods, but you're not there yet. And you've gotten this far because you've been (sometimes reluctantly) compliant with treatment. I know you know how crafty the beast is. This is just another trick of the illness: you're feeling better and want to change the very thing that is helping you feel that way.
Don't just do something, sit there. I know you can do it, but we (your friends) are here to remind you to take care of yourself and take your medication. You just got an adjustment in your meds, yes? Take some time and see how it goes.
Having coffee with Daniel at Borders today was almost a religious experience for me. Coversation was nearly effortless and I felt a calm I have not felt in public for a very long time. There was no one staring at me, no terrorist activities going on around me, and no familiar faces I needed to place to put my world in order. I didn't trust it at first, but then I stopped trying to--stopped trying to trust it. There was no need to. It was simply coffee at Borders with a very good friend.
There are miles to go, I know this, but this tiny nugget of sanity was like a silvered jewel in the palm of my hand...and not one I needed to fist so tightly as to cause my skin to tear, but one I could roll around and play with. I was out in public, without LTD or Spencer to anchor me, and actually walked through the store with Daniel, talking, laughing, and I was not scared. What is owed to this major accomplishment? Was it the decrease of the medication? Is it just part of the process of my getting better? Is wellness coming back? Are some of those dark crevices in my mind lighting up, if only by candle light? If only by the light of a match? Are those dark spots becoming enlightened?
I don't mean to question it. I don't feel the need really for an answer. It just feels so wonderful to be human again, to be Tracy again, if only for a few hours, I want to cry. No, I don't want to cry. I want to dance. I want to celebrate. I want to tell everyone I see. I am here. I am here. I am still here.
I hate I missed you today. Sounds like you could have done me some good. I'm all alone this weekend. I wish I could have seen and better; heard the laugh! I'll be calling on you this week. I'm in for a rough ride, so we can help keep eachother uplifted. I hope every day is like today!
I can explain your sense of ease on Saturday. It's pretty clear: I am awesome. You know how some people like to give God credit for stuff? Not me. I take all the credit. When I release a massively popular hip-hop album and receive a Grammy for it, I'm not going to shout out to Jesus. I'm going to shout out to me, and say, "All the glory should go to me, because I kick ass and am awesome."
So I'm glad you enjoyed basking in my awesomeness. Also, it you have rheumatism, you can put your ailing body part on your computer screen over this comment and BE HEALED! In the name of how awesome I am, BE HEAL-DUH!
LTD and I went to my doctor's appointment yesterday with a list in hand. We've been keeping track of all my symptoms and I was more than prepared to have all my medications stopped and was going to skip out of his office a woman free of all mind altering substances. He cut my Topamax in half. I was fine with that. I'm always fine with going down in meds than adding more on....but then he had to go ahead and suggest adding Trileptal. Trileptal? Was he fucking joking? Nobody uses Trileptal anymore. I tried to act like I knew why, but I didn't. Even when I got home later and researched it, I couldn't find the specific reason why doctors aren't prescribing it aside from the fact that it is a very old drug and there are newer and shinier meds on the market. He's still trying to push the Depakote, but I can't take it because it makes my hair fall out (and I mean like fistfulls of hair) and the lithium, which I can't take because it makes me really fat (and I'm talking a hundred pounds). Is my mental health really worth being an obese bald woman? I think not. My contention that Trileptal causes birth defects didn't hold much water, so if this cut in Topamax doesn't produce the desired effects, in three weeks, when we return, Trileptal it will be.
What it really boils down to is this: Trileptal is a "last chance" drug. I know it. He knows it. Every fucking person in the mental health community knows it. When a patient presents to the psychiatric ward for admission and hands over their list of medications and trileptal is on it, the red flag goes up: "This person must be really sick if she's gone through the gammet of mood stabilizers and landed on trileptal."
You know what? I'm not going to bother myself with this. I'm sick and I know it. I don't give a shit. If it works, it works. Topamax is making me stupid and this really is the last thing I want. I mean, other than being bald and fat. The choices here are not so desirable, are they? Mental health or circus freak? Which would you choose?
Otter....what works for some, unfortunately, doesn't work for others. Lamictal was a no-go for me, and not just because the taste made me want to vomit.
Well, T, you're in luck! I'm the drug of choice for all loons, myself not included, because I suffer from self-loathing and would very likely regurgitate if I was forced to take myself.
There is a term I'm looking for. There is a term for letting loose of all you're thinking of, for letting go of everything in your brain without pause. I know there is a word for it, but I can't remember what the word is. This is how my brain works these days. I could take you to Borders. We might have to get there in a very creative way, taking several side streets and backtracking through a few neighborhoods along the way, but we'd get there. I couldn't tell you how to get there. In my head, I could not explain how to take one street and then turn left on the next street and then keep going straight until you get to the first street light. This is the same way wet brain works. From A to C, somewhere B gets dropped.
My responses are delayed. From the outside it may look like I'm just waiting for a bus. LTD asks me how my day is going and my mouth opens a little to let the word out, but nothing happens. Inside a veritable riot is exploding in my brain. The right and left hemispheres separate as if to give birth and slowly a tornado forms and sweeps through blowing letters and words and sentences around as if to wipe out all of creation. If I am still enough, if I keep quite still and wait, the letters will settle in the aftermath. "Good." I have been promised this is temporary. It seems to be getting worse.
Mental illness is a monster the likes of which I have never hoped to battle. It is Satan here on earth. How incredibly crafty it is, attacking a person's very livlihood, a person's very art or beauty or love? How many times have I heard family members say, "He used to paint...he was an artist, but now he's afraid to paint" and "She was a promising runner in college, was training for the Olympics just last year but her medication makes her legs too weak." The singer who won't speak. The writer who can't form words. The musician who now believes the piano is a form of evil.
I've been writing my whole life and I've always considered myself a writer. I've published a few things, but I never considered myself an author. But the hope of that always kept me alive, it always kept me going. I don't know if I have that hope anymore.
Brain Dump. Wasn't that the term you were missing?
Just don't forget to breath, Tracy. You don't have to be perfect. Hell, right now, you don't have to be well: you are recovering. It's not a straight-line process. I expect the littlest things have an effect on how well or how poorly you perceive your brain's operating ability. Blood glucose, rest, exercise--all these things affect healthy brains. For a healing brain, they probably have an even greater impact. Take good care of yourself. Healing takes time. That's your mantra.
The only word I could remember during my bouts of blankness was, ironically, anomia. (See here= http://www.medterms.com/script/main/art.asp?articlekey=21580)
I'd say it over and over until I could think of at least a synonym to what I meant. :-\
I am effectively on house arrest until December 16th, 2007. It seems in the state of North Carolina that if you let your car insurance lapse for any amount of time at all, you get a nice little fine and you get an added bonus of having to surrender your tags for 30 days. My insurance ran out last November when I ran out of money to make the premium. I went a month or two without insurance, changed carriers and then all was right with the world....until my tags expired.
This recent episode of agoraphobia is coming in quite handy, I think, or I'd be going stark raving mad right about now.
We are preparing for tomorrow's ambush at Best Buy. We have our camping chairs and table, blankets, and well, I would list the other items but my brain is quite empty at the moment. Is it a parka? A rain jacket? I can't remember the word for it. The forecast for tomorrow is cold and wet. Yes, a storm is rolling in. We made a trip to Best Buy to get some general information and were told that the line will begin forming mid-afternoon. By 10:00 p.m. it will wrap around the back of the building, slice through the parking lot and disappear around the Macaroni Grill restaurant. And it will be raining the whole day. I'm setting a personal goal to be first in line.
Now, about the other storm. I keep breaking down in sobs. Three times today, for absolutely no reason at all. Once in a restaurant, once in the car while talking to LTD about a leaf blower and once looking at my face in the bathroom mirror. I keep getting more and more confused, at times having just no idea where I am or what I'm doing. I was able to find a therapist and secured an appointment, but honestly, I don't know what she's going to be able to do for me. I feel completely hopeless. I see Dr K on the 29th. I'm going to ask him to schedule an MRI for me. I think this last round of ECT did some actual brain damage.
Scary. That's why ECT has always been such a fear-spot for me.
Please know you're in my prayers and I've been thinking about you. Just do your best to stay calm as freaking out or getting down on yourself for these episodes does no good. Laugh, cry, do what you must and breathe deep. You are loved and you will be okay.
I think the purpose of ECT *is* to induce some brain damage in a brain that simply has gone out of control. I also think the human body, brain included, has an enormous capacity for healing.
Healing takes time...sometimes a lot of time. I remember how hard it was, breaking a bone (my leg) for the first time in my life at age 47. For the first time in a long, long time, time seemed to absolutely crawl by and the 8 weeks I was in a cast seemed to go on forever. Then it seemed like a whole 'nother "forever" before I trusted my leg enough to begin wearing heels again.
What I am trying to illustrate is that, hard as it may be to believe, you have a lot of healing left to do from this latest episode of illness. The illness was more severe and the treatment was more punishing. It seems logical to me that your healing process would be a lot different this time than previously. I believe you will get better, though. I know it's hard to be patient when your emotions seem to turn themselves on and off at the drop of a hat.
Maybe it's the brain's way of testing the new circuit breakers?
"Crying?"
"On"
"Check!"
"Crying off?"
"Off!"
"Check"
Can you maybe focus on what you can do and do a little more of it each day? Gratitude lists are a good tool for keeping the focus on the positive things happening and avoiding spending too much time alone in your own head. It's still a dangerous place to play by yourself. I'm glad you've found a new therapist so you don't have to go there by yourself.
The Lioness has been dead for more than a year. I cannot tell you how much I feel her absence right now in my life. I am a therapeutic orphan. Psychiatrists don't perform any outrageous feats of therapy. They are not built that way. Glorified pharmacists are about as close as you get these days. Rapid thoughts? Take a pill. Anxiety? Take a pill. Flashbacks from childhood? There's a pill for that, too. Hell, there are several pills for that one. But you are left to wander in the wasteland, child, pained and disillusioned by any artwork that moves you, filled up with the emotion that can't be expressed, because there is no one to listen to your pain, no one who has the time to flesh out the grumbling discontent that is choking you into oblivion. It's right there, growing like a malignant tumor at your throat, but you will have to gag on it because your therapist is dead. She has been dead for over a year. And there is no one on God's green earth who will ever replace her...no one who will know you the way she did. You are an orphan.
LTD has given me until the end of this day to find another therapist. There are miles to go. There are a thousand pages of the phone book to pour through. There are mistakes to explain and close calls to smooth over. There are years of tragic episodes to tell. There is much work to do. It will be difficult to do without words.
I can help but wonder......... I go thru times that I say I have no words also. For me that is when I cannot initiate conversation. I can answer, but I cant initiate, the words just wont come. for me " i have no words" Im wondering if it isnt similar for you. If there is any similarity, perhaps, once you get in there with the therapist, she can ask and you can answer also. I hope am making sense. If am totally offbase and this turns out to be one of those annoying responses that make you wanna tear your hair out , then just ignore it and maybe my next one will be more useful :P
Raine...."It will be difficult without words" was not meant literally. It was meant more in the vein that it is difficult for people in the psychiatry business to open up to other people in the business in a professional venue....and especially for me when it comes to holding people up to the Lioness' yardstick. I will never find another like her. Even people whom I'm referred to know that.
It's been my experience that if you don't have a referral you're basically screwed, so put away the yellow pages m'dear. I hope you've had some success T. You clearly understand that you can never replace her, no one could live up to the standard you've set. But hopefully you will find someone to bridge the gap. {{}}
She is not afraid of me. LTD is not intimidated by my illness, has never backed down from it, nor cowered in a corner by its ferocity--for that matter has she challenged it, bowed up to it or tried to frighten it away. She has merely accepted it for what it is and sparred with it in the ring when she found herself there unwittingly. She gives it all she's got, never takes cheap shots, and never leaves--even when leaving would be best for her, when it would be best for all of us. She stays. And she takes me and my demons out into the world believing the distraction is the best therapeutic response.
Surprisingly, it has worked, despite the horrendous tragedies being played out in my mind. We've been bowling. We've played Bingo. We've gone to Buffalo Wild Wings to play Trivia. While the inner workings of my brain have been wreaking havoc on my psyche attempting to force a house arrest, LTD has refused to accept the incarceration. And out we go, among people, in public, engaged in activities that make my brain's mechanisms trip the correct triggers to function adequately. There may be pressured speech. There might be rapid thought processes. There may even be paranoia. But all the while I am rolling the ball. I am dabbing B11. I am talking to people. I am winning $100.00 at Bingo.
And while we're driving and I'm trying to find my way, while I'm desperately trying to find anything at all familiar to me, something, anything, that looks like something I've seen before, she will say, "I know you're lost, Tracy, but you're safe. I know where we are and I'll get us home."
And she does. And I know that no matter how sick I get, she will not leave me. I've never known anything as much as I know this. She will not leave. And for that, I am not lost. I will never be lost as long as I know that.
Honey you forgot to mention I won at trivia. I'm proud of you for facing these demons. Hang on baby you can beat this illness. I'm ready to go play bingo again, and yes readers she did win $100.00. Love you
Wow. That's awesome. I'm still trying to believe that about my husband. Where does that undying faith in your mate come from? I believe he will leave me. I believe he will give up. I believe the illness will beat both of us. He sticks around, and I punish him for it. Can you teach me how not to do that?
I can't teach this. It is a faith that just comes. I've had people leave me before and I did not blame them for it. And for a long time I expected LTD to do the same. It still comes at times, in pieces, that same feeling, that she will get fed up and walk away. You have to trust in them, Terra. You have to know that they are good to the bone. You have to know how strong they are, how much they love you and how much they're willing to fight for you. They are. And they will stay. They will stay.
We were driving back from spending time with friends tonight when LTD said, "You're lost, aren't you?" She is beginning to be quite adept at reading the aberrance when it presents itself, even when it does so with silence. I was lost, but it was a comfortable loss since I wasn't the one driving. I've been getting lost for weeks now everywhere I go, even inside my own house, from room to room, from house to mailbox, from car to front door. I've been getting lost in North Carolina, one moment driving in Winston Salem...the next moment thinking I'm driving in Fort Lauderdale, Florida. I've gotten lost twice now driving home after having dropped Spencer off at school. I've been driving down streets having no clue where in the world I am--just driving, turning down streets, turning around, back-tracking, looking for landmarks.
I am crazy. I admit this readily. I know I'm crazy. I have to admit it because denying it only increases the level of it. I continue to take all the medicine. I swallow the big pills. I choke down the nasty Lamictal. I gag on the Geodon. I do this twice a day and each time I do it it feels like a psychological sparring session with the Bipolar Beast where I feel like neither one of us is really winning. For a split second what I want to do is take the handful of pills and throw them against the wall or crush them under my heel. I want to smash them in my fist and fling them out the window. For a split second the desire to do so is almost too much to bear. I swallow the pills. I swallow the fucking pills.
And for that I am stunted. I am held back. I am half-smiling. I am compliant. I am a good girl. And the words won't come. The passion has cooled and there is nothing burning. I've become one of those patients my co-workers and I always cringed over--the ones who had one too many shock treatments--where there was nothing left. They'd come back blank-stared, numbed, wanting nothing, needing nothing, having nothing to say, becoming like a piece of ward furniture, propped up in a corner somewhere. We'd suggest to the medical team that maybe it was time to stop the treatments, but usually they'd continue with a few more and inevitably, the patient would start eating his own feces or undressing behind the nurses' station before it was decided to discontinue the ECT, when it was too late to stop any permanent damage.
"I'm afraid they've stolen my words," I said to Spencer earlier today. I can't write. I feel it, deeply. I know it's there somewhere, but I can't make the connection to it. "No, Mom," he said and sat down next to me. "Your words are in your mind. They didn't fry your mind. They can't take your words, ever." He cried and only when I tried to soothe him did I realize that I was crying too. "That is the saddest thing I could ever think of happening to you," my son said to me. It only made me cry harder.
There is no fire here. All that passion has been used up trying to find my way home.
i still,being of sound....ish mind stand by my statement. they cant take your words. be it an ignorant sence of disbelief, i refuse to accept that you lose something so strong and so powerful. i remember this from a session with The Lioness, 'people cant do things to make you different. even if it seems they can. they cant.'
i hope so strongly you find this to be true.
and i'll be here every step of the way when the sidewalk comes to an end, to help you over the mound blocking your path.
the ECT you have had is recent. I got lost too. I couldnt remember where my doctor was even and did the exact same thing, just drove around hoping I would see something that jogged my memory. I forgot a whole city pretty much, how to get around it. I forgot a lot of things, people, places, bout a year and half's worth of memory...... much of which I never got back. But..... I am still me. My family tells me that for a while after ECT I was "different" but after time I got back to being me. My personality was still there. So is yours. Your words are still there. You might have some memory gaps, and such and I know its a terrible, vulnerable feeling, but you are still there and so are your words. ECT helps but you need time to recover from it- thats what I think.
Tracy, to me, it looks like it's not the words that are eluding you, it's the feelings. You are writing as well as ever, just not able to feel it right now, I suspect. And, not being able to "feel" the words probably feels as if they are gone. And the getting lost all the time just adds to your sense of overwhelming loss of self. Your brain is in a heavy-duty "defrag" mode while all your files get rebuilt. It takes time. This, too, shall pass. Big hugs to you, T/S and LTD.
I think Dara's right on. I read your blog, and I want to shout, "Tracy! Read your own fucking blog! You're writing quite eloquently and powerfully about how you can't write eloquently and powerfully!" But I think Dara nailed it; your skill as a writer hasn't been touched -- your words are still your words. (I'll stand by Spencer on that count, too.) But I do know how scary it is to be writing something you don't feel. Your words are there, but your passion is on hiatus for the moment. And truthfully, as Dara suggests, that's the real loss. Honestly, if you had to choose between the words and the passion, wouldn't you choose the passion? (I would.)
And the passion isn't gone. I know because I can feel it in your words. I believe you don't feel it, but I still do feel it in you. So let us hold your passion for you for a while until you're ready to reclaim it again. We'll keep it safe.
Go back to the beginning of the blog, to day one, with LTD or Spencer and let them read it to you. Maybe take a few posts and sit with them and see how you might want (or not want) to edit them.
I haven't the illness you deal with, but I do often get lost and the words elude me. You're never alone.
I agree with everyone who commented before... give yourself time. I know you're scared and feeling numb but with time, you will level out. That was the point of the ECT, remember?
Breathe deep and slow. Your words are there, your passion is just dormant while you heal a bit but it is not gone.
I received a notice of disapproval of disability from the Social Security office yesterday for, you ready for this?--"...bipolar disorder, suicidal ideation, alcoholism, heroin and cocaine abuse." What boggles my mind is this: if I did suffer from suicidal ideation, alcoholism, heroin and cocaine abuse, wouldn't I more than qualify for benefits? What more would it take?
I don't know much about this system but isn't this my money I'm being turned down for? Isn't this money I've been paying into with my own tax money over the years? And shouldn't I be entitled to it now that I need it without having to jump through hoops of fire to prove I'm worthy of it?
I've been told that nearly every case gets turned down the first time and I think that's just sad. A friend of LTD's knows someone who got turned down and he was friggin' blind! What the fuck? Who's in charge here? What fucked up branch of government is pulling the strings? I'm appealing the decision, of course, but I had to get a lawyer to do it. And I still may not win. What is wrong with this system and do we have any hope of winning?
Am I wicked? Well, people who don't live in this just don't get what the disability is all about. They have their idea and you have your reality. You need to make them meet.
P.S. I am not on any kind of disability/social security.
I'm moving from lurking status to participant when I read you had been denied SSDI. Your blog has been such a source of encouragement to me, that I felt I needed to pass some of that on to you. I presently live on monthly SSDI checks for the diagnosis of bipolar disorder and chronic pain. I know how anxiety-provoking initial applications, appeals, and reviews can be. Please hang in there. Your chances of approval are still very good.
Make sure that you meet any deadlines listed in your letter. Get your form/letter in for appeal ASAP and make sure you send it Registered Mail, Return Receipt Requested.
The next thing you need to do is hire a good Social Security Disability attorney. Don't necessary attach yourself to the first national firm you see on TV. Look for an attorney who has already worked for SSA as a field office representative, claims supervisor, or administrative law judge. They know the inner workings. I can also recommend two web sites you can use to search for an attorney:
http://www.nosscr.org/board.html and
http://www.nosscr.org/links/memlnk.html.
The very next thing I would do is run out and purchase a copy of Third Edition, "Nolo's Guide to Social Security Disability" by David A. Morton III, MD. It's invaluable in assembling your file.
For daily support I go to the Massachusetts General Hospital BrainTalk Community, Social Security Disability board. These are people who are in the trenches:
http://brain.hastypastry.net/forums/forumdisplay.php?s=624b67ef8b887f67194ecad1a80c6c0e&f=64
Okay, now you have a "team" assembled. Be aware that drug abuse can negatively affect a decision. Your attorney can explain to you if that's a primary cause or secondary (like you were treating your BD with self-medication). I am surprised someone with a history of ECT was denied. Good luck on this and please keep us posted.
My deep apologies. I made the erroneous assumption that what they wrote in your denial letter was based on information from your medical providers. I do hope that you don't throw away the advice I gave you. It may prove helpful down the road
I used to be responsible for getting SSI/SSD for my clients suffering from serious mental illness. They always got shot down at least once. Be sure to take someone with you to every appointment, and have them treat you like you are far worse than you are.. telling you where to sit, guiding you by hand, prompting you to answer the questions, filling out paperwork for you etc. believe me, it helps.
I wish you success, and quick recovery from your illness.
Your blog prompted me to stay on my Lamictal (you know how we bi-polars like to go off our meds!) thank you for that.
I think I may be the only one to get approved for SSDI on the first go and with a dx of bp. I applied online and took someone with me to my appt. I dont know if either of those things have anything to do with getting approved.
It's that feeling you get right when you've realized you've locked your keys in the car and the baby's inside...that feeling of horror you feel when you've taken one step too many off the stage...it's just that feeling, over and over again that I keep experiencing for no reason at all. It lasts for a split second but it happens about 20-35 times every hour. ECT has gotten inside my brain and awakened the fear factor. That's what it feels like...like someone is coming up behind me every few moments and scaring the living hell out of me.
There used to be a time when I felt blessed with this disease. I did. I figured the moments of creativity were worth the mania and strife and the moments of actual down time caused by depression weren't that lengthy or severe anyway, so it was all an even trade-off in the end. But I keep getting sicker and sicker and the treatments keep getting more and more harsh.
I've been writing here for five years. Will I be writing here for five more? I've been living on my own my whole life. Will that too come to an end? Will I need sitters? Drivers? Nurses? What twisted third dimension is my life about to morph into?
People say that I am guarded, cautious. My therapist told me that she sees that a lot in her bipolar patients. We've become afraid of anything that might trigger our emotions.
I read your stuff and it brings me back to those thoughts. When we release ourselves, oh so much comes out. And yet lately, even though my writing is crap and my photography mediocre, I have ignored my therapist's admonitions to try something harder.
I don't know, Tracy. I see the worst possible and I am afraid. Afraid that if I let go, I'll be the next one on the table with a guard in my mouth.
it must be so difficult not knowing what is to come. is it ever the case that things get better and not worse. i find that as i am getting older my moods are cycling faster and faster. i never know who i will wake up as.
I'll be glad to build that body stretching machine you've been wanting. That could be my contribuition.
(Sorry folks, inside joke, but no so inside if you've been reading Tracy's blog for awhile.) *grin*
Yesterday before the switches were pulled the doctor discussed turning up the juice on the ECT machine. It would be my last treatment, why not go out with a bang? Why not, indeed? I don't know how high we topped out, but I seemed to have been emptied of quite a bit of brain matter. My mood? Stable. My memories? Scattered. My brain is frantically trying to remember something--as it builds up the memory blocks in the right order, it feels like my brain is on fire and these blocks are rolling and tumbling, scrambling to fit into the right order--but nanoseconds before I latch onto what that memory is, an explosion occurs and leaves me with nothing but smoldering ashes. This happens every ten minutes or so. I've chosen to ignore it.
I think if I have any more ECT I will be left with permanent brain damage, if I haven't already. If this sample of writing is any indication...
From the time I arrive for ECT until the time I leave, I am overwhelmed by hands. LTD and I are beckoned to a small room where I change into a gown and a pair of "shock socks." I am helped onto a gurney and a nurse immediately begins the search for a good, juicy vein. It will not be easy. Another nurse will enter and begin the search on the other side. I can feel their hands everywhere. The veins they can hit will roll or blow and I will be crying by the time they've finally started the IV. Three sticks is considered a success. They will apologize.
One of the nurses will administer a medication through my IV that will make my mouth very dry. LTD will make small talk. She will hold my hand. When we are alone I will say something like, "Let's go" or "Let's run." She won't joke around. LTD is a proponent of ECT, having seen it work miracles, like I have, on many, many psych patients.
The transporter will come for me and place a little blue surgical cap on my head. I can feel her fingers tickling my scalp. She's supposed to tuck my hair into it but she never does. LTD leans in and gives me a kiss. (In ECT time, it will be a fraction of a second before I see her again.) The transporter will roll me through arteries of halls, down and down and down several hallways, through double doors and past operating rooms until we get to a hallway painted tropical and lively with bamboo and trees and a big white tiger.
Once in the OR there will be more hands. It's funny but I can't remember if the team is masked or not. I don't even know if they're gloved! The OR nurse immediately begins to swab both of my temples and the middle of my forehead. She also swabs the top of my head with a gunky solution. I don't know what it is or what it's for.
The anesthesiologist places electrodes on my chest and hooks me up to something. Someone else puts a blood pressure cuff around my upper arm and another one around my lower leg. My doctor and the residents are very concerned with "settings" on the ECT machine.
When the oxygen mask goes over my face, I know we're getting close. The rest of it will go just like this:
Dr. "Tracy, take some deep breaths."
Me *takes deep breaths*
Dr. "Tracy, deeper. Deep, in and out."
Me *long breaths*
Dr. "That's better."
Me *feels burning white hot fire going in IV, moans, closes eyes*
Dr. "That's going to burn just a little..."
Me *opens eyes in recovery room to find LTD standing next to bed*
You see? It's actually quite boring and I guess why they have to make it seem so exciting on TV. It will be later on in the day that I'll discover bruises left by the attempted IV sticks, that I've bitten through my tongue or bitten off part of my lip...that's about as exciting as it gets.
I'm scheduled for two more. After that I don't know what I'll do for shits and giggles around here. I may have to go job hunting again.
they dont put a guard in your mouth??? they always did for me. before they put the stuff in the IV to put me out they put a mouth guard in to prevent me from biting anything. Stupid thing used to gag me and I would have to ask each time that they wait til the very last second........but it was effective, I dont remember having anything bitten, of course I dont remember anything at all LOL. But I was never told about any bites. You should ask about the guards
I stumbled onto your site by accident, and I've spent quite a while now, reading about your experiences--I have always wondered about ECT and whether it would help my DH and what it was like. From reading your blog, I'm getting a better idea. Thanks very much!
I had a treatment Friday and then we went to Walmart. I don't know if we went Friday or Saturday, but I would not suggest doing this at all. If you are planning to have shock treatments any time soon you should probably avoid Walmart for five to seven days afterwards. That is my Tracy Shock Treatment Tip for the day.
LTD & I were strolling through the frozen food section looking for petite quiches when all of a sudden...and I mean like a hammer dropped...everyone looked familiar. I wish I could convey how utterly disturbing this is. Of course you know how annoying it is when you see one person in public that you recognize and you can't quite place them....did you go to school with them? Do they shop at the same grocery store as you? Is it your neighbor? Your landlord? Your banker? Your candlestick maker? Now, do that with every fucking person in the store! And this is not something you can just shake off. You don't just say, "Okay, this is a side-effect of my shock therapy" and skip on your merry way. At least I don't. It becomes important for me to figure this out. It doesn't matter to me that there is a very important reason why these people aren't recognizing me. I just know that I know them from somewhere.
Dr. K once told Kim that this phenomena was a symptom of mania, but he was wrong. It's a side-effect of ECT. I think I may have mentioned this before on this blog, but I had a patient recently who went through the same thing--recognizing other patients on the unit as students of his when he taught school (forty years ago). I told Dr. K's colleague about it and he expressed some interest in it and even asked me to do some initial research, but I got sick. Man, if I was a psychiatrist, I'd be all over this.
Is there some pathway in the brain that ECT is opening or lighting up that makes people more recognizable? Is it possible that people we pass by in crowded malls and on streets (even for a split second) that we believe we'll never see again we actually do see again?
Spencer is taking an honors biology course in school this year and every day I pick him up from school he tells me something amazing. The other day he popped into the car and said, "Did you know if the human eye was more advanced that light would look like rain?"
the othe other wird thing is when you have so much memory loss (depression, meds, ect) that you have total strangers coming up, addressing you by name, and you have no idea who the fuck they are. High school? Nieghborhood? Work? Camp? Mental Hospital?
Everyone who I know who has gone through ECT forgets people. I remember one patient when I was locked up with whom I had a delightful conversation before she was shipped off. When she came back, she didn't recognize me.
Keep safe and know I am thinking for you. Swing a rubber chicken for me: I am starting a new DBSA chapter and we meet tonight. So far no people....
(Walmarts have a frozen foods section in your part of the country? Wow.)
Maybe you really haven't ever seen these people before, but ECT opens up neural pathways that make us yearn to connect with people. Emotionally, what makes us want to place familiar people? I think it has something to do with wanting to belong, to have a meaningful connection with our community. Weird and frustrating as it might be, that's a neural pathway I'd be in favor of opening in everyone.
I think the recognition thing is a part of mania too. I get these bouts of "i know these people". It;s almost a paranoia feeling and I swear that everyone knows me too and that they are all talking about me. It becomes very urgent to me to figure out who everyone is and what they are saying. It's a horrible feeling.
I love your blog--discovered it a few weeks ago. I just got out of the psych unit a month and a half ago and now am on leave from work and everything else. probably won't be going back anytime soon--got myself into some legal trouble because of a manic episode.
Not only does your blog describe what its like for us bipolars, it makes me laught out loud. thanks for sharing your life with us out there. I'm trying to get my husband to read it, so he can kinda see what it's like.
it seems as though my mind isn't as "crisp" as it once was. probably all due to all my meds. feels like slogging through marshmallow. I miss my racing thoughts. And feeling good/high/invincible.
Hey Tracy, how's it going? Anyway, my thoughts are, the brain is such an amazing thing that I have no allusions that 500 years from now, they will still be trying to figure it out. And still not be getting it right.
I've witnessed enough strange stuff in "sane" life to NOT discount any of the possibilities that have been mentioned.
But I know that creepy feeling you are talking about. The meds they had me on for my injury had me holding complete conversations in my head then getting mad at eveyone (in real time) when they acted like they had no idea what I was talking about. Mostly cause they didn't.
I kept my mouth shut for almost 2 weeks to KEEP from going crazy.
Hope it get better for you soon. And give LTD and Spencer huge hugs from us all. That kid is cool.
Being disabled has never applied to me before. At least, I never let the word wrap itself around me like a snake and push out all the air. And I guess it doesn't now, except that I'm letting my perception of its meaning grasp me around the middle and make me gasp for my life, the meaning of my life, the purpose of my life. I can't work. I can't even get through a simple interview. My doctor won't release me back to work and even going behind his back, sly as a snake and thinking I'm so big and powerful, I end up getting crushed under the guises of my disease, left sweating it out like a junkie on the rebound of withdrawal, outside in my car with all the windows up, shaking, sweating, jerking out my embarassment, grabbing at my face, only able to anchor myself to reality by snatching a fistful of my own hair and saying out loud, "Shut up, you fucking asshole. You're not dead. You are not dead."
In a way I am. Going outside is getting more and more difficult. I take Spencer to and from school every day. Those are my excursions. I pass by the same landmarks every day, on the same highway, past the same car dealership, past the same McDonald's, over the same hills. I can see the same buildings of the city rising above the trees on the way back. I could make the trek with my eyes closed. One tiny little deviation off the main path, however, and my blood pressure will rise. My pulse will quicken. I will have to start paying attention. Mailing a letter, picking up a gallon of milk, paying a bill, having the car inspected....these things will instigate that small tic in my left eye, the twitch in the corner of my mouth, make my head bobble slightly...by the time I make it home I'll be a ticking fucking time bomb.
This is precisely why I am in the condition I'm in by the time I make it to my doctor's appointment. The hospital is like a small city. No, not like. Is a small city. There are three different parking lots. There is constant movement in each one. Always. Pulling in and pulling out. There is bottlenecking, breaking down, hesitation. Sometimes people just stop to watch the helicoptor take off or land from the chopper pad. The spaces are very narrow. The cars are too close together. By the time I get to the elevator, I'm half out of my skin just from the whole parking experience.
The elevator is an experience unto itself. There are four, but they are all very small. And no matter the day or time, you will be on one with someone in a wheelchair or with someone pushing a stroller. It will be tight. If you have problems with people being too close to you, it will be a harrowing ride to say the least. For me, I have to get in the very corner, (no matter if someone is already there, I will ask them to move), and I will face the corner and hold my breath all the way up. And of course, I have to go all the way up. And the elevator will stop at every fucking floor to let more and more people on. Ironically or not, I am usually the only one getting off on the 8th floor, Psychiatry, and then the real fun begins. This is when I start seeing people I've worked with, doctors I've seen on the unit, or patients I've treated. But what pisses me off more than anything is the fucking waiting room. It is very tiny and the chairs face each other about two feet apart and I just refuse to sit in them. So I pace in the hallway until Dr. K comes out. And what he sees is me pacing in the fucking hallway with my little slip after I've braved it out through the fucking parking lot and the elevator and the waiting room and the first thing he asks me is how I'm fucking feeling.
I really need to learn how to not say the first thing that comes to my mind. I need to learn how to keep my opinions to myself. I need to learn how to hold back, lean in, wrap around. I need to know how to expand out and about and unfold gently, without aggravation, without tension. I need softness. I need light. I'm no tiger. I'm no evil enchantress. I need a disguise. ECT is scheduled for Friday.
I just read something about these situations-maybe it is stupid, maybe not, but I often feel the same as you and Im gonna try it. What I read was that when you feel that way to focus on going "limp" literally. Try and make your body go limp. Its supposed to help-give it a shot. If it doesnt help then throw it away.
Dara, if I didn't completely trust my doctor, that would've been an excellent suggestion (as usual). But have you seen the size of Duke? UNC? If my hospital is the size of a small city....oh. my. god.
WOW! Your blog is quite amazing and I am glad I have found it. Your writings are great and I love your style. I so can understand some of the things you go through. I wonder how we make it each and everyday. What keeps us here?! My children, I must say. Thank you for your writings and me knowing other people are out there with the same situations as me eases the hopelessness. Again, thank you.
QueenB
The big joke in this house is that I have a boyfriend named Daniel, who happens to be a chaplain, who happens to be married and that I happen to be a lesbian. That's a pretty big joke. Even Kim said on the phone one day, "C'mon Trace, everyone in the blogosphere knows you have a big fat crush on Daniel." I'm not sure why we have to label these sorts of attractions women have for men, feelings a woman might have for a man that go beyond the usual friendly feelings crushes, but we do. It's another example of fitting something aberrant or unusual into a box that we can close a lid on, satisfied that it fits somewhere in our psyche.
I could actually say I'm in love with Daniel, but not in the traditional sense of how the populous might perceive that concept. I'm in love with him in the sense that he is a man that I can open myself up to, pour out little secrets that I don't share with anyone else, not even with my partner, and unfold mysteries about myself right before his face without fear that he will be appalled at my insanity or my ugliness. It was the same way with the Lioness. I was in love with her too. Maybe "in love" is the wrong term. Maybe what I really want to say is that I love these people unconditionally, if that is possible to do on such a surface level. I mean, I don't know Daniel outside our coffee talks, outside our experiences at work. I didn't know the Lioness outside of work, beyond the confines of our therapy sessions. How was it that I developed such strong feelings for these two people immediately and not with other people that I've liked and known for years?
Another example is Dara, who comments here and whose advice to me is golden. I've met her. I've hung out with her a few times. At best we were acquaintances, but her aura, her essence, burrowed under my skin and became a part of me as if nothing in the physical world could stop it. Perhaps that's it.
Nothing in the physical world could stop it. Maybe these are people in my soul group. My first girlfriend said people were always so focused on finding their soul mates they hardly paid attention to the people in their soul groups. When I asked her about that she said, "There are people that come into our lives for a reason, to teach us something, to steer us in a direction we wouldn't normally have followed without their lead." While I never paid much heed to soul mates, I did believe, and still do believe, in soul groups.
I have a small collection but the ones that belong there are some twisted mother fu...are quite warped, lemme tell ya. I always knew, from the very beginning, that some member from the American Psychiatric Association would end up being a part of it, but never someone from the Cloth. It boggles the mind, doesn't it? Dara is there. Susie is there. There are others milling about. And though all but one are still alive, when I've backed myself into a corner I imagine them all sitting on a wall above me looking down as if from some high, holy place saying things like, "She'll backtrack and take a left," or "I think she's gonna punt," and "She'll be okay if she just does nothing right now."
And then there's my boyfriend, the chaplain, who would say, "Be still. Breathe. I'm praying for you," and then under his breath, "I know she's gonna blast outta there like her ass was on fire."
LOL... I totally get what you're talking about! I, too, believe in "soul groups" --though I have always thought of these collections of characters as "family of choice" because our relationships are familial. We love each other, agree to disagree, sometimes have our falling outs, or time outs, but always, always, ALWAYS, even if we don't talk for months or see each other face to face for years, it's as if we're never that far apart.
I too always thought of them as families of choice, but I like the way you put it "soul groups" I've never thought of it that way before. Its a nice concept
Hey! My buddy Giacomo is a man of the cloth too. Never really thought about it the way you put it, but since in another life, I was an office wife for the sales force I managed, why not hang with the consecrated kids?
I enjoy his company and he always says something I don't expect. He's a good read on character and has a phenomenal BS meter.
Friends like that are worth their weight in gold, platinum or the precious metal/object of your choice!
I woke up in a very, very mood, as Pooh might say. The light was too harsh, the birds were too loud. The dog was too white. The cat, too black. The kid was up and ready for school, which annoyed me for some reason. LTD left the coffee on for me and I drank copious amounts. I had a pounding headache. Nothing good was going to come from this day, I suspected. I didn't suspect, however, that terrible things would occur, with no warning, and things would transpire over which I would had no control.
My disability ran out. Poof. Just gone. Long-term is not scheduled to kick in until mid October. I don't know how they expect people to get from one point to the next. How do you feed a 14-year-old on nothing? I haven't finished paying this month's rent. How am I going to pay the next? The system, folks...it's not so good.
The Great and Powerful Oz...wasn't so great and powerful, was he? And neither am I. I have a brain. I have a heart. I have courage. I just have to find my way back home. How am I going to accomplish that if I can't get my prescriptions filled? Things are about to get pretty interesting over here, folks.
If they have approved your SSDI, then you can get SSI to fill in the gap. Its not much but its something.Just be sure and tell them that LTD is a ROOMATE, not a "life partner". I dont know for sure how it works with same sex partners, but if they think you are opposite partners .........Actually not so sure bout that. But they ask. It used to be you could only have problems if you were married. Now they ask if you are a "couple". Which is none of their damned business actually. Anyway......you case is in progress. You might be able to get SSI. Call em. A little is better than nothing.
There's also something called "general relief" that covers gaps like this. Check in with your local social services agency and see what they recommend. They may be able to refer you to some privately-run charitable organizations that will help you bridge the gap. Most of those kinds of groups require a referral from a government agency or the Salvation Army (or similar group) because they can't afford to do their own intake screening and case management.
Oh, and about getting the Rx filled... check with the drug companies that manufacture the drugs you are on. Most now have programs to provide free or reduced cost drugs to people who cannot afford to pay.
Call your local Social Services office right away. At the least, they will give you food stamps and there are many other programs the social workers can help you with that you would never be aware of on your own. (housing assistance is sometimes one.)
Your local office is:
Dept. of Social Services
741 North Highland Avenue
Winston-Salem, NC 27101
(336) 703-3400
(336) 727-2850 FAX
If I got my search terms right, your state-funded mental health clinic is:
4265 Brownsboro Rd
Winston Salem, NC 27106
(336) 896-7056
I use my local clinic to get my meds. They are great, at least in the short term, though I am currently "on hold" because I can't seem to get the VA to admit they have denied me service.
At each of these places, ask the question, "Do you know of any other programs that might be of help to me?" You'd be amazed at the results that question, asked over and over of EVERYONE, will get you.
From a guy who's been there, time and time again, a few more suggestions:
Sit down with your landlord or property manager and give them the straight skinny. You'd be surprised how many people I know who have gained concessions such as reduced rent and/or deferrment in easier circumstances than yours, even with corporate companies. If they kick you out, they have alot of work to turn that apartment around and re-occupy it.
Ask your current doctor and/or the clinic if they have samples in the closet. I took Seroquel for over a year from the sample closet at the clinic.
Talk to the pastors of your local churches. Even if you are not a member, they will often help. I've not attended services in 27 years, but I've received food, clothing, and psych couseling for free by asking for it from pastors of churches.
Even the disabled can work SOME. (and SSDI allows a max of $900/mo during the application as well as after the benefits start) I've been periodically disabled my whole life, and am currently disabled, but I make too much to qualify for disability. Call the temp agencies and get listed with them. Include every possible skill you can. (they usually ask you to go through a checklist and it will include things like "janitorial" (cleaning... everyone checks that) "typing" (bet you got that one) They don't hold it against you if you turn one down... sometimes they'll call you an hour later with another.
Grocery stocking: ALL grocery stores are short-handed at this. It's night work, but you have little contact with people, perfect for a bipolar. All you have to do is take cans out of boxes and put them on the shelves. Just walk into all the grocery stores around, you'll find something soon, and they are a bit flexible with number of days and precise hours you can work.
These are just the ones that come to mind immediately. I've weeded gardens, swept lumberyards, delivered newspapers, cleaned gutters and washed windows, to name a few things; all while mentally ill to the point I couldn't work a daily job.
I hope this is more helpful than harmful, and not overwhelming.
NO do not start working. Not now. That is for people who have already started their social security, not for those still in the process. I would not advise it. And the $900 a month figure probably depends on how much you get etc etc etc. You can ask your doctor about calling the drug companies numbers and asking for the free drug programs tho.They can deliver medications free to your doctors office. If you start working now you risk having to start the whole process all over again and your case is totally justified hun. It would be foolish to risk your benefits when they are so very close and you have been thru so very much. Especially over a penny ante job that you are probably not going to be in any shape to keep. Dont do it hun
Everyone: I work in a hospital and also run a support group/retreats for survivors for sexual abuse/incest/rape/physical abuse, etc. I am very familiar with the disability process, as in Colorado we help assist people with getting onto disability and/or going through retraining or both for a new career.
However, in NO WAY SHAPE OR FORM, even if you get offered a job licking stamps on an envelope and you can do this lying down in your bed - DO NOT DO IT, as they will utilize it against use. They will also utilize it against you if you say that you WILL NOT DO IT, just take it, try it, and say that it makes you hurt, gives you migraines, makes your OCD worse, etc. This is not lying, as it will make you feel worse, it will make you feel like you are a MORON in a world where you used to be productive, but the system has made it this way. So anyway, if you have any questions, please feel free to email me or contact me at Myspace.
I had to utilize the disability system for two years back in the early 1990s, as my bipolar was unmedicated and I was crazier than a loon - yes, I can say that about myself, but now I hold a full time job, also run a transcription company, and in my off time I hold retreats for survivors. I love my life and I really honor you doing this site, as I know the HORRENDOUS STIGMA that you must have felt with your mental illness and getting back to work. I too had to return to work after a suicide attempt, then an unintentional side-effect overdose, and well, I actually received tons and tons of support, but I know how rough it can be and I honor you, I honor you all. Again, if you have any questions to ask, please just email or message me.
A lesbian psychiatric nurse who has bipolar, “Crazy Tracy” depicts life from both sides of the gurney. Her blog is personal, emotional and powerfully written. With severe bipolar I, Tracy is often hospitalized or recovering from an episode. Her descriptions of manic perceptions and depressive despair are harrowing and real. Unusually (at least in the blogosphere), she’s a proponent of ECT, having undergone many courses of it.
Top Ten Bipolar Blogs and Me Excerpt: Congratulations to Crazy Tracy for ending up in Psych Central’s Top Ten Bipolar Blogs! She deserves it!
I am not so sure about Been Broken being there. I went to that blog for months and in the end I concluded that all his work sounded just one... Weblog: Pax Nortona - A Blog by Joel Sax Tracked: September 12, 2007 04:22 PM
This has inspired me to start blogging about my irritable bowel syndrome in the hopes that I will be selected as one of the top 10 bloggers on IBS. I think I'll start by describing my flare-up last Thursday night after an unfortunate overdose of spicy hot wings.
Daniel, I think you *should* pour out your struggles with IBS. I think you should let loose with all the gory details. Don't hold back. Let it all go. Just open the floodgates.
Hehehehe... good on you, Tracy! :) Daniel, I agree with Tracy: when your IBS gets your knickers in a twist, you really should spew about it on the web.
I had to see another psychiatrist for the Disability circus. The appointment was at 5:40, so I knew it was going to be rushed and half-assed and led by someone who was tired and wanting to get home. I had no idea it was going to be like speed-dating. I could barely understand what she was saying. Her name was Dr. Chukameanuckasakalama. It went like this:
Dr. C: Do you know what day it is?
Me: Yes, Tuesday.
Dr. C: It's Wednesday.
Me: Oh. (I really thought it was Tuesday. I've been off a day all week.)
Dr. C: Spell "world" backwards.
Me: d-l-r-o-w.
Dr. C: Are you sleeping at night?
Me: No. I go to sleep at midnight and get up about 3 or 4 a.m.
Dr. C: Count backwards by 7 from 100.
Me: (I couldn't do it. I never can.)
Dr. C: What's the capitol of this state?
Me: Raleigh?
Dr. C: If you found a letter with a stamp on it, what would you do?
Me: I'd mail it.
Dr. C: Okay, thank you for coming.
There were many other probing questions, but that's about the gist of it. Fascinating, no? I'll bet, based on this, I'm really going to be getting that disability!
By the way, the jail called. They offered me the job. What would you do?
that sounds soooo ridiculous to me. Those are the same questions they asked a friend of mine. However, being able to count does not mean you are able to work. I think that is the dumbest test in the world. I can count. I can spell. Most of the time I know what day it is. Can I work a full day without bursting into tears? No. Can I sleep a full night seven days in a row and get up at the same time every morning having had a full nights sleep, thereby ensuring mental stability thru-out the workday? Oh HELL no!! Can I take construction criticism without flipping out? no. Stupid Stupid test. Makes me wanna yell . I'm CRAZY Not STUPID!!!
I would try the jail job for nothing else than further proof that I am trying and not ble to cut it. Of course you have to consider that it could jeopardize the temporary disability and set the process back as well. I think ultimately I would entrust the decision to ltd.
You were given the Mini Mental Status Exam (MMSE). It is used to test your cognitive status. Dr's often use this on people who have had ECT.
Having read several of your posts I note several cognitive problems and would suggest you consider neuropshychological testing. It will almost guarntee your disability to go through.
However, almost everyone who has received ECT gets SSDI first go! It's known to mess up memory and thinking. ie, unable to count backwards, getting lost in familar places, forgetfulness, orientation problems, unable to recognize people you are familar with etc.
good luck!
I'm caught up. I've been reading here for a few hours now, and you've made me both laugh and cry, caused me to find a glass of water and smoke a cigarette... You inspire not only fear but hope... Tears of both joy and sadness - your church story was especially moving..
I'm writing to you in your contact form this time with hopes you won't approve the comment.. I wish I could speak with you and just talk - I'm lost - I'm anti medication and I don't know how to move forward with my life ... That requires some backstory in itself, but the gist is that I was on lithium for a while and I didn't like how it numbed me, so against doctors orders I 'tritated' my dose down to nil (that's the right word, right?)
I've been off meds for some time, but I'm finding my life situation isn't a healthy one - between a roomate, financial trouble, and a drug addiction, I'm left not knowing where to turn... You however, have re-established my faith for the medical profession... That ALSO requires some backstory, but I feel like after reading all your tribulations I'm less scared to make a long-overdue appointment with the psychiatrist I was seen by last year during my "time-out", if you will...
I feel close to you, and not in that creepy stalkerish way, but in the way you come to love someone for who they are, even though you don't really know who they are.... I'm 25, which I've mentioned already - I'm also a pisces, and the way you present yourself in your writing reminds me of how I'd like to be able to project my own persona - Truthful and without bars - I just feel that to protect myself, that may not be the best approach...
To be honest, I don't even know why I'm up - I'm an ENTP personality type, and I have an addictive personality. Pair that with the over-emotionality of being a fish and you have yourself a blended concoction fit only for the best of the medical profession....
So with that I'll leave you, hoping that all is well in your world - You've had some tough times over the last couple years, to say the least... I'm glad you still talk to Kim - Your "Personal Insanity" section (which was all I read btw) doesn't touch base on that point, nor is it my business, but I'm happy you have LTD, whatever the acronym means - I myself am searching for that solace to feel less soul-less.. I've been fighting off depresssion ever since me and my ex girlfriend broke up in fact.. Over a year ago now... I feel so incomplete without her, but alas, I ramble.. I'm not turning to you with hopes of internet psychiatry, rather, I'm extending a hand as a cyberspace random with hopes that maybe you could answer a couple questions I have about my own past experience.. You ARE a RN, and it appears you've walked thi BP path a tad longer than myself... I'm trying to make sense of what I've 'seen', and it's been a quest running 7 years now.. so - on that note, if you feel up to it, I would enjoy an e-mail from you with hopes that you're open for conversation...
you have my contact information - I eagerly await your reply. Congratulations on the blog award by the way. That's how I stumbled upon your site.
Best regards, and hang in there... Apparently it gets easier (so I'm told.. what the hell do they know though...)
-- J
(I just re-read my comment, and it's not 100% as specific as I'd like it to be, but it's late, and I'm on a majiggered laptop which makes editing a pain - I'm sure you understand... any clarification would be gladly delivered in correspondance [SP])
And the Lamictal goes up, up, up as the mood goes down, down, down. Be quiet, be still, be complacent and compliant. Just be. Just hush. If I knew the mystical placement of my feet, the exact motion of my arms, the perfect tilt of my head, and of course, all the right answers, I would get there, and present that self to all the powers that be and not have to down these pills.
But could I, really? Isn't that what got me to this point in the first place? I was dancing too fast. I was twirling too close to the precipice. I was spinning out of control. But whose precipice? Whose control? What a shining moment of aberrance it is when you are singled out, when the spotlight hits that piece of you when you have fallen off your guard. There really isn't a place to hide when you're the only one on the stage and you're making the most noise, when all eyes are on you, and the very act of trying to appear normal is making you look more crazy than ever.
The Lamictal increases tonight. It will double in dosage. It will knock me for a loop. It will make me stop thinking that I'm going to write an Oscar-winning screenplay and go on the Oprah show. It will make me stop thinking that I'm going to go to rowing camp, become a world-class rower and be the oldest member of an Olympic rowing team. It will make me stop believing in fairies. It will make me stop believing.
I hate my pills. They make me furious. I hate that I'm enslaved. I hate that they control my thoughts and feelings. I hate that I have to swallow such poison so I can meet some conventional definition of normalcy. I hate that if I stop taking them, I become engulfed by a world that exists only to me. I hate the abyss with its bottom of black nothingness, with its seductive suicidality.
So it isn't really the pills I hate, is it? It's the disease. I got that just now, writing this. It's the fucking Bipolar. Dr. K once said that. "Hate the illness." I didn't get it then. We're killing it now, you know. With every increase in medication, with every addition of a new pill, we're killing it. But while we're knocking out the racing thoughts, the dangerous behaviors, the rapid mood swings, we're also killing off the creativity, the impulsivity, the flying through on the tails of brilliance.
If I were to mention the two best pills that have been prescribed for me, one is Risperdal and the other is Lamictal. The latter was what really took the beast out. Watch out for new manic outbursts....
I hate the word normal. I never feel normal based on the accepted definitions. What's so fucking great about normal anyway???
Ok, done ranting. Now for my question.
If the disease is killed, does creativity become a casuality? Because I gotta tell ya, I'm not seeing that with you. I still think you're just as wonderful and creative now as you were the day I "met" you all those years ago.
I'm glad you're getting it about hating the disease. Cancer patients complain about what chemo does to them, but it's the cancer that we hate.
I also have to agree with the previous comment; I haven't seen evidence of the death of your creativity. I certainly don't want to take away from your experiences of frustration, but you still seem capable of writing a brilliant screenplay. If you ever doubt that, think of "Kangaroo Jack." Seriously, "Kangaroo Jack." Some dipshit greenlighted that. And you're worried you are losing creativity!
Question: exactly, what is "normal"?
Answer: I dunno.
Second question: Does anybody really?
I think your creativity and impulsivity are a natural thing and not to be messed with by the meds. And the "tails of brilliance"? Knowing you, if one set vanishes, you'll just go find a new set.
Duh-HUH! It's the Bipolar, stupid! Yes, yes, YES, it is. And it's such a sly mo-fo as to want to make you think that IT is responsible for your creativity, is at the roots of it, controls it and doles it out. HA. You do know better.
I'm not arguing that the meds are an easy answer. I am arguing that life with them is more of a life to share with others than life without them. We can't keep up; maybe that's not our fault either, but it's much easier being your friend when you know where your head is. The meds make it possible for you to keep your head where your body is.
I was diagnosed (at 46 years of age, in my white collar world) as Bipolar and started on Lamictal 6 weeks ago. I feel like Dorothy on the Wizard of Oz...I hope it works.
I hope it works. I hope it works.
I hope it works. I hope it works.
And Depakote made my hair fall out....by the handfulls. I couldn't help it. I would just sit and pull out fistfulls of hair. It was quite relaxing actually.
I'm right there with you. When I began my regimen, Lamictal being the main med, I quickly saw some sort of death of creativity. Now slowly I'm trying to bring it to life again but I doubt it will ever be what it once was. It's still there but it's so much harder to see.
I skipped the meds for a while and man did I feel alive. Yet I quickly knew precisely what would happen...
Applying for disability benefits is like jumping through hoops of fire with your ass already alit, blindfolded, doing flips, backwards, while dodging poison-tipped darts. That's applying, not getting. There are a thousand forms to fill out. The phone calls are endless, sometimes daily calls from your case worker. There are release forms to sign and fax. There are doctors to see and exams to undergo. There are numerous mazes to navigate. If LTD wasn't keeping on top of it all, I would've been turned down already only because the paperwork is too much for me to handle sometimes. "Go here, go see this person, sign here, initial this, send this, fax that, go there, be there at this time, track back, call your doctor, have him fax the notes from your last visit to this number, get a list of your meds, call the Partial Program, find out the date of your last shock treatment, go here, see this, be there, give three tubes of blood, piss in this cup..."
Fact is, I don't want to be on fucking disability. I want to write a fucking screenplay. Do I know how to do that? No. But lots of people who can't even write have written the stupidest fucking screenplays that have been made into films. Look at "Blades of Glory." What the fuck was that? I could do better than that with one eye tied behind my back.
I don't want to be on disability, but it seems I'm the only one who thinks I shouldn't be. It seems I'm the only one who thinks my good days outnumber my bad ones. It seems I can't discern my own fucking mania.
"I don't want you to have to go back into the hospital again," LTD said today. She may as well have said, "I don't want to have to kill you." At this point in my life it will be like getting on a bus with no destination. I will have to refuse if it becomes an issue. I will have to leave this place. I will have to run. I will not go back in.
And I guess I will have to be suspicious of the intentions of others--of my friends, of my doctors, of my family, of my lover. I am a psychological suspect again--everything I do is being held under the mental microscope. And if I reign it all in, I can't breathe. I never was good at keeping secrets. I talk too much. I blog too much. Spencer is too astute.
So we wait. LTD holds her breath. I interviewed for that job at the detention center. They said it would take weeks before the background check came back. I am hopeful. [I side-stepped Dr. K's refusal to release me back to work at the hospital by applying somewhere else.] And LTD hopes we'll hear something from Disability before I hear anything from the jail. We're like two old prize fighters, circling one another, still sizing the other up. I wait by the phone. She practically lives in the mailbox.
I love her. I understand her. And like everyone else, I know she is just adding up the few months I'll be at a new job before I totally crack up and have to go through this shit all over again, but fuck, am I suppose to live my life waiting for the next fucking meltdown? It's so damn tiring. I'm so tired.
I think the Congressional representatives who devised this system should be made to go through a steeplechase of bureaucracy to receive their paychecks -- every week. And the papers will have to be filed by them ~in person~ at the payroll office which is located in Nome, Alaska.
Take a look at this type of counceling.
http://www.theophostic.com/
You can see a video session of it right on that website.
After 20 years of psychiatrists, psychologists, I went this route.
I learned more about me in 3-6 months than I did the previous 20 years.
Anne...thanks for the link. I did check it out, but any kind of prayer ministry turns me right off. (I had a horrible experience as a child during my Baptist upbringing.) And to be honest, I don't think I want to know anymore about myself than I already do. I think this is as much as I can take. I wonder, is there a breaking point? Hmmm...
Tracy, Just wanted you to know that I'm thinking of you and I wish the very best for you - whatever that turns out to be. I'm very glad you have LTD in your life, to help you through the maze. And damn those bastards to hell - who made the system so difficult for a person who needs disability - whether for the short term or the long - to get it.
Your writing is honest and beautiful and good. And so are you. Please keep writing.
It's a shitty system. A friend waited almost 3 years to finally get approved--and she has two giant titanium rods in her back, ferchrissake: no way was she going back to her previous line of work as a paramedic and no way was she going to be sitting at a desk 8 hours a day. Then my ex, who has MS with lesions in her brain that affect her thinking and her vision, got it right away, no questions asked.
Lesson learned from their experiences: If you can, get a lawyer who specializes in disability law. You can go through the local legal aid society and not have to pay any more than you can afford (which may well be nothing, at this point).
It seems these days you can't say anything without offending some person, group or faction in the world. We're so afraid. I'm so afraid. Maybe we need to be scared. Who's to say? This was one topic of conversation I had with Daniel, yesterday at Borders, whilst sipping a cool and creamy vanilla mocha caramel frozen java concoction. Yes, I went out into the world again and socialized. I tell ya, I'm getting BRAVE!
I don't know how we stumbled on it, but I think it was Daniel who used the term "African American" that I jumped all over. I hate it. I hate that we distinguish between people of color, whether that color is black, white, tan, red, brown or yellow. And if we're going to do it, we should do it across the board and distinguish everyone by their ancestral background. Call me a German-American. I'll call Daniel "that Scotch-American Chaplain Guy." We're doing it with Asian-Americans pretty consistently now. Let's beef it up and do it with everyone...or not fucking do it at all. Let's call each other what we are...AMERICANS--unless you really are African or Asian or German and are packing a green card. Is this so very un-PC? Or is this as PC as it gets?
Oh man it was good to get riled up. It felt so good to feel my blood move rapidly through my veins. We talked about movies. We talked about how "Shindler's List" changed us. We talked about music. We talked about work. We talked about paper clips. (This was actually in reference to a film Daniel saw called "Paper Clips" about a teacher who was challenged by one of her students who said he couldn't conceive what the execution of six million Jews looked like, that six million was a number that was just too large for him to consider. The teacher suggestion that they collect something that could represent that and they decided to collect six million paper clips. This began in a rural country school and spread far and wide and Daniel and his wife cried like babies throughout the entire film. I haven't started looking for it, but I'm sure it's going to be a hard film to find.)
These coffees...yesterday, and last week with Wendy, make me feel so sane and grounded. It's more than the connection with another human being. It's more than that. I have that with LTD and with Spencer. It is the express purpose of delving into the psyche, reaching down and finding words to describe what and how I feel about something. They are touchstones for my sanity that anchor a piece of me to the fact that I'm still here. I feel as if I've accomplished amazing feats, like I've done a back dive off the high board...like I've swung upside down from the trapeze with my eyes closed, my arms out, free and wild. It may have looked like we were just sipping coffee. But it was so much more for me, grappling in tangled vines for one shred of normalcy for so long. I leave, I walk away, overwhelmed that I pulled it off...and I smile all the way home.
So I dedicate this to Daniel, who is, without a doubt, the coolest man of God on the planet, and whom I love for sticking by me when it would be so much easier to just walk away:
From the Impossible Dream CD by Patty Griffin
"When It Don't Come Easy"
Red lights are flashing on the highway
I wonder if we're gonna ever get home
I wonder if we're gonna ever get home tonight
Everywhere the waters getting rough
Your best intentions may not be enough
I wonder if we're gonna ever get home tonight
But if you break down
I'll drive out and find you
If you forget my love
I'll try to remind you
And stay by you when it don't come easy
I don't know nothing except change will come
Year after year what we do is undone
Time keeps moving from a crawl to a run
I wonder if we're gonna ever get home
You're out there walking down a highway
And all of the signs got blown away
Sometimes you wonder if you're walking in the wrong direction
But if you break down
I'll drive out and find you
If you forget my love
I'll try to remind you
And stay by you when it don't come easy
So many things that I had before
That don't matter to me now
Tonight I cry for the love that I've lost
And the love I've never found
When the last bird falls
And the last siren sounds
Someone will say what's been said before
Some love we were looking for
But if you break down
I'll drive out and find you
If you forget my love
I'll try to remind you
And stay by you when it don't come easy
I'm so glad people of God can still be cool. And, truthfully, I do prefer being referred to with the title "man of God" to my ethnic descriptive title "Scottish-American" (although I whole-heartedly claim that).
When LTD and I picked up the refill for my Geodon, they only had 20mg tablets. I have to take 180mg at dinner. 180mg. As if I don't already take enough fucking pills as it is. Nine fucking pills at a pop. If I took all the pills I'm supposed to take on a daily basis at the same time, I wouldn't have to eat anything. It would be a meal in itself. But the taste of that Lamictal would distinguish itself among the others. It is a bit like chalk laced with battery acid. And it's shaped funny, so it sticks. If I don't choke on it, I have to drink and drink and drink to get it down. The Metformin is about a foot long. And the Chantix makes me sick as a dog. Pill time around here is so fun, lemme tell ya.
Last night I had resolved never to take another pill in my life. After taking the handful at 10pm, it took about 20 minutes for the nausea to start, and then on top of that, a slight pounding began at the base of my head. After an hour, I was in the throes of nearly vomiting and was unable to open my eyes because of the pain. It wasn't a migraine--I've had one before. It was the pills trying to kill me. I didn't want to wake up LTD, so I went to the couch and balled up. Spencer applied cool, damp paper towels to my forehead and gave me sips of diet Coke. And the room spun and tipped me over and turned me round and round. If they're not giving me diarrhea, I'm constipated. If they're not making my mouth dry, I'm spitting when I talk. And the best part--they take turns keeping me up all fucking night long or making it so I can't wake up all, day or night. Every once in a while, my body just freezes up. I can't move my joints. I can't bend my elbows. I can't move my fingers. I can't turn my head to the side. And at the worst possible times, I lose my expression. Or rather, it looks like I just don't give a shit.
This morning, looking at the multicolored pills in my hands with a leery eye, I knew I had to take them. But I took them through tears. They own me. I am their slave. I took them and waited.
So far, nothing. A little nausea. We will see what dinner brings.
Hmmm. I've never tasted Lamictal. I just throw it to the back of my throat and slurp it down with a cup of water or milk. Those Metformins ARE horse pills, as are the blue and green Cardizem.
Geodon really threw me for a loop. Made me sleepy until 1 or 2 in the afternoon. I was continually fighting to stay awake and I found that the best way to do it was to throw myself into a panic attack. After switching to Tegretol and Risperdal, I called it the Geobomb.
I don't know about the pills themselves but the regimen and the insistances of my doctors enslaves me.
Lamictal and coffee. That is the only way I can get the stuff down. For me the coffee drowns out the taste all the way...
Holding good thoughts for you
Geodon at night. The best thing in the world for me. Lamictal with cold milk. The combination hurts going down, doesn't it? I cry almost everytime I take my medication, Tracy. I often wonder if it makes me more depressed than I was to begin with.
I have been a virtual prisoner inside my own home, going out only with LTD or with Spencer as my chaperone. It has been days--I don't know how many--since I left the apartment alone, but I purposely made a coffee-date with my friend Wendy at Borders to force my hand today. She knows about some of the things that have been going on and was wise enough to call at noon to confirm. "I'll see you at Borders? At 2:00? We're still on?" Yes. I was determined. And I did go. I didn't even think about it. Right up until the moment I had my keys in my hand and was out the door.
The lump in my throat just popped up the second I turned the key in the ignition. There was no real danger except that I was staring. I shook it off and put the car in drive. I managed to get to Borders without having another staring episode, but halfway there, my lips stuck together. I mean that literally. It took effort to pry them apart. I could also feel my pulse pounding on the tops of my feet.
In spite of it all, I was doing fine. Then I got lost. What was strange beyond the fact that I have been to Borders a thousand times and should be able to find my way there blindfolded was the fact that I wasn't freaked out about being lost. I just kept turning down streets and driving. I just turned and drove. I ended up getting there the back way off the Interstate ten minutes late, but I got there.
I caught Wendy checking out Angelina Jolie on the cover of In Touch magazine. We each had--hmm, now I can't remember--but it was a cool concoction of vanilla, caramel and whipped cream. And we talked and talked about everything under the fucking sun and I didn't stare once. I asked her if she found me "strange" or "crazy" and she said no. I've chosen to believe her even though I felt strange and crazy and weird. My eyes felt big again. But at the same time, it was sublime to be sitting there, in public, sipping that chilled coffee and engaging in the exchange of words with such an intelligent woman. She is a helicopter nurse who works at the same hospital where I'm employed (or not employed...not sure anymore). I always think "There goes Wendy" every time they buzz over.
So after two hours it was time to leave, I felt brave enough to tackle an errand I've been putting off for quite some time. I headed for jail. I had met a nurse when I was in the Partial Program who works there and she suggested I apply for a job at the Detention Center downtown. She said the benefits were great, the job was great and with my psych experience, I'd have no trouble getting on there.
I had no earthly idea what building it was except that she had told me it was next to the "penis building." You're probably reading that twice, but if you lived here, you'd know immediately what and where I was talking about. I knew accomplishing this task was a huge fucking mistake the minute I got off the highway and hit downtown traffic. There were a million cars trying to crash into me. There were thousands upon thousands of people walking around way too close to my car. There were too many traffic lights. And the buildings, including the penis building, were like monsters--menacing and dangerous and would, at any moment, crash down upon me with enraged annihilation. Before I knew it, I was turning again. I turned around the same block about five times before making it to the penis building and spying the detention center. It took 12 more turns around the detention center before I had enough nerve to park--parallel, which I did on the first try but was so upsetting to me that I had to sit in my car for five minutes just breathing before I could even think about getting out. I then had to actually go in.
I had to cross the street and walk a flight of stairs to get to the entrance. The lobby was empty. Two women sat behind bullet-proof glass at a small reception area. I asked for an application and was handed a packet of papers about an inch thick. "I'm applying for a nursing position. Does this cover that?" She shook her head and motioned for the papers back. She then handed me one form. "This is all I need for nursing?" She laughed a little. "No, honey. For nursing, this is the application to get an application." Oh, goody.
I started feeling a little better until I walked back out towards my car. And then I had this feeling of total exposure. I felt as if I was in the path of an oncoming train. I quickened my steps. Once in my car, I found I had to re-trace the turns to get back to the highway and the anxiety started to build. Even as I found the ramp to the interstate and knew I was home free, the anxiety grew. Halfway between the jail and home I had to pull off the highway and scream. At first it was just screaming, but it soon turned into "FUCK YOU FUCK YOU FUCK YOU FUCK YOU FUCK YOU!"
I get so tired of playing it nice. I want so badly to just dissolve. When someone asks, "How are you doing?" I want to say, "I'm just barely holding it in over here." When the maintenance man came over today to fix my air-conditioner I wanted to say, "Y'know, I'm bipolar and it's a non-stop fucking circus up in here...the last thing I fucking need is to be battling 90 fucking degree heat in my own home." When I picked up that application I wanted to say to that woman, "What idiot approved the design of that building across the street in the shape of a dick?" But I don't. I'm too busy trying to appear normal. And I'm pulling it off. Ask Wendy.
I'm home. I'm safe. Can't say if I'll be going out again any time soon, though.
Oh, you'll be going out again soon. To meet me for lunch. Or something approximating that type of social interaction. And you will be perfectly normal. You hear that? PERFECTLY NORMAL!! Because I do not tolerate craziness, not one single bit. That's why I go to church so often: to be around normal, uncrazy people. People who believe that a man was raised from the dead two-thousand years ago so that we will all go to a happy place forever when we die. PERFECTLY NORMAL.
Oh, good on you for getting your butt out of the house. Sounds like way more than a "baby step" kind of outing, though.
I remember making myself go to Barnes & Noble to read for a couple of hours just so my then GF could have some time to herself. It was all I could do...literally.
Midnight seems to be the magic hour. If I'm awake, I'm conscious that the shaking stops. I can hold both arms out in front of me and my hands are steady with no sign of that fine tremor. My eyes stop feeling big. The staring stops. My head relaxes because the tension in my neck just gives way. My shoulders suddenly slump. Kim would say, "Get your shoulders out of your ears." That's what happens. My shoulders fall out of my ears. The stiffness in my trunk gives way and allows movement at the waist to go in both directions, opposite of my legs. I feel like one of those dancers on those Hanes commercials. Limber, loose...unmedicated. Salient. Is that a word? Is it appropriate for what I feel? Solvent. Does that apply? I'm just picking these words right out of my ass because the sound of them seems proper for what I feel at midnight...when the meds let go a bit and relieve me of the torture that is my daily fucking life now.
I'm down to about four cigarettes a day. I forget to smoke. Even as I'm walking out to the porch, midway, I've forgotten what I've gone to do and turn back to put the dishes away or take clothes out of the dryer and before I know it, it's four hours later and I remember that I haven't smoked. When I do smoke my hands shake as much to rival any drunk in the throes of withdrawal that I've ever seen.
The pills are too numerous. I do believe I'm taking a pill that counteracts the side-effects of a medication that counteracts another medication that causes bothersome side-effects. Nobody will say it, though, because it's so ludicrous, but if they did it would sound like this: "Take this pill for your racing thoughts, but it will make your muscles tight. Take this pill to help with the tightness. That pill will cause urinary retention. Take this pill to counteract that." Another real case scenario? "Take this pill to help with the psychosis caused by your bipolar disorder. After a while, you'll develop diabetes. But don't worry, we have a pill for that too. And when the diabetes gets worse, you'll start injecting yourself with insulin every day. We'll worry about the retinopathy and neuropathy when they occur. Don't go outside without shoes on. You don't want to lose a foot."
And all the while I'm thinking I don't need any of these fucking pills. I'm backed up in the corner thinking it's all a big fucking mistake. I was having a bad day. I was misdiagnosed. I know crazier people than me and they've never been under the shock-helmet. I know people who would greatly benefit from a few psychotropics and they function well enough in society without ever having to purchase a pill-dispensing case so big it won't even fit in a fucking purse. My doctor tells me I'm still very sick and won't release me back to work. LTD thinks I need to be on long-term disability. Kim says I am "still so sick." Spencer says, "I think you're getting better."
What do I think? I honestly don't know how I'm holding it together. I have no job, no income aside from the paltry short-term disability checks. I'm managing to get bills paid, but I have nothing left over to do anything with. I'm keeping the house clean and laundry going. I manage to go outside when forced. And throughout every normal day I am completely stopped by stares...just stopped, unable to move or talk or break free. LTD will nudge me out of them or Spencer will clap in front of my face, but most of the time I have to wait for them to pass. I'm thinking this is where some of that stiffness is coming from. You try it. Stand still for 3-5 minutes about ten times a day and see if you stiffen up. Is stiffen a word?
That's another thing...my grammar these days is awful. Spencer corrects me all the time. I trip on my words. At times I feel like I'm choking on them. This leads us naturally to food. I get hungry but when I try to eat, after a few bites, I'm full. No, not full. I feel if I take one more bite, I might choke.
So what I do now for one shred of sanity, the one thing I can do to reach utopia, is wait for midnight. That's where normal is. That's where I can find things. That's where I'm myself. If ever there was a time that I knew to the core that I wasn't in my right mind, it is now. I know these things are aberrant. I'm quite aware how strange this all sounds. Does that mean I'm not crazy? We believe that in the psych field, y'know. Most insane people don't know they're crazy. And most patients who proclaim far and wide that they're nuts, actually aren't.
What I wish for, what I desire, is a colorful madness--I want to run through daisy fields in my mind. I want to live full-fledged in a multi-colored surround-sound play-ground of passion that pitches me up and over waves of fluid dreamscapes. I want to be inside crazy with no knowledge of these side-effects, with no idea how horrible it is to not remember conversations, to scramble for words, to be screaming and scratching for a way out from the inside while trying to appear normal on the outside. I want the symphony following me about, the conductor knowing the exact score to play for each scene. I want the director making sure everyone is on their marks. And I want to be cut loose and fed to this fucking bitch whole.
I get it. I really think I do. I'm on seven medications right now and it doesn't seem like it's ever going to stop. I wonder if it does any good and sometimes I wonder why the hell I am taking all of them. I think I am more lucky than most with the side effects but I also know that there are a lot of things that the medications have done to me that I don't even notice anymore. It's harder to think, remember, speak, read, write. I think it's hard to explain it all to people who aren't dealing with it because they aren't giving up parts of themselves to medications in the hopes that they will find themselves again. Anyway. Hi.
The reason I'm making all these comments is because my comment to Maxine went right through (the first time, without having to repeat it like we always have to do). And then again when commenting to Jaime, it happened again. What up?
Maybe because you own the blog? I got the regular 2 hoops to jump through.
My old boss (currently APA President) used to tell me it wasn't at all unusual to find that one wound up with a cocktail of drugs, each one tweaking the other(s).
I'm a huge advocate of 2nd opinions. Have you considered shopping your case around to a psychopharm specialist who treats BPD?
Are you using BPD to signify BiPolar Disorder? Or are you telling me I have Borderline Personality Disorder? I've never been diagnosed with BPD but maybe a second opinion would garner it? Oh god, that's all I'd need!
I do indeed have an appointment coming up with my regular psych, Dr. K. These medication changes occured with Dr. S while I was attending the Partial Program. I think (hope) Dr. K will flip out when he finds out.
When I look into the mirror, I see a psych patient looking back. I do. I have that look now. I know it comes from an interaction of two or more of the fifteen psychotropic medications I'm taking these days, but I don't know which ones, and I'm not really sure you can say it's this one and this one and this one. I think it's an under-current of neuroleptic coupled with a mood-stabilizer with a sprinkle of anxiolytic that somehow sloughs off an aura of insanity that I carry with me everywhere.
It's obvious now that I'm on meds. Some people might not be able to tell, but they certainly walk away thinking something is amiss. I don't blink enough. My pupils are dilated. I stare too much. The muscles in my face get stiff sometimes and freeze a bit, usually in the shape of a frown, which is much better than, trust me, a frozen smile. The smile looks a helluva lot more psychotic than the frown.
And it's not just my face that carries the tell-tale signs. Yesterday LTD and I were driving down the highway, she in her truck and me following in my car, when she looked in her rear-view mirror and waved. I waved back. She pulled off into a shopping plaza and motioned me forward. "What's wrong?" she asked. She is, without a doubt, the most perceptive person I have ever known. "How did you know?" I asked. She could tell by the way I waved. My hand was stiff. My body had frozen up. When this happens, I walk like a psych patient. I can't bend my arms all the way. I have to take smaller steps because I can't bend my knees all the way. I have to move my trunk and neck in one motion. And if I happen to have a smile frozen to my face at the time, people will cross the street to avoid getting too close.
So when I look into the mirror these days, I look deeply. I look hard. And I know I'm in there somewhere. I know that sooner or later I'll come back out. I like to imagine that I'm inside somewhere catching the perfect wave, or sliding across a freshly waxed floor in silky socks, or tumbling down a grassy hillside, or just lounging around in comfy clothes waiting for my cue to take center stage. For now, there's no way out. The meds make sure of that. For now, I am my own hostage.
You just described my exact life on Geodon. I couldn't describe it; I always talked about being zombiefied. And then the EPS with the tongue stuff started and it got even more fun.
Enjoying your blog (well, as much as one enjoys someone else having this disease; empathizing my way through probably is a better thing to say); very interested to read more about your experiences. We have some things in common; I'm an OTR with severe BPI. I have all kinds of med resistances and sensitivities. And I've been looking for someone with a positive view of ECT for a while; I have asked that it be considered for me because the meds are just not effective and are so hard to tolerate.
I was supposed to be discharged from the Partial Program Friday but my doctor decided I was decompensating and needing some medication adjustment. Instead of going home that day, I got admitted to the inpatient department on the psycho ward. They did major tweaking of my meds over the weekend (read: added a shit-load) and sent me on my way this morning.
This is what it takes now to keep me upright. It took me over an hour to fill that pill dispenser and I still don't think I got it right. LTD is looking it over and finding discrepencies from one day to the next--one blue on Monday night and two blues for Tuesday, one white pill missing from Friday morning. You'd think it was fucking rocket science.
The problem is, they made so many changes Friday when I was admitted that I'm not sure which drug is causing me to walk like Frankenstein. I'm ambulating pretty much like those old psych patients did who were on heavy doses of Thorazine (where the term "Thorazine Shuffle" came from). Yesterday it was so bad every step I took was excrutiating. From noon to 10 p.m. I told everyone who would listen that I felt like a board and they did nothing. The doctor finally ordered Cogentin (which is a drug that counteracts side-effects of neuroleptic medications), but the nurse didn't give it to me until after 10 p.m. And I kept getting more and more stiff.
I'm still walking like a zombie, but not as bad. And it feels great to be home. I have my last treatment Wednesday (I hope it's my last one). And LTD is sticking right by my side and taking very good care of me. All is going well, folks. Thanks for all your good thoughts and emails you've sent. It has helped me immensely.
Thanks, Raine. I'm still stiff as a board but getting a kick out of how much attention walking around like you have a corn cob stuck up your ass will garner. The stares! Sheesh!
i can't believe they would just load you up with a bunch of meds all at the same time... how are you supposed to figure out what's working and what isn't? that just doesn't make any sense at all. did they have a 72 hour rule there? get 'em in, load 'em up, kick 'em out...
you're taking this very well tracy... i love your sense of humor and optimism.
Just think.. you have joined the ranks of all the suits who walk around looking like they have pickles up their butts. In body.. well, rigor.. only, of course.
Rootin' for you..
Bron
Well, it's not so much a helmet as it is a strap. ECT begins tomorrow. And because my brain reacts so well, or rather, so much to shock, we are spacing out, pardon the pun, the treatments. I'll have a jolt tomorrow, two next week and then one the week after. Four more and I'll be done with my course. And my very own Dr. K (or his colleague, Dr. R) will be doing them. Anyone will be better than Dr. Little Man. I will tell you the horror story about Dr. Little Man one day. Oh hell, I have time...why not now?
He was the doctor who gave me the four treatments while I was in hospital a few weeks ago. Or was it a month ago? I don't know. Time means nothing to me now. The first very strange thing about his technique is that the treatments hurt. Yes, they hurt. I've had, what?, forty or so treatments over the years and never, ever, ever has a treatment hurt before. All four treatments...pain unlike you could ever imagine. There was something he was running into the IV that was like a slow liquid fire. It wouldn't have been so bad if it was quick. But it was like, "Oh God, please, please, stop, please stop this, I've change my mind, stop the procedure, don't do this, I don't want this treatment, I want to retract the consent form, Can anyone hear me?, Is anyone listening to me?, stop doing this right now, please stop doing thi...." and then mercifully, out. It was like that every time. The second horrible thing was the memory loss. I remember NOTHING afterwards. I kept a journal and it's all written down, but after a day or so and after a few treatments, the erasure is complete. It is GONE. The journal entries are the only thing I have that are proof of what I went through. Those and eye-witness accounts. And one eye-witness account of something else was the third thing that occured that never happened before. LTD came to visit me one day and said my entire body was stiff as a board. I couldn't move it at all. In my journal entries there is a notation that says, "Dr. C says, 'Maybe you weren't given enough Sux.'" I don't know what that means. But there is a notation about these trunk-like movements after every single treatment, about patients making comments about me moving like a robot and about me pestering the nurses for muscle relaxers. All through the course of my stay are entries in my journal about being in pain, being stiff, crying about not being able to bend over or put on my shoes, not being able to move. But I remember nothing of it now. I don't even remember LTD coming to the hospital that day and raising hell at the nurses' station about my condition.
So, there is something definitely wrong with Dr. Little Man's technique so much that I sabotaged my last ECT with him by drinking a full glass of Diet Coke the morning of my last scheduled treatment. He scares the hell out of me.
But Dr. K and Dr. R do not. And tomorrow I go, though somewhat leery of having my brain zapped, I go anyway. Worry not, dear readers. I promise they will take good care of me.
are you have unilateral or bilateral? could it be that Little Man is doing bilateral while the others are doing it unilateral and that is the difference at least in memory loss?
I am back. I am awake. I totally survived. No muscle stiffness. Very little pain. No memory loss. Yet. Totally different experience. Good to be home. Thanks to my well-wishers.
At night, there is just nowhere to go. While LTD is soundly asleep and Spencer snores away in his room, even the cat and dog are curled up somewhere in the house, there is nothing for me to do but sit here at this keyboard and quietly type out some words. Even typing sounds loud.
I've checked my stats on my webpage. I've answered some emails. I've checked out a program at the hospital where I'm not working that offers a diabetes education class. And I've dreaded going to that stupid, fucking, retarded baby outpatient class in the morning. We have a new patient there--a pastor, who is sooooo unlike my Daniel--who, after five minutes after his arrival, began to diagnose and treat everyone's illness, got on my nerves so bad that I shut my mouth and said not one word the entire day and then left early. And I get to spend the whole day with him today. He's bipolar. My god, am I this obnoxious to people? I must be! Bipolar people can be pretty fucking obnoxious. I must be too. I must be! I hate the fucking mirror.
My ECT is being scheduled today. And guess who gets to do it? Me! "Yes, I'd like four orders of brain damage with four side-orders of massive memory loss on the side...yeah, give me three short-term and one permanent." Don't let anyone tell ya that memory loss from ECT is all temporary. It's not. Some of that shit NEVER comes back. I still don't remember being discharged from the hospital. Not the entire day. Not one thing. And I remember nothing of the entire next day. Nothing. Two entire days...just gone. You might think, "So what, what's the big deal?" But here's what happens:
LTD: "So Mike bought Andrea the ring yesterday. He's giving it to her tonight at dinner."
Me: "What?"
LTD: "They're going to La Paz."
Me: "What the fuck are you talking about?"
LTD: "Mike and Andrea getting married."
Me: "Mike and Andrea are getting married?????????????????"
LTD: "Yeah."
Me: "This is how you tell me?"
LTD: "I told you this already!"
Me: "When?"
LTD: "The day after you got out of the hospital!"
Me: "NO YOU DIDN'T!"
LTD: "Yes I DID!"
Me: "NO YOU DIDN'T!"
LTD: "Tracy, you called and congratulated them!"
Me: *blank stare*
LTD: "We bought them those special wine glasses that night."
Me: *wrinkled forehead*
That's what it's like. And maybe there's no Mike and Andrea. It could just be that Karen had the baby. Or Jason broke his leg. Or Daniel went to Ireland. Gone. Poof. Just gone.
Okay, I'm going back to bed. I'm so glad we had this time together. Just to have a laugh or sing a song. Seems we just get started and before you know it....comes the time we have to say, so long. There are some things you never forget.
Even though I know how seriously NOT funny this is to you, I had to laugh when I read the dialogue. GF and I have conversations like this all the time and neither one of us has ever had ECT.
Look at it this way: you'll be way ahead of the other 50-somthings when you get here because you have something concrete on which to blame your CRS (Can't Remember Shit) other than mentalpause...which I'm no where near experiencing and GF went through years and years ago.
I have a couple of people I could spring on you who would make your life interesting....Or maybe I should say I have someone who I could introduce to your pastor pal....
I remember another patient on the ward who had ECT while I was there. Her roommate had been through a few of these. Every time she returned she had to reintroduce herself and learn which bed was hers, where everything was kept, etc.
So don't sweat it. It's normal stuff for ECT and you've shown the strength to come through it.
So I've been attending this Intensive Outpatient Program for mental health stabilization. It's like an outpatient traninging camp kindergarten for people not ready for prime time, which would be me. And I've been rolling along thinking it's all a big joke. Why should I have to be doing this? I'm doing well. I'm taking my meds. I'm washing my laundry. I'm making my bed and doing the dishes every night. I'm maintaining my life.
We had this assignment today. A situation. Name a time in your life when you didn't think you were going to make it. List some strategies you used to help get you through it. Discuss with a panel of three of other patients how you got through it. And write down key points that you could use in your current situation. Everyone got to work.
I started by coloring in o's and a's and underling letters that couldn't be colored in. I couldn't think of a time when I couldn't make it through. And the ones I could come up with, I couldn't think of how to word them. That was strange enough...me, not being able to come up with written words to express myeself. But I couldn't put it all together.
I got up and found a couselor in the hallway. Near tears, I told her the assignemnt was too hard and that I would have to go home. She found the therapist in charge of the assignment and got us together to discuss it. I was leery of this. I thought he was doing this intentionally to break me. I balked at talking to him about it and cornered myself at the end of the hallway. This brought the director of the program out into the hallway who suggested we take this into a private office. I was in hysterics by now. There was a whisper: "Find the nurse." When the nurse arrived, there was another whisper: "Find the doctor." When the doctor arrived, yet another whisper: "Get a milligram of Ativan IM."
A shot in the arm. And then the Relaxation Room. I was able to make it back to the rest of the lecture, but was out of it, unfocused, bemused, even, but still leery of the intentions of this whole set-up. What was the main gist of this program? Bulking insurance companies? Tearing down defense mechanisms? Finding breaking points?
I came home exhausted. I came home disoriented. I came home.
I wouldn't have been able to keep it together in that sort of setting, and I am pretty functional and maintaining too. These sorts of interventions strike are indignities, simple-minded, infantilizing and invasive. I'd feel under a microscope, and called on to articulate my process for the sake of a nosey and hapless mental health facilitator. Ick.
Strategies? It's a complete disrespect for mystery which is probably closer to the truth of it. Why they can't enter your field of representation is not a mystery to me. Because you are miles ahead of their interventions and rationalists find that galling.
I think that I might have told them that getting out of bed was a situation I cant deal with right now..................:P I'm sorry it was so hard for you. For me dealing with people is stressful, even kindly well intentioned people......maybe its the same for you?
It's been happening every night about this time....as low as I can go, plunging down into depths I have never known before....there I go swimming into the muck. The tightness I feel in my throat is like a sickness, sucking the sides of my neck inward until it cuts off the flow of oxygen and I swear to God I can't breathe a hint of air. Sometimes I know death is just right around the next corner. I know it like I know the sun will rise, like the next wave will flow in, like the next minute will tick through. And it's not a scary thought. It's just an inevitability. I'm not afraid to die. I'm not at all afraid to die. It's not living that scares me half to death.
Things do always get better. In the meantime, if it's happening each day at the same time, check your glucose levels when it happens and see if there's any relationship. Second thing to check: timing of the low vs. when you are taking your meds. Think like a nurse here and you might find your way out quicker than you think.
I went to church yesterday and could only stay twenty minutes. It was the same Unity Church that I had attended a few weeks back (months back?), but this time, I did not cry tears of release or joy. I did not feel an overwhelming sense of belonging and serenity. I felt only stifled and cold and because I was unable to sit still, excused myself to the person sitting next to me and left while the minister spoke of blessings for which we should be grateful. Walking out, I silently ran through the list: I am grateful for my child. I am grateful for LTD. I am grateful I have a car to drive. I am grateful I can function on two hours of sleep. I am grateful that madness has not eaten little holes in my brain...yet.
I am grateful that Dr. K said I do not yet have to undergo more ECT treatments. They are coming, though. If I don't get this sleep under control and harness the lability of the moods I'm swinging through lately, they are coming. In the meantime, I am searching for Jesus. And I am running out of options.
The MCC church was not for us. While we are seeking a gay-friendly place to worship, MCC was just too gay. United Church of Christ was too holier-than-thou. Unity, I am finding, is not going to accept Spencer (I have yet to spring him on them), and I was kinda feeling them out to see what their reaction might be. It won't be good. I had LTD drive me yesterday to find the Unitarian Universalist church and was happy to discover that it isn't as far as I thought it was. Very doable. And I will...next Sunday. But I can't help going in there with all my hopes scattering about my feet, with my heart on my sleeve, with every little hope and dream resting on the appropriateness of this service/worship to accept both Spencer and me...and especially, for Spencer to accept it. He's the harder sell these days. He's leaning toward an overall Wiccan philosophy and I've been playing hell trying to find some good place that will nourish that in him.
I am trying. I am praying. It's not all for Spencer, of course. It's for me as well. I need more ammo against this bipolar crap. I've got the doc. I've got the shock. I've got the meds. I've got the therapy. I just need more ammo. I'm loading up as if for bear. And I'm taking aim.
I don't pastor a church -- praise Jesus -- so I can't really throw you a worship service. But I will offer my services as a chaplain and a friend in any way I can help, both for you and Spencer. I'm not going to claim I can put you on the right path to Jesus, but I will be happy to do or be whatever I can out of my own understanding of my Christian identity to help you through this rough stuff. Whatever spirituality you can get a hold on is a great resource in addition to the ECT and etc. Please let me know how I can help you with any spiritual direction. I miss seeing you.
Without the extent of your illness, I went through much the same path seeking acceptance in a religious context. Finally, I have found the comfort I was seeking in Buddhism. It is more self study than community, but I have found a lesbian Buddist group online, and I go to visit temples as I feel the need. It is more a philosophical or spiritual practice than religious. I find the hypocrisy in organized religion quite offensive now that I am removed from it. Email me if you are interested in a suggestion of resources.
It's been a while since I've read here. I lost track of so many blogs I really enjoyed. Glad I found this one again.
I went through the whole spectrum trying to find like minded 'religious' places to feel a part of. I ended up Agnostic. I have a belief in God but have relagated religion to societal and political places.
The best thing I could do for myself was create a sacred space in my home for sanctuary and find like-minded people in other forms of groups. It ended up feeling more spiritual to me than the ones intended to guide me on some rule oriented path. I do like rituals though. Lighting candles, ringing a bell in a room to provide soothing sounds, water fountains, releasing a balloon in the air with a thoughtful message attached. I find my place and connection to people in this way because searching for dogmatic religious acceptance wasn't for me.
Good luck in your qwest though. I hope you find a place of comfort with people who comfort you on that journey.
The Unitarian Universalist fellowships are full of Pagans, Wiccans, Buddhists, recovering Catholics, exEpiscopalians, etc. That's one thing I like about it: there's no dogma and room for everybody's particular belief system. Lots of respect and curiousity; it's a religion that's all about the questions, not so much a single set of answers. Good luck with this.
I sabotaged my ECT Monday. That's really the only honest way to say it. I got up at about 2:30 a.m. so thirsty I could barely swallow. But I did swallow. I downed an entire can of Diet Coke. For ECT, you must be NPO (nothing by mouth after midnight). And I downed a Diet Coke. My thirst still wasn't quenched. I still felt like I could drink up the entire ocean.
I've been in search of music, in particular, Sinead Lohan (which according to the staff at Borders, isn't even stocked by the company that put out the CD in the first place). I've not been in a good mood. My memory is shot. I remember cursory things, but nothing of substance. I wonder every day if I've incurred severe brain damage this time. I can still write, I guess. I can string words along, at the very least. But it takes a long time. And what used to be somewhat effortless is now like hammering each word to the screen, one at a time, with many backspaces to correct mistakes. I'm not so hopeful that music will help.
Everything is getting on my nerves. I made Spencer cry the other day. I made LTD walk out and leave me in a very precarious situation, alone, to stew in my madness. She came back right away, but for a second, I had to wonder...what if she doesn't? How safe was I really?
I no longer have a job. I no longer have any money. Rent was due yesterday. I didn't have it. I don't have it. I have no idea how I'm going to get it. Madness, for me right now, looks like this lanky guy leaning against a counter top, chewing on a toothpick and saying, "So, you gonna pull a rabbit out of your ass or what?" Madness is not poetic right now. It's just surly and impatient.
Fuck madness.
Oh, did I tell you that I was diagnosed with diabetes while I was in the hospital? Yes, they diagnosed me last year, but I never followed up. This year, I got a Diabetes Educator, a Nutritionist and follow up with an endocrinologist. My sugars are running between 140-270. They seem to be highest in the morning.
This might be wishful thinking on my part - I have a friend who suffered from depression his whole life. It was not until he was in his 40's that they diagnosed him with diabetes - he was not depressed at all - he was diabetic! Wouldnt' that be something if gaining control of your blood sugar was the key to gaining control of your mind??????
Hang in there Missy TR!!!!!
Thinking about you Tracy, thinking good thoughts for you and yours. I hate my own out of control-nesses, but I can't imagine going through yours. Keep writing, keep us posted. You're doing a great service, for the mentally ill, and for those of us suffering in other ways with the despair that can come of living an examined life.
Smell the flowers, hug your kid and your girl. You are not alone.
You sure can 'still write', and beautifully too. That publisher who wants the blog material must know their stuff.
Hang in there Tracy, there will be an other side.
As far as economic survival goes, have you considered contacting Adult Services (through your local Human Services/Social Services department)? You may be eligible for general relief or other programs; it's worth getting connected with a case worker to find out. I guess the other alternative is to consider moving home and letting your family help you more. You don't have to do this alone, but you do have to ask for help. And we both know that for anybody in any kind of recovery, asking for help is probably THE number one hardest thing to do.
I have been in the hospital for 12 days. I have received four electroconvulsive shock treatments. I have forgotten blocks of time, forgotten people and places and statements. I have wracked my brain trying to figure out what happened, how I happened to find myself in the exact same place as last Summer. LTD has repeated it to me over and over and over again. "You were a bit manic...and you wanted to tell Dr. K what was going on...you just needed ten minutes of his time...."
Ten minutes turned into a direct admit. We spent hours and hours in Dr. K's office while he set everything up. He wanted a direct admit--he didn't want me going through the Emergency Room. We sailed right in. I ended up in the same room as I had last year. LTD stayed with me the entire time. Until the bitter end. Until the goodbye time.
I begged her not to go. I begged her not to leave me there. The whole thing just went off wrong. Dr. K was being over-protective. I didn't need the ECT helmet again this year. I just needed some fucking rest. But for a few days I couldn't eat off plates. It was the strangest fucking thing to have happened to me in a long time. I can't explain why it was so logical then and needed no explanation, but right now I can't explain it because I don't remember the reason for it. Something about those plates...that ECT completely wiped out.
And I saw my friend Kelly (which I know because LTD told me I did but which I cannot remember). The treatments this time have jumbled up my memory to such an extent it's as if someone took a large spoon to the calender of these recent past few weeks and just stirred the fuck out of my days. I see Kelly floating through. I see pieces of patients' faces. I hear snippets of conversations, but nothing clearly. Nothing certainly. Not even my room is clear to me. I remember only the door. If you think that's not crazy, it is. LTD has had the most infinite patience in the world--just like Kim used to have--when explaining something to me for the fiftieth time. "No baby, remember....that doctor saw you on consult. Dr. W was your doctor. That other doctor was your ECT doctor." I just smile and nod. I remember nothing.
So I'm home now and my life is topsy-turvy. I'm not working. I have no intention of returning to work. A publisher wants to see Time for Your Meds: Where Humor Meets 4-Point Restraints. Yes, this very site, slightly edited. I'm having another article published with Nursing Spectrum. The last one went over very badly at work--it's just too tedious to go into. Hopefully, this one will do better. Not that it matters. I tell LTD ten times a day that I'm not going back and she just nods.
I remember so little. Bits. Pieces. Scraps. And all of those pieces are melded into and bled into each other that they're looking pretty much the same. It's just one big scrap of blood-tainted rag. That's what I remember. Everyone is telling me that I'm doing better, so I guess I am. But you'll have to take it from them.
I am back. For how long, god, who knows? And where am I headed? It's hard to say. This was a bad one. This was a horribly awful one. And I'm staring down the barrel of two more treatments. I tell LTD that I'm not going Monday. I won't go. She just nods.
I'm here at least. I'm an upside down cake. But I'm here. God help me, please.
tracy, spencer and ltd -- you are all in my thoughts and prayers. you've asked God to help you, and through the prayers of friends and readers i believe his hand will guide you.
as for publishing -- i've always found your blog more interesting than your fiction. so i'm totally not surprised a publisher wants to see this written. at least in the abyss there is an echo of great news.
keep us posted. love you and will consistently think on you and pray.
Welcome back Tracy. I hope this session of treatments treats you better than most. Just hang tough. We're all here cheering for you and thinking about you.
LTD, help her take care of things. Thanks.
Publish part/all of the blog? How cool is that? I will be waiting in line for a copy. Maybe order in advance to beat the rush. Just let us know where to send it to for an autograph. Okay?
I have been a lurker of your blog for a long time. You draw me in, you make me your partner in your pain. But also in your joy. Nothing profound here; I just want to acknowledge your gift to touch another person. Thank you.
Hi, sweetie! Nice to see you here! I've been thinking about you and hoping for the best with this latest round of treatment. Your days may be scrambled, but you sound a helluva lot better--better even than after last year's sessions.
I've been meaning to tell you a story about another woman I know who survived many years on disability as a result of many different MH diagnoses. Some 15 years later, she now has her MSW and is back at work full time doing something she loves and is very good at, even if it's very hard work and kicks her butt at times, even if she is still on meds and even though she still spends a lot of time and energy maintaining her mental health. She's lucky to have a very supportive partner and a psychiatrist who has supported her return to school and then the workforce. My point is, this is just one particular chapter of your life. There are many others still to be written.
Tracy, you're a very creative person. You're publishing possibilities prove that out. Since you're having trouble piecing together the stuff that ECT wiped out, we might as well have some fun with it. So here's what happened last week:
You came with me to Ireland and we went leprechaun hunting. I put a box of Lucky Charms in a small bear trap, but it turns out sugary cereal is not popular in Ireland, so instead we went to a pub and drank several pints of Guinness. Then a leprechaun showed up and we got him drunk, hog-tied him when he passed out, and took him with us to the Glastonbury music festival in Avalon where we hung out backstage while The Arctic Monkeys covered "Diamonds Are Forever." It was quite a week!
While we're at it, I got a pony.
If reality is so flexible -- and it is -- we might as well bend it to our amusement. I'm praying for you.
Where is my soft spot? Can I seek it out under a tree? Can I find it if I’m looking for it, or does it have to creep up and envelope me by surprise? Another night, no sleep. The clock has ticked and ticked and ticked until it became an essential part of who I am. If the ticking had stopped at any given time, would I have just keeled over and died? The fact is, there is nowhere for me to get comfortable. I can neither sit nor stand, lie down or walk. I cannot shop or read or write for any length of time. My mind spins round and round and the thoughts are disjointed and unconnected. And whatever happens to me this summer, no matter the fight I’m going to put in, I still see something large and dark looming. It matters not, not anymore. I’m just going to accept it for what it is. I’m just going to dive blindly right into the middle of its guts. I’m going to drown myself in the blood and I’m going to cherish the choking and the starvation for peace, for contentment, for that elusive moment when the sky has opened, just by a slit as thin as string, and let one fucking ray of sun shine on my fucking bloody face. I’ve been trailed for days. I’ve been followed. I imagined that if I looked back I would see some monstrous blob ready to suck me into its middle and suffocate me with its gushy entrails. I’ve imagined it was my worst enemy, a demon, a “one-way mother fucker” as we used to say in the neighborhood—and that it was going to devour me without conscience or regret. And what did I see when I finally turned around to look? What was there when the footsteps were just too grating on the nerves to keep me from slowly facing it? It was me. It was me.
Night is a hard time for a manic on a meltdown. The even breathing from the other rooms is just a reminder of what you should be doing and can’t….what you need to be doing but won’t. And everything in the room in which you are imprisoned—your den, your livingroom, or outside on the patio—all underscore that you are awake when the rest of the world sleeps. And the symbolic irritations do nothing to calm your nerves. The clock….especially the clock….ticks and ticks and ticks just to remind you that you are standing in the middle of the room waiting for the next minute to bring you closer to daylight so you can get out—so you can drive, you can shop, you can walk the mall or go to a flower store. You can go to the library or to Borders. You can buy a book that you won’t be able to read. You can be in a place that is going to close up on you and chase you back to the very place from which you just escaped. The couch is so inviting…inviting, inviting, inviting….you really should throw a party and invite people you don’t know, get to know them, and let them think you a fascinating creature. A creature: like the painting on the writing desk that Spencer painted at school—the eagle with its eye, watching you pace, watching you swing the bat, watching you watch your watch. And there’s the phone that you can’t use. There’s no one to call. No one to talk to. There’s nothing but the handle that sits idly in the cradle that won’t ring. A coffee ring on the counter. I get a cleansing wipe and scrub it hard. I get the broom and quietly sweep the floor. I take laundry from a basket and refold it. Better this time. Much nicer. Cleaner lines. Smooth creases. Creases on my forehead. My mother has them too. Two angry vertical lines right between our eyes where we’ve frowned so much. Where we’ve etched out the season of our own discontent. They are war wounds. I earned mine as sure as hell. I’ve earned every last crease. I frown again and look at the clock. I’m thankful that I don’t have to work. I’m thankful that I don’t have to work. I’m wishing that I had to work. Did I mention this? I’ve been written out of work again.
I was up too last night. Insomnia is a terrible thing -- it must be so much worse during a big bipolar swing. I can completely relate to the untouchability of sleep -- where the more you need it, the farther away it retreats. I used to wish so fervently for someone to just knock me on the head so that I could have just a few minutes of blissful unconsciousness. Now, for the moment anyway, Klonopin stops the cycle of sleep deprivation before it gets to that point. But knock on wood, because all the other treatments I've had stopped working eventually. I really don't want to go back there.
I dont know if you have had any experience with it or not as I am new to this blog. Seroquel is the only thing that has ever gotten me to sleep when Im hypomanic. I have to adjust the dosage according to the degree of mania and I have permission from my doctor to do so. Its still really precarious judging when and how much to take. I often end up misjudging and not taking it soon enough or not taking enough but for me it has been the only thing that has ever had any positive effect on my bi-polar at all. I'm treatment resistant and disabled by bi-polar. Sooo if you havent tried it and are desperate for sleep.................... you may want to consider it.
I too, just went through 3 weeks of sleeplessness and it gets old fast, I feel for you, Sweetie.
But, I sold my house and am in the last sprint to the finish line before I get out of here and on the road heading south so I did begin to sleep again.
It's amazing how much sleep helps our mental states, not to mention emotional and physical. It's the 2nd anniversary of Himself's passing today and I feel calm, all right with the world. Life Goes On.
I wish you the best and good sleeps to come to you, embrace you, rejuvenate and resurrect you.
I sent you a couple of emails but didn't realize you were still having computer troubles OR ...
that you have been PUBLISHED!!!!!!
Way to go, Word Warrior Woman!
Pride does not begin to describe my feelings for you or Spence. *hugs to the max* (and ... see you soon ;)
Sunny morning
You can hear it
Siren's warning
There is weather
on both sides
And I know it's coming
Just like before
There's a black dog
That scratches my door
He's been growling my name
saying
You better get to running
Can you make it
better for me
Can you make me see the light of day
'Cause I got no one
Who will bring me a
Big umbrella
So I'm watching the weather channel
And waiting for the storm
It's just sugar
Just a pill to make me happy
I know it may not fix the hinges
But at least the door has stopped it's creaking
I got friends
They're waiting for me to
comb out my hair
Come outside and join
the human race
But I don't feel so human
Can you make it better for me
Can you make me see the light of day
'cause I got lab coats
Who will bring me a panacea
While I'm watching the weather channel
And waiting for the storm
You won't want me
Hanging around the birthday pony
Even though it's just a game
You know we are the same
But you're the better faker.
I've been listening to this song over and over and over, so loud as to induce a brain tumor. It's in my brain and it's mocking in its sincerity. I can convince myself that she wrote it for me, by some compelling force, by some gift of trans-Atlantic telekinesis, or from wherever she was when she wrote it. Is she insane? Is she crazy? Has she lost her mind at some point? How else could she know? And if it's true that she has been in that storm, how is it that she can be so successful, write her lyrics that sing to a certain someone's madness, and whistle all the way to the bank and back? How can she describe someone's torment with nothing but her voice and a guitar?
I am disappearing. I am watchful. I am fighting with tooth and fang, holding onto a thread so thin it's promise is translucent. I have a knot under the skin on the top of my right hand. It is swollen and bruised and painful to touch. I keep touching it. When I make a fist, it looks a small mountain surrounded by a river of veins. It could be an aerial shot of some small continent. I can't stop looking at it. Where did it come from? How can we have injuries and not know how they got there? Did I do it in my sleep? Did I do it when I tried to gut the pig out of my intestines?
What sloppy discernment. What slippery symbolism. Can I fake it until the meds kick in? I can...as long as no one touches me. I can...as long as no one poisons my food. I can...as long as my defenses are stronger than the onslaught. I can, I can, I can. I just wish LTD would stop changing the color of her eyes.
WARNING: THE FOLLOWING ENTRY IS REALLY, REALLY GROSS
I'm not sure if my subconcious mind is effecting my body, or if my body is effecting the thoughts of my dreams, but lately, I've been manifesting my dreams into a physical awareness. I wrote that sentence fifty times and I still can't make it clear.
The other night, three separate times in sequence, I had a dream that I was puking up a baby cat. I could feel the kitten in my throat. I could hear it mewing. I was leaned over the toilet retching, but I couldn't get it out and I was choking to death. I woke up gagging and couldn't get breath into my lungs. I couldn't get any air in because of that kitten. When I went back to sleep, I had the same exact dream. And then again.
Last night I had a dream that a baby boar was eating its way out of my intestines. How gross is this? I could feel its snout, its teeth, coming out through my stomach. When I woke up, I was practically tearing at my abdomen...and then had the worst case of heartburn of my life.
Rx: one large bottle of TUMS, with Pepto as backup.
Sorry about the heartburn. Are you managing to keep a regular schedule for eating meals and sleeping? Adjusting to any change in meds seems to take way too long always, but the reality for most of us is that the worst is over by about week 4. You're more than halfway there, baby!
Instinctual feminine just coming alive and too much to stomach? It won't leave you, but it won't settle down either, so you feel suffocated? The boar seems male, for some reason. Was it male or female? Your gut feelings are not being paid attention to, so they just have to rip you a new ... exit in order to get out? You're not comfortable with some new gut-level feminine instinct you have?
I am knee-deep in music. I've been listening to everything: Jane's Addiction, k.d. lang, Patty Griffin, Natalie Merchant, and Michael Buble (my new obsession). And I've been shaving every fucking piece of hair off my body (except my head, which is not a part of my body anyway). People have been sooooooooooooo slow today. It's been a Sunday fucking drive through these here parts. But they're also talking slow, moving slow. What sometimes appears to me a cool, orchestrated ballet of life in the fast lane now only seems to be a fucking cluster-fuck at rush hour. The meds aren't working fast enough. The dog doesn't walk fast enough. People at work don't work fast enough. For me everything sounds. like. this....one. word. at. a. time. And I get the overwhelming urge to just shout, "JUST FUCKING SPIT IT OUT, BITCH!"
But in my mind, it is a fucking roller coaster ride of emotions, most of them extreme and the words, the thoughts in my head aresomuchlikethisthatIcan'tdecipherhalfthetimewhatthefuckI'mthinking.
Here we go again, folks. But I'm going to be the winner this time. I'm going to kick the holy living crap out of bipolar. This time.
Tracy
Everybody is slow, because you're way fast right now. Now, take the cotton out of your ears and put it in your mouth, because you need guidance and direction from others. Seriously, accept help and you shall receive. Learn from the past. Shall I come up with some more cliches? I thought the article was really good. Could you have been refering to S W?
How very astute you are, Kelly-Koo. Yes, SW (among others). I hadn't taken my Geodon yesterday morning because I wanted to try to take it all at night, so that was probably the problem. I forgot to tell you that, didn't I? Anyhoo, it was such a pleasure seeing you in your panties. If I had a photo of your ass on this site, I'd get hits as sure as Paris Hilton is going to be someone's bitch.
I went to bed at midnight and woke up at 2:30. I've been up ever since and have gotten much accomplished. Yes, I'm taking the meds. Seems they take forever to kick in, though, doesn't it?
Which brings us naturally to funeral songs. The other night at the BBQ with Ann and Debbie, we all came up with songs we'd like played at our funerals. I've had mine picked out for some time now.
MINE: "WANTED: DEAD OR ALIVE" by Bon Jovi
LTD: "TIME FOR ME TO FLY" by REO Speedwagon
ANN: "SPIRIT IN THE SKY" by The Kentucky Headhunters
DEBBIE: "FIGHT FOR YOUR RIGHT TO PARTY" by The Beastie Boys
All appropriate choices, if you ask me. What's yours?
My first thought was "Don't Fear The Reaper" by Blue Oyster Cult, but that just seemed too easy. So instead I think I'll go with "Shine On You Crazy Diamond" -- all 9 parts! -- by Pink Floyd followed by "Everything In Its Right Place" by Radiohead. And if that's all too depressing, play the Indigo Girls' "Closer To Fine" at the wake.
I've always been somewhat attracted to Sinatra's "I did it my way" ooo, and like dmiles49, I love "Shine on You Crazy Diamond" My dad wanted Enya played at his memorial service and I chose "Amazing Grace" because my choir does such a great job with Russell Woolen' arrangement. In terms of liturgical-type music, that's a great piece, as is "Choose Something Like a Star" from the Frostiana by Thompson.
My medicine makes my bed turn in slow circles each time I lie down and close my eyes. At first it is an easy, soothing feeling. I just roll into it, feel it spin me clockwise into these bits and pieces of sleep...promises of dark enchantment. Sleep is an escape for me these days...it is a welcomed reprieve from the constant mood shifts and swings. I'm like a junkie just starting to nod off as the delicious drug makes all the ugly world go away. And then I jolt awake, my head jerking forward as if I've just awoken during a boring class lecture.
I've been sparring with sleep these days. At night, when I want it, I get nothing but jabs. I duck and move. During the day when I want to get things done, it comes. I fight it as hard as I can, but it's so seductive, so absolutely exotic and tempting. I can almost hear it say, "C'mon, baby. Lie down. You know you want it." And I do. I slide into that bed at noon and let it totally engulf me. I let it devour me. But when I want it, does it let me have it? No. When I need it, will it give it to me? No. Sleep is my master these days. I am its slave. I am compelled to kneel down at its feet and let it own me. The seduction is almost too hard to fight. And like the junkie, I don't want to. Unlike the junkie, I can't get my fix when I want it. I can't buy it on the street. I can't cop from a friend. I can't command that sweet release whenever I need it. And maybe I don't want to. Maybe it's all part of this bipolar mess that I have to bear. Another cross to drudge across the concrete. Another scar to wear. Another challenge.
I'm so sick of it. I just want to close my eyes at night, fall asleep and wake up in the morning like normal people. Or lucky people. Well, hell. Since I can't sleep, I am dedicating this poem to LTD, who is sleeping. With her blond hair and lashes, she looks like a snow angel.
Every Morning's Mourning.
Watch you sleep
Dream and roll over
avoid the monsters
and the light
Watch you sleep
Watch you sleep
when the noise
of fifteen
floors above you
crashes in
and wraps you deeper
in your sheets
Watch you sleep
Watch you sleep
through every squeak
and smash and ping
as I serenade you
with my awake
and my breakfast
Watch you sleep
Watch you sleep
with a half-turned
smile on your face
an exposed and naked leg
your hair escaping you
like spilling starlight
Watch you sleep
Watch you sleep
when I kiss
the tiniest sample
of skin on your cheek
and know you wake
when I'm gone
and am gone
until again you sleep
Okay, okay, I'll comment. That was a beautiful poem, was it not? I found it on a "poems about sleeping" Google search. I could've written one of my own, of course, had I not been so deprived of sleep myself. Now, somebody do comment on this entry. LTD, I believe, is getting a complex.
; )
I'm making this quick post to let y'all know that the cook-out was lovely. We had hotdogs and baked beans and chips and it was all just casual and laid-back. Our friends Debbie and Ann are amazing conversationalists and we talked about everything and about nothing at all. Another moment in the partaking of life itself. LTD manned the grill, of course, despite Ann's obvious desire to do so. If you know anything about butches, you'll know what I'm talking about.
And now I'm off to church. I have not stopped in my quest to find a place where Spencer and I will fit. This is a Unity Church and I have high hopes. MCC and the United Church of Christ (both gay-friendly churches....hell, MCC is gay centered!). But neither were right for us. I will let you know how it went. I'm nervous about it and I don't quite know why.
Daniel, my brother, (whom I work with and who isn't really my brother), will be happy to know this.
In search of angels, flying close to the ground...
There are two overwhelming emotions I feel when I go to church: profound sadness or hysterical laughter. Sometimes both within minutes apart. Spencer and I went to church with Kim and her mother one Christmas Eve and when the organist began to play, it sounded just like something you'd hear on the Carol Burnett Show. I made the freaky eyes she was so famous for...a cross between total paranoia and suspicion, and Spencer and I just lost it. We couldn't look at each other during the entire service for fear of being barred from Holy Ground. Another time at the MCC church, in the midst of the sermon, the lights were mysteriously lowered. I simply whispered, "Oh great, now I'm going blind," and poor Spencer nearly choked to death from trying to keep the laughter at bay. Today, it took ten minutes and the floodgates opened. It started with the music...a piano solo--gets me every time.
The minister was a woman with a great presence who had this ability to make eye-contact with every person in the room. She spoke of many things but when she started talking about disasters and hardships that happen to people who don't deserve such things, the tears slid down my face one after another after another. The lady next to me handed me a tissue. I thought of Spencer. I thought of my son being trapped in a body that makes him sick. I thought of my son being ridiculed at school and having to give up his best friend because her mother had "a problem with his gender issue." I thought of how hard his life has been and how hard it will be in the future and I felt so alone and so helpless. The minister looked at me several times. I was hard to miss. Though not wracked with sobs, I cried silently the entire time and went through a half box of Kleenex. At the end of the sermon she said, "There is someone among us with a heavy heart...let us pray for her strength." And then I lost it.
So many people came up to me afterwards I didn't quite know what to do. LTD's ex's mother is a member of the church and she was there too, the only one among them that knew where such pain was coming from. It mattered not to any of them. All they knew was that I was hurting and they reached out. It was an incredible experience.
Excellent site, Dara. I'll be checking out that one as well. I do recall you saying that Spencer was a true Unitarian Universalist. Thanks for reminding me.
I am happy to know this! I'll be even happier if and when you find a community where you fit.
Sometimes I'm sure Jesus wouldn't fit in at church. At least none of the ones I've been to, and I've been to quite a few. But then, that's why I'm a hospital chaplain: that's the church where I fit best.
Blah, blah, blah, blah. I could write this whole entry like that the way I feel right now. I'm having good days and bad days. Yesterday I got so much done! I wrote several articles. I re-edited some very bad writing from a few years ago. I cleaned the house. Did some laundry.
Today, I found myself on the couch watching Celebrity Fit Club. All day. Something very wrong there.
I'm back on the meds, which is good, but they are kicking my ass. I can barely stay awake and did in fact sleep for hours off and on all day today.
I'm actually getting paid for the articles I'm writing now. I should be very excited about that. But I'm not. I also had a major disappointment with school. Seems they didn't get me registered in time and I'm not on the roster and because it's a summer course, they couldn't add me in. So I'm out. I should feel really awful about that. But I don't.
These days, I'm not feeling much of anything. The meds are so strong. I'm always amazed that I have to take such strong medicine for what feels to me like just normal mood swings. But all I really have to do to break that spell of denial is look back on some of my old entries. Here's one, for nostalgia's sake:
July 16, 2005: I wish mood swings were really like swinging...that you could swing effortlessly through the air, seated on a sturdy wooden plank, suspended safely by strong and trusty metal links that were fastened to a heavy, unbending bar inspected twenty times over by a team of licensed professionals from the Parks and Recreations Code Department. And I wish those mood swings went up and down, back and forth, with the same effort and force each time, controlled by the movement of your legs, faster or slower by the force of your stomach muscles and that the breeze blew into your face on the way up where you could close your eyes to it, lift up your face and smile up to God like there was no other pleasure in the world but this uplifting take-off, where you could feel your hair fly around your face on the way back, where you had absolutely no idea what was behind you, but that you let yourself go to it, maybe even leaned back, let your legs stretch out before you and closed your eyes and gave yourself to it, gave yourself to that backwards flight like nothing else in the world mattered but knowing that you were part of the air, off the earth, away from any grounding force, challenging gravity, and still, feeling the safety of those code-inspected mechanisms. Mood swings are nothing like that. They are not timed. They will not be the same each time. What sets you off in one direction one time will not set you off again the next. What brings you down one time, will not do it again. There is no avoiding any person or thing or song or movie or person. There is no avoiding a certain hour of the day or anything else that is safe or unsafe. What is absolutely maddening for me is the trivial components that flip my switches. No longer are the depths of despair any part of my mood swings. Those have been purged. At this time, it is a good thing. Numbness is almost a welcomed change. I prefer, of course, the very surface contented part of these mood swings, but either way, I never know what I'm gonna get, or when, but I have discovered, quite by accident, that it will be something so fucking infinitesimal, by and of itself, it will literally freeze me in my tracks.
Not manic yesterday, nor depressed today....just floating around somewhere in the middlespace. Uncomfortable, yes. It doesn't feel quite right. And I know that is so because of the stabilization through chemicals. But necessary. Right now, very necessary.
I'm relieved about what happened with school. Maybe they will let you audit, if you feel you need that routine, or if you want to get a flavor of what it will be like when you DO get registered to actually take the classes.
I'm crossing my fingers that once you get over the initial adjustment to the meds, things will be better again.
So LTD and I are sitting outside Dr. K's office yesterday. I was feeling a bit nervous and not wanting to go in. (He did start me back on meds, by the way.)
Anyway, I was thinking that this was the last place I wanted to be in the world when LTD looks at me and says, "Damn baby, you look like you're about to be electrocuted."
Ha ha. Ha ha. It's a riot a minute with this one, folks.
I'm glad you're getting help; I don't want you to crash again and miss months of work because then what fun would I find in going to that crazy factory?
Besides, I'm on meds, too. It's what makes us awesome.
When I hear songs from a certain Frou-Frou CD, I am immediately taken back to two summers ago when I lost my mind. I listened to that CD day in and day out, moved to some semblance of sanity, all while my brain slowly disintigrated. I heard one of those songs today, just listening to the radio while cleaning the house, and I lunged at the stereo and shut it off. I used to think the term "losing one's mind" was pretentious, at least when it applied to me, but I'm now almost certain that I'm mere pills away from total destruction...not just during the summer, but now...right here, right now.
When I "forget" to take my medicine, even for one day, my mood spirals out of control. I can be depressed enough to pray for death and the next hour, I'm flying weightless through the ether, high as heroin, unable at that moment to fear the plunge that is soon to come. What is so different now is that I don't feel normal when I'm off the meds. This has not always been the case. Medication has always made me feel so weird, wired, jittery and emotionally precarious. But I feel that way now when I don't take it. Have I become dependent upon it? Or has my illness become so advanced that only medication keeps me out of the locked wards of denial and impervious mania?
I look at our older manic patients who have gotten worse with each passing year and I wonder if I'm going to find myself there. Is anything I do now going to keep me from being imprisoned in that temperamental space? And while I fight this fucking beast with antipsychotic medication and mood stabilizers, are the years of treatment going to be effective even while they ravage my liver?
What is also different is that I'm now getting that "tap" at least twice a week. "Excuse me," says a faceless voice. "It's time for you to jump off the deep end." This is a summer thing and there was once a reprieve for the long months in between. Now there is not. It is there all the time like a collosus breathing down my neck. At times, I can feel its breath--and seriously, without sounding all melodramatic and shit, I've hurried my step and looked cautiously behind me on the get-away.
I guess everyone has their own opinions of madness. I never considered it for myself. It was just mood instability. I was just being moody and spoiled. It was never madness...not for me. I am like those patients who proclaim--who scream--that they are not insane. They're just having a bad day or they're just stressed. But I see it so clearly in them. I see their demons standing right there next to them. And people see mine too, though I use every trick in the book to keep them hidden.
I was at the doctor's office the other day with complaints of ear pressure. The doctor took a look, diagnosed an infection and sat down to write a prescription for prednisone. I almost jumped off the table and ran. Prednisone is to blame for thousands of people, even ones who are not diagnosed with bipolar, blasting off like rockets into mania. We see it all the time at work. But what the hell was that initial reaction in me? Was it a total absence of denial? Was it the basest of defense? Are my mechanisms for protection against my own insanity so keen by experience that they kick out like a reflex? And is this such a good thing? Or is it a warning that my fear is well-grounded, that the beast is getting closer and closer? Is it the reason I didn't show up for an appointment with Dr. K last Monday? Is it the reason I'm avoiding my supervisor at every corner?
The questions have no right or wrong answers...not in this mucky space. I can only down the pills and pray for relief. I can only hope no one sees the phantoms standing at my side, smiling or grimacing, wetting their pencils with their tongues and then writing down the symptoms...waiting for the right or right amount of clues. And there I am, dodging, dancing, whistling past the graveyard...blending in with the patients and appearing normal by comparison.
There will come a time when nothing in my power will camouflage it. People will start to notice that I'm ducking, that I'm cringing away from the claws. Is there nothing I can do to brace for the impact? Knowing it's coming doesn't make it easier...it just makes me feel more exposed and vulnerable for the fangs dripping the poison. There has to be something--an anti-venom--that will stop the pursuit. I don't know if medication is enough. I don't think the radiation can cure this cancer. What then? What magic bat can I swing? How fast can I dance? How long before it finally eats me alive?
What!!!!! You didn't bath the dog? (joking) Well written sweet heart. I'm right by your side.